Morgellons Poll

[Katinka]

Yeah, sure, brain fog...

[saramar]

1. State you reside in Colorado
2. Inner City? Suburb? Country? City
3. Do you live on a lake, by the ocean or pond? no
4. Do you have city or well water?city
5. Do you live in a heavily treed area?no, not really
6. Age at onsetprobably about 27
7. Number of years affected15 or so
8. Any other family members affected?I don't think so
9. Your occupation at onset?I was a stay-home mom back then
10. Do you own pets? Cat? Dog? Other?2 cats, 2 dogs
11. Have/had you traveled to California, Florida or Texas? Europe? Other?I lived in Chico, CA for about a year
12. Do you/have you garden, hike, camp or spend allot of time outdoors?Yes, I've always done all that stuff
13. List your activities and hobbies.I try to work out at the Y, I grow vegetables, take care of the house and yard
14. Have you used a public whirlpool or pool?yes
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).cervical dysplasia, I had surgery to remove the precancerous lesions
16. Do you smoke?unfortunately
17. Any medications you have taken or are taking?I currently take wellbutrin, but I don't really think I need it, I might just quit. I have in the past done meth, which I think exacerbated my symptoms
18. Do you drink more than 8 cups of coffee a day? No. Maybe 2
19. As far as lesions, have you had more than 10 at a given time?Definitely. Not right now though. I just have a few. Sometimes I don't have any at all.
20. What part of your body did the lesions start? legs first, eventually my scalp and face
21. Is there any area that they are most prevalent? If so, where? face, and there are a couple in "bikini area" that will not go away
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? no
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?)I'm getting lesions again after not having any for a while, sensitivity to light, joint pain, yeast/fungus issues
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?I honestly haven't talked to a doctor about this, I just thought I was weird. I've been pulling white threads out of my skin for years, and those awful white things inside the lesions. Just 2 days ago I found out I'm not alone.

[fdxfield]

Originally Posted by Kritters

THERE IS A PERSON WHO CLAIMS TO HAVE PASSED THIS DISEASE TO US??????

Uhhh, yes. Well, to me.

[Sadsack]

Fdxfield -
Can you please explain some things? "The Person" who "gave it" to you and your friend, I assume - told you it is a "human mold"??? Now, how would he/she know... (and what is a "human mold"?) ... and I thought it was an a/c unit creating mold that you got it from?
I'm sorry, but some things just aren't making sense. You protray yourself as a high profile person, and "advocate", etc, yet you seem to be hiding on this board.
SS

[Katinka]

sadsack....



Yeah! fdxfield, STOP speaking in riddles...will ya!....

[Sadsack]

With so much to be suspicious of, the last thing we need is for people who say they have Morgellons to come here and deliver messages with hidden meanings. We DESERVE clarity and transparency!

SS

[fdxfield]

Hiding?
When I'm not working or taking care of my family responsibilities, I have this and several other involvements that I split my free time between. Unfortunately, that doesn't allot me with near enough time to devote my attention to any one specific topic.
I am very thankful that I now have the ability to engage in multiple interests, and work. When I first became affected by this ailment, I was 100% afflicted. I couldn't think multiple thoughts. I couldn't get dressed on a daily basis without an anxiety attack. I couldn't remember what I was talking about - midsentence. I felt like I had the brain power of a Kindergartner. Life remained dysfunctional, this way, for over a year.
During the past 5 years, I have slowly recovered "me" and sometimes still fear the return of those pat disabling experiences.
As far as "where or how", this all began, I do not believe anyone one can know for sure. Not until we know exactly what it is. There are multiple theories that help us gains clues and piece our puzzles to and I can only speculate until that Revelation arrives. I had a very active life back then and there are various memories and avenues that lead to this road.
As information becomes available, each highlighted area of concern becomes apparent. For example:
Yes, I did have a leaking A/C system in my attic that created a mold in my home.
Yes, I was involved in extensive yard excavation that may have involved contaminated soil.
Yes, I did travel to another area and stayed in a hotel.
Yes, I did know someone else who had this problem before I did.
Yes, I drank unfiltered tap water at that time.
Yes, I did notice a strange webbing substances floating in the environment.
Yes, I did have a problem with bats in my attic.
I swam in a lake that I now know has Hazmat dumping. We were avid campers at multiple campgrounds between 2 states- I was bitten by a tick at one of these locations. I was over worked and became so stressed out that I had a nervous break down that could have caused a weakened immune system that created an open window for an infection to attack. And yes, my body was in toxic overload.

Now, which one of those should I pick. Maybe all, who knows.

Sorry you feel that way.

[morgylady]

Originally Posted by Frankybme

Please answer as many questions as you can. We are hopping to find some common patterns among the answers.

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in Currently Atlanta but believe I contracted it in NYC, Springfield, Mass or Honolulu.
2. Inner City? Suburb? Country? City.
3. Do you live on a lake, by the ocean or pond? Did in Honolulu and NYC
4. Do you have city or well water? City in all cases.
5. Do you live in a heavily treed area? Never have.
6. Age at onset anywhere between 19-23
7. Number of years affected guessing around 5-7
8. Any other family members affected? husband and 1 yr old daughter
9. Your occupation at onset? Student, Social Worker, Customer Service Rep
10. Do you own pets? Cat? Dog? Other? No
11. Have/had you traveled to California, Florida or Texas? Europe? Other? Cali.
12. Do you/have you garden, hike, camp or spend allot of time outdoors? Nope.
13. List your activities and hobbies. Indoors stuff. Sedentary.
14. Have you used a public whirlpool or pool? No.
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?). PCOS, asthma, allergies, arthritis, weak joints, all before. Now, same, just much worse.
16. Do you smoke? Yes
17. Any medications you have taken or are taking? no.
18. Do you drink more than 8 cups of coffee a day? never drank coffee
19. As far as lesions, have you had more than 10 at a given time? never had any.
20. What part of your body did the lesions start? none
21. Is there any area that they are most prevalent? If so, where? n/a
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? no
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?) vision and hearing degradation, fatigue, memory loss, spontaneous paper cut-like scratches that end in tiny puncture wounds that ooze and sometimes a little spike will come out of them for a bit and then retreat, small crystal like shards --green and white--coming out of skin, worms, insects, cocoons, white goo, black and white specks coming out of skin. lymph node swelling and pain. intestinal and general internal pain.
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?

scabies. allergies. fungal skin infection.

[rick37209]

1. State you reside in Tennessee
2. Inner City? Suburb? Country? City
3. Do you live on a lake, by the ocean or pond? No
4. Do you have city or well water? City
5. Do you live in a heavily treed area? Yes
6. Age at onset 38-40
7. Number of years affected 3-4
8. Any other family members affected? yes
9. Your occupation at onset? property maintenance
10. Do you own pets? Cat? Dog? Other? Dog
11. Have/had you traveled to California, Florida or Texas? Europe? Other? yes
12. Do you/have you garden, hike, camp or spend allot of time outdoors? no
13. List your activities and hobbies.
14. Have you used a public whirlpool or pool? yes
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?). HIV
16. Do you smoke? no
17. Any medications you have taken or are taking? no
18. Do you drink more than 8 cups of coffee a day? no
19. As far as lesions, have you had more than 10 at a given time? no
20. What part of your body did the lesions start? arms
21. Is there any area that they are most prevalent? If so, where? face
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? no
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?) all / weight gain
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)? first scabies second folleculitis

[Kritters]

Hi Rick....
Welcome to our family.
How did you find us? My guess is 'maintenance' and yer 'dog' brought you here. I love dogs too, but...sorry they are just as vulnerable as we are.

I hope you find solace and help here.

Kritters