Morgellons Poll

[Kritters]

thanks Kammy! will do....
Kritts

[sylvia]

Originally Posted by Frankybme

Please answer as many questions as you can. We are hopping to find some common patterns among the answers.

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in CALIFORNIA
2. Inner City? Suburb? Country? SUBURB
3. Do you live on a lake, by the ocean or pond? NO
4. Do you have city or well water? CITY WATER
5. Do you live in a heavily treed area? NO
6. Age at onset 59
7. Number of years affected 5YRS
8. Any other family members affected? NO
9. Your occupation at onset? QA INSPECTER
10. Do you own pets? Cat? Dog? Other? A DOG
11. Have/had you traveled to California, Florida or Texas? Europe? Other? NO
12. Do you/have you garden, hike, camp or spend allot of time outdoors?
13. List your activities and hobbies. YOGA, COLLEGE STUDIES, BIBLE STUDIES, WALKING
14. Have you used a public whirlpool or pool? NO
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?). FOUND A LYMES DOC LAST YEAR WESTERN BLOT TEST I WAS ACTIVE LYMES
16. Do you smoke? YES
17. Any medications you have taken or are taking? ANTIBOTICS
18. Do you drink more than 8 cups of coffee a day? NO
19. As far as lesions, have you had more than 10 at a given time? NO
20. What part of your body did the lesions start? HEAD
21. Is there any area that they are most prevalent? If so, where? SHOULDER AND HEAD
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)?LEFT SIDE
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?) LESIONS GONE, NOW HAVE MORGELLONS/LYMES/LICHEN SCLEROSUS
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?

DOP, DRS IN AREA HAD NO CLUE. HAD TO GO OUTSIDE OF CITY

[dragonfly1]

1. Florida - 2.Country - 3. No- 4.City - 5. No -6. 42 - 7. 3 - 8. Yes - 9. Marketing
10. Cats - 11.Yes - 12. Yes to all - 13. Yoga, Gardening, Hiking - 14.Yes - 16. Yes
17.Yes - 18.No - 19.Yes (hundreds) - 20. Inner thighs - 21.Belly & Legs - 22. Same
23.Lesions,vision,tired,swollen painful joints,confusion,weight gain

[Sydney]

1. State you reside in
AUSTRALIA
2. Inner City? Suburb? Country?
INNER CITY
3. Do you live on a lake, by the ocean or pond?
CLOSE TO OCEAN
4. Do you have city or well water?
CITY
5. Do you live in a heavily treed area?
NO
6. Age at onset
NOT SURE - 15
7. Number of years affected
MAYBE 15
8. Any other family members affected?
NO
9. Your occupation at onset?
10. Do you own pets? Cat? Dog? Other?
NO
11. Have/had you traveled to California, Florida or Texas? Europe? Other?
YES
12. Do you/have you garden, hike, camp or spend allot of time outdoors?
NO
13. List your activities and hobbies.
14. Have you used a public whirlpool or pool?
YES
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).
NONE
16. Do you smoke?
NO, SOCIAL SMOKER IN MY PAST
17. Any medications you have taken or are taking?
NO
18. Do you drink more than 8 cups of coffee a day?
NO
19. As far as lesions, have you had more than 10 at a given time?
NO
20. What part of your body did the lesions start?
21. Is there any area that they are most prevalent? If so, where?
SCALP
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)?
NO
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?)
ITCH, MAKE OTHERS ITCH, LITTLE FRUIT FLIES
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?
DELUSIONAL

[TWIGGYAZ]

Originally Posted by Frankybme

Please answer as many questions as you can. We are hopping to find some common patterns among the answers.

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in AZ
2. Inner City? SUB Suburb? Country?
3. Do you live on a lake, by the ocean or pond? NO
4. Do you have city or well water? CITY
5. Do you live in a heavily treed area? NO
6. Age at onset 38
7. Number of years affected JUST 4 WEEKS...
8. Any other family members affected? YES
9. Your occupation at onset? MARKETING MANAGER
10. Do you own pets? Cat? Dog? Other? YES
11. Have/had you traveled to California, Florida or Texas? Europe? Other?
12. Do you/have you garden, hike, camp or spend allot of time outdoors? Y
13. List your activities and hobbies.
14. Have you used a public whirlpool or pool? NO
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?). DEPRESSION - SEVERE
16. Do you smoke? N
17. Any medications you have taken or are taking? N
18. Do you drink more than 8 cups of coffee a day? N
19. As far as lesions, have you had more than 10 at a given time? YES
20. What part of your body did the lesions start? FACE
21. Is there any area that they are most prevalent? If so, where? MY FACE!
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? NO
23. Please list your current symptoms (brain fog? vision disturbances? YESfatigue? nausea? weight loss/gain etc?) LOSS OF APPETITE, INSOMNIA, PARANOIA
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?

NOT BEEN YET AS I KNOW THERE IS NOT ANYTHING IMMEDIATE TO DO ABOUT IT - GOING HOLISTIC AND USED NUTRASILVER.

[smartin]

Originally Posted by Frankybme

Please answer as many questions as you can. We are hopping to find some common patterns among the answers.

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in - maryland
2. Inner City? Suburb? Country? Suburb
3. Do you live on a lake, by the ocean or pond? Yes
4. Do you have city or well water? Well Water
5. Do you live in a heavily treed area? Yes- 7 acres of woods
6. Age at onset 54 (may have had longer and unaware
7. Number of years affected >2
8. Any other family members affected? Possibly husband
9. Your occupation at onset? Acupuncturist
10. Do you own pets? Cat? Dog? Other? Dog
11. Have/had you traveled to California, Florida or Texas? Europe? Other? Yes, lived in California & travel bi-annually to California
12. Do you/have you garden, hike, camp or spend allot of time outdoors? Yes all of these.
13. List your activities and hobbies. Was singing & dancing, but unable to do either due to this illness. Still enjoy camping, and video making new hobbie.
14. Have you used a public whirlpool or pool? Yes
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).Hashimotos Thyroiditis, Lyme
16. Do you smoke? yes, have in past
17. Any medications you have taken or are taking? Thyroid meds - many meds over last 2 years to try and treat this damn thing whatever it is- anti-biotics, ant-parasitics, anti-helmintics,etc.
18. Do you drink more than 8 cups of coffee a day? No
19. As far as lesions, have you had more than 10 at a given time?No
20. What part of your body did the lesions start? on back and in groin (but generally I have very tiny lesions that come 7 go, and do not follow typical pattern. I have urine fibers, eye fibers, nose, respiratory, & GI tract- skin is not that bad, but i do have the chronic crawling and itching- lesions are hardly a problem. I also have lots of neurological symtoms.
21. Is there any area that they are most prevalent? If so, where? Neurological symptoms are the most disabling. i have a recurrent meningitis, gait disturbances, muscle problems, chronic twitching, etc.
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? more left than right generally
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?) brain fog. Vision problems- severe photosensitivity, dry eyes, and fibers in eyes, muscle fatigue & terrible stiffness, multiple paresthesias, skin crawling, burning. The worst of all, the entire spinal cord burns!!!
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?

Was diagnosed with Asceptic Recurrent meningitis, possible Lyme, Migraine Syndrome (although I've never had a headache, except when i have meningitis flare)

[kool-aidman]

1. State you reside in
New York



3. Do you live on a lake, by the ocean or pond?
Lake Erie
4. Do you have city or well water?
City water
5. Do you live in a heavily treed area?
no but I always camped
6. Age at onset
29

7. Number of years affected
not really sure might have always had it but may have progressed, all major symptoms started 2004.
8. Any other family members affected? My brother

9. Your occupation at onset?
can’t disclose at this time

10. Do you own pets? Cat? Dog? Other?
a family Dog

11. Have/had you traveled to California, Florida or Texas? Europe? Other?
yea, I have been to Florida many times, Orlando, Coco beach, Daytona, Palm Beach, and Jacksonville.


12. Do you/have you garden, hike, camp or spend allot of time outdoors?
Camped, hike, use to garden with my parents

13. List your activities and hobbies.
Camping, snowboarding, ice hockey, history research,

14. Have you used a public whirlpool or pool?
yes,
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).
Jaundice, colic, cellulites, Vertigo, acid reflux, Parvo-viric 5th disease
16. Do you smoke?
no
17. Any medications you have taken or are taking?
Kalflax
18. Do you drink more than 8 cups of coffee a day?
no coffee

19. As far as lesions, have you had more than 10 at a given time?
no,

20. What part of your body did the lesions start?
back of the neck, lower back, ankles, forhead, near ground

21. Is there any area that they are most prevalent? If so, where?
any earia where there is no hear, mostly on back
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)?
Stomic, sholders, arms and lags: hives, bug bits, lesians, red skin, yellow blisters.
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?)
Brain fog, memory loss, fatigue weight loss 160 to 145 with in a month digestive problems diariah, vomiting, acid reflux, insides burn, bones burn, crackng joints, itching, crawling, stinging, all over body.

24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?

Vertigo, acid reflux, Parvo-viric 5th disease, Scabies, lice, cellulites.

[unknownpest]

1.calif.2.suburb3.yes4.city water5.no7.not sure outbreak about a year ago.8.maybe9.unemployed10.no11.yes12.yes13.excerci se14.yes15.shingles.clamidia,16.yes17.no18.yes19.y es20.face21.head scalp right temple22.right23.brain fog muscle joint pains eye floaters lesions channels fibers different colors and sizes granules crystal like structures glitter like gooy substance head area mostly rib pains ear popping crunching sounds also strange hummimng sounds foot pain knee pain hip hurts most often heart skips beat severe haedaches gum problems pollups in mouth hair sore.24.havent been to doctor in third world country right now.

[Katinka]

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[Katinka]

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