Aue Huki huki

[Digit]

Translates into..my scabby/nasty thing.
I don't know if I have Morgellons.
My head is not as bad as this at the moment, this is my winter look.

[Doc Holliday]

Originally Posted by Digit

Translates into..my scabby/nasty thing.
I don't know if I have Morgellons.
My head is not as bad as this at the moment, this is my winter look.

>>>why.......Diget!,....so sorry wow!... I have never had such bad lesions or rashes,...God Bless you,....what other symptom's do you have??.... I did have lesion's on my face about 5 years back that were under my eye's,.. along the side of my nose that were 1 inc. long by 1/2 inc wide,..and lesion's inside the rim of my nose,...but not any more, it's been a little over 6 years,..... I get a lesion now on my arm and back,..about 1cm round,...or maybe 2cm's not bad..... I hope hope things clear up for ya,...it did for me,...I still have issues but much better,...the 1st 2 & 1/2 year's or so,... I call the crazy time!!,.and it was,..but then again,.. things got better,...good luck,..hang in their Digit. ........Doc

[Digit]

Hey Doc, nice to meet you. Can I be a real as* and say that this is fairly standard for me except for straight after an antibiotics marathon and full summer heat. Other symptoms...how much time have you got? The lumpy bits and rock hard lymph concerns me more than the sores. If you look at the neck shot you can see one of the lumps starting behind my ear, on spine and peeking out from my right shoulder. I have more pics but my PC crashed and I've only been able to find these in my email.
I get the sores as a rash of lumps, inside my thighs, ankles, chest, hands. On hands they blister and when they pop seem to eat back or dissolve the skin around them very quickly. Headaches, no appetite, cartwheeling lights and eye floaties. Depth perception, balance, stumbling over words, gastro, night sweats, no sleep, extreme sensitivity to light and certain music or sound. Weirdly I can wake up a couple of breast sizes larger and keep clothes in a range of sizes as I drop and put on weight very quickly. For a bit I was thinking 'Puititary' as my growth hormone levels were similar to an 80 year old. I just turned 38.
The hardest thing to deal with is I was blessed with an Idetic memory. Now I'm lucky if I can remember my childrens names. No that's not true. The hardest thing has been distancing myself from my 3 children, isolating myself away watching them have to pick up my slack and really losing a grip on who I am. It's harsh not being able to tuck my little girl into bed with me after a nightmare. Hard work making them all feel loved without touch.
I've got very cracked, chipped and lose teeth but have been refusing dental treatment. I just don't want to risk infecting others. My Doc's have been telling me I don't have to worry that I'm not infectious. My family is cross that I won't attend family gatherings or touch the new nephew's and nieces. They make it hard, determined to prove how unafraid of me they are by hugging me. Now I just hide. Sorry TMI.
Been awhile since I got to talk to grown ups.

[xiblanque]

It's the distance.
I'm trying not to cry right now but so many of us have lost so much....
I seldom let myself feel this way but it is real... these feelings.
I was so lost until i found some Grown-Ups to talk to...
I am doing so much better.... I've gotten my symptoms under some kinda control... and I know so much of it is because i feel so less Alone.
You are in Good Company Digit...
Glad you're Here.
Xiblanque

Ps... When I was growing up in S. Texas we called our nasty scabbys
Ewuey CaCouys...

[belle9]

Glad you found some grownups going through the same thing. The social isolation is very difficult. I'm afraid to touch my family, too. My husband refuses to allow me to totally isolate myself. Most doctors don't seem to know squat about this. There are people around here who know so much more than I do. I didn't sleep for quite some time, but I oil every night for a couple of hours with sesame oil, shower off with baking soda and take a very potent sleeping pill. Sadsack would tell you that you probably need to detox quickly. The folks in here can tell you what to do. How does your CBC (complete blood count) look?

[Doc Holliday]

Originally Posted by Digit

Hey Doc, nice to meet you. Can I be a real as* and say that this is fairly standard for me except for straight after an antibiotics marathon and full summer heat. Other symptoms...how much time have you got? The lumpy bits and rock hard lymph concerns me more than the sores. If you look at the neck shot you can see one of the lumps starting behind my ear, on spine and peeking out from my right shoulder. I have more pics but my PC crashed and I've only been able to find these in my email.
I get the sores as a rash of lumps, inside my thighs, ankles, chest, hands. On hands they blister and when they pop seem to eat back or dissolve the skin around them very quickly. Headaches, no appetite, cartwheeling lights and eye floaties. Depth perception, balance, stumbling over words, gastro, night sweats, no sleep, extreme sensitivity to light and certain music or sound. Weirdly I can wake up a couple of breast sizes larger and keep clothes in a range of sizes as I drop and put on weight very quickly. For a bit I was thinking 'Puititary' as my growth hormone levels were similar to an 80 year old. I just turned 38.
The hardest thing to deal with is I was blessed with an Idetic memory. Now I'm lucky if I can remember my childrens names. No that's not true. The hardest thing has been distancing myself from my 3 children, isolating myself away watching them have to pick up my slack and really losing a grip on who I am. It's harsh not being able to tuck my little girl into bed with me after a nightmare. Hard work making them all feel loved without touch.
I've got very cracked, chipped and lose teeth but have been refusing dental treatment. I just don't want to risk infecting others. My Doc's have been telling me I don't have to worry that I'm not infectious. My family is cross that I won't attend family gatherings or touch the new nephew's and nieces. They make it hard, determined to prove how unafraid of me they are by hugging me. Now I just hide. Sorry TMI.
Been awhile since I got to talk to grown ups.

>>>OK!! sorry,...how long you have this??,...with me and lots of other folk,....the 1st 2 & 1/2 years are bad,..then it begins to get better,....I would assume you had a Doctor look at all this ,..what did he or she say??? PM Carla!! with some questions,....she can help,..Jonsi is good,...T.C is a big help,..stay on the site and ask all you can,..folk's will begin to help you,...so don't fret darlen,...but again what did the Doctor tell you?? stand by---some folk's come in later in the night,..we all will help ya ....Sincerely Doc Holliday----I love poker drinking and so on

[kckc]

The distance was hard.....
When I was really bad, my depth perception was... well non existent. One time I was in a store, I bent down to get something, and I went straight into one of those hanging metal sticks, where products are hung on, it went straight into the center of my forehead, all I saw was a bright light, and blood was gushing out... I was so humiliated and so devastated at the same time.

I don't think its contagious, however I know none of us would be able to forgive ourselves if it is.

Hang in there digit, there are many ways to get yourself back to being somewhat functional. Cleanses are good for helping the brain fog, usual immune builders are good too... vit c, mag, vit d, ... Some people say tanning helps tremendously, like a big boost of vit d.

I know its hard, but try not to let this thing steal your time from your family....we only get them for so little time as it is.

Will be praying for you, for us all.

Love and prayers, kc

[Doc Holliday]

Hi belle,.....Xib so glad your here,....we do help each other here,...it's like a big family,...a little squabble now & then ,...but all in all we are family,...Doc oh good KC just in time help out here please!! ok?? ty belle,...Xib,....KC ...thought you were a bit clumsy .... lol just messing round.... Bee if you can Bee of some help.///jump in lol always joking me,...sorry Bee .....

[Digit]

I'm waiting on my latest blood results. All they'd tell me last time was that everything was within range and looking normal. A nothing statement.
A fast Detox would possibly do more damage than good at present. I dunno how my liver would handle it, it could put me into toxic shock. I've had to buy alpha lipoic seperately as the milk thistle mix is too much detox. Would dandelion coffee help? It doesn't strip your potassium.
Do you think Sadsack will come hold my hand?..heh. lol.
All joking aside a gentle detox and exterior body cleansing method would be much appreciated. Just talk to me like I'm an intelligent 5 year old when giving instructions, my brain is mush and I'm lucky if I get 3-4 hours sleep a night. I take ativan 1mg during the day and before bed, helps with the muscle fatigue. I don't have any trouble getting to sleep. It's staying asleep that's tricky. As the only adult in the house I'm weary of knocking myself out. Last time I asked for slee4pers they gave me Halcium under a different brand name and I sped for 3 days. Not helpful
The salt, epsom salts, baking soda and vinegar sounds like something I could handle. I read somewhere about brushing your teeth with a mix of Hydrogen peroxide and red wine (to see if you spit worms)?

[Bee]

Hey Digit, I think the first thing people should do is a colon cleanse and other detox cleanses. I think our liver filters are clogged and that's why this stuff comes out the skin.It seems M is fungus and parasites to me.So when choosing remedies, I target those things.