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Old February 7th, 2012, 04:41 PM
jeanlong is concerned and trying to help
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Hi HELLandROSES,

Sending you my good wishes. People often recover fine with early treatment of BCC, and I know more than one person who is just fine some years now, after treatment. One day there will be a treatment to address the genetic condition; scientists are working on cures for this type of genetic problem.

Hopefully you will get the best treatment of choice for your condition, and that you will recovery will be smooth.

wishing you all the best,
Jean



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Originally Posted by HELLandROSES View Post
My doc was 'horrified' when he looked at the pictures on my web site and examined my sores. He ASKED ME if they are parasites. He promised to get to the bottom of what is going on but sadly days later he died suddenly. One of my sores has since been diagnosed by two hospital consultants as Basal Cell Carcinoma. Needless to say that the Dermatologist that discharged me last year despite my requests for tests has called for my notes. I found out at a meeting with the the N.H.S. Trust last Thursday as there was a memo on my file. I have been diagnosed with a rare genetic condition that affects the skin and the hospital is finally taking my condition and lack of treatment very seriously indeed.
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Old February 26th, 2012, 04:54 PM
marcygirl1 has no status.
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I have had extremely similar looking "bugs" little glob of white sticky from inside my mouth. And they all have little strings, usually one, coming out. One was over an inch long, and sure looked like a parasite to me. Like a worm. IF I could figure out how to put pics on here, I would, I took pics as soon as they came out of my mouth, with a q-tip. Curious, where did you get these out of your body?? As I said, mine is on the whole inside of my upper lip, as it dries and comes into my lip, they turn dry, and very hard, feel like needles. I can't hardly talk anymore. Thanks if you can answer this. It is exactly what I have pics of!
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