me again

[dragonfly1]

So over THIS!

[ladycolorado]

YES, they hurt dragonfly please P.M. me, I might know someting. I have healed atr least 40 on myself or more (LC).

[Franky]

Let me ask this. Do you find when the sores finally heal over, do they come back in the same spots again? Or do they have a tendency to spread around?

[dragonfly1]

ine re-open in the same place as if to let out whats inside. It is horrible to heal a lesion thats been there over a year just for it to re-open!

[ladycolorado]

Yes I can understand your consternation, dragonfly . It is because that area is weakened why it comes back. Morgellons Disease is quite mean and nasty indeed. I know, personally about the skin. I still get lesions even on meds. If you ever need to talk to somebody about it I am here. Chopped liver I know, but something I guess, (laughing at myself smiley) (LC).

[Franky]

Dragonfly1 has anything at all helped you with the sores?

[dragonfly1]

Well its been a year and 5 months since onset........... have seen my family doctor, 2 dermatologist,2 infectcious disease doctors and another doctor that works with the immune system........2 punch biopsys , nose & mouth cultures, 9 different blood tests, urine & fecal tests, every anti-bacterial,anti-fungal, anti -viral med you could ever think of, every perscription based topical cream-gell-lotion you can think of. Massage therapy,accupuncture, and a doctor of natural medicine...............then theres the ole' I WILL TRY ANYTHING FOR RELIEF 'THANG' lets see.....
bleach-flea spray-flea dip-nail polish remover-tea tree oil-listerine-white clay-colloidial silver gell-black seed cream-sulfur powder-sulfer 8 cream-vaseline-black walnut oil-oil of oregano-dmso-arnica cream-neem oil & cream-lachydrin lotion- bubbas treatment ie dsp-ecovie -salt baths etc.) OK I THINK YOU GET THE DRIFT! .................I have tried everything under GODS BLUE SKY (and then some) I am the woman on the first "Body Bugs" special on Morgellons, it was done by Fox News. Anyway.....................I really and frankly dont know, cant tell you what "worked best" I have been frantically,furiously,agressively trying to heal the lesions, dealing with well everyone knows: sleep issues,diet issues, big time sight issues, achey bones & muscles, itching my a** off, literally hundreds of lesions from head to toe disfiguring my entire body.........not to mention my mind & soul damage etc. etc......... JUST THE MISERABLE THINGS THIS SH*T DOES TO YOU!!!! Surviving on half my pay (thank god I am fully covered with long term disability, and medical insurance) from the company I have been with over 18 years. I can tell you the DSP Cream is #1 I didnt discover nor was I medically diagnosised with "Morgellons" for the first 8-10 months of having it , I knew nothing of Bubbas treatment steps or DSP. An all natural body care line: ESP was the first thing that noticably gave me relief & started healing my skin like nothing I had tried or been given by my 6 doctors.

[ladycolorado]

Dragonfly I feel pretty bad I do. I know how much they hurt. Does sound like you have tried most everthing. The most promising thing seen in here, so much wanted to try it myself was this thread: http://www.morgellons-disease-resear...16071#msg16071 . The doc in nm though is supposed be good but if i recall not where you are at. kit supposed to under 100 dollars but must be custom done and their care is supposed to be reasonable. I don't know right at this moment what to do. I know when I had the happy worm family Lived in my back , I had to step up the regular treatment baths but not all can do this. The salt (table is fine as long as not allergic to iodine) I doubled, and I also threw in one to two boxes of baking soda, regular parts of vinegar or peroxide as usual. With all you have tried I know I have tried alot too. Most likely be others give better advice than me, (LC).

[dragonfly1]

To finish......... after almost a year and a half my lesions and I am literally talking hundreds had to toe are perhaps 75% closed. BUT............... still 12 open lesions , 7 new ones starting and 3 old lesions re-opening.....I was blessed with beautiful skin in this life, not anymore head to toe horrow! Not to mention my body aches so bad , my sight failing, ........well etc. etc. I have taught Hatha Yoga over 20 years until morgellons hit & am quite familiar with & enlightened to the body- mind -spirit how it works ,what to do for achey muscles & bones ............doesnt help much in this case. I studied the healing art of Reiki , and for over 15 yrs. been a Master-Teacher of it ................doesnt help much in this case.......I have been with the media over 17 yrs. same company & make good money ( well now that I am on LTD I only get half my yearly pay) anyway..... I have good insurance & can go to the best doctors, afford meds.-creams etc. ............... doesnt help much in this case
I AM JUST SO TIRED & AT MY WITS END ..... ALL THE TREATMENTS I HAVE TIRED.......ALL THE SUFFERING.......THE LIFE STYLE CHANGES............ETC.ETC.!!!!! THE FREAKING THINGS WONT STOP!!! NEW LESIONS COMING -OLD ONES RE-OPENING ! NOT TO MENTION STILL TRYING TO HEAL THE OLD LESIONS! NOT TO MENTION ALL THE OTHER EFFECTS OR REACTIONS FROM THE BODY-MIND-SPIRIT FROM THIS MONSTER.................MORGELLONS!!!

[Jay62]

I'm so sorry Dragonfly. I know how awful this is for you.

I no longer have a job.

I no longer have an income at all.

I no longer have medical insurance.

I no longer have my kids.

I feel your pain.

(((((Hugs for Dragonfly))))

I wish that I could do more to make you better. All we can do is help each other the best we can -- mentally and spiritually.

I'm praying for your strength to endure and for healing.

Buggedout