Urgent Help

[lucas2422]

Hi I have been visiting your forum for about 4mths now. I am in desperate need of help. I started to develop marvellous symptoms about 4 myths ago. It first started as a desperate itch of mainly my arms and legs, then I started experiencing crawling sensations in my back. I started seeing these tiny bugs flying from my clothes, then in my car, and now in my house. All of the sudden I noticed that sometimes they come from my hair as well. The sadest part of my nightmare is that my 10 year old daughter and my mom has contracted as well. Another thing that is making me very depressed It's that people around me start itching and coughing. I can perceive it more when I am in large. Public gatherings. I am extremely sad, do not if i had morgellons but it is destroying my life and my family. I first visited my doctor and she had prescribed me stuff for mites, but it did not work. I really don't know what steps to take next. Can you help determine what tests or medical exams should I take? I feel so lost. This has been the worst DEcember I ever experienced seen my loves ones sick. Please, please help me.Thanks.

[dizzy dame]

The best advice I can give you is to go to the treatment thread and start doing the things that you can right away. There will be a lot of things that you already have that you can take or use. Don't panic! There is a lot of help and good advice on these threads. Use common sense in heeding what others tell you though. Good luck. DD

[annesco]

Dizzy is right. Don't panic, although I know it's hard. Read what has helped others and get started on a protocol for yourself and your daughter and mom. You'll have to play around a bit, as things are different for everyone, but certain things seem to work in common like salt/epsom salts, some essential oils, dietary changes... cleaning, laundry, etc. There is so much support here, and all are willing to lend and ear and help!

Also, you should realize that the panic/anxiety are part of this disease, so maybe being aware of that will help you to control it a bit.

You are not alone.

Originally Posted by lucas2422

Hi I have been visiting your forum for about 4mths now. I am in desperate need of help. I started to develop marvellous symptoms about 4 myths ago. It first started as a desperate itch of mainly my arms and legs, then I started experiencing crawling sensations in my back. I started seeing these tiny bugs flying from my clothes, then in my car, and now in my house. All of the sudden I noticed that sometimes they come from my hair as well. The sadest part of my nightmare is that my 10 year old daughter and my mom has contracted as well. Another thing that is making me very depressed It's that people around me start itching and coughing. I can perceive it more when I am in large. Public gatherings. I am extremely sad, do not if i had morgellons but it is destroying my life and my family. I first visited my doctor and she had prescribed me stuff for mites, but it did not work. I really don't know what steps to take next. Can you help determine what tests or medical exams should I take? I feel so lost. This has been the worst DEcember I ever experienced seen my loves ones sick. Please, please help me.Thanks.

[lucas2422]

Thank you for your advice. I am so happy to find this website. Can anyone Tell me what type do tests should i Tell my doctor to do? My second question is it common of this disease to cause this itching and coughing effect in others? Has anyone experience this?

[scabdraggr]

Please capture anything that comes from the skin as I need a sample of them to photograph for my records.I pay postage and costs.

[tcmgpt13]

Yes, to both of your questions about itching and cough. Many people do have these two symptoms. BTW welcome to MDR. I hope you have found the treatment section on the main page and the main treatment threads stickied at the top of that section as was suggested by DD. There's many low cost and helpful suggestions found there (salt baths for one are discussed to relieve itching--very low cost as many buy pure pool salt with no additives by the 40lb bag at Walmart).

I don't know how open your doctor would be to testing so it is hard to suggest much there. Read up on lyme symptoms and if you have many of them and live in the right part of the country for the doctor to believe you could have lyme then the doctor may be open to running some tests for lyme and some of its co-infections. Most doctors do not use tests which are more sensitive to revealing lyme, so even if tested by say Labcorp a lyme diagnosis may be missed. If possible try to get a panel done by Igenex lab. You may have to find a lyme literate doctor to get that testing done and not all insurance will pay for it as it is more expensive to use Igenex. Sometimes even this lab misses lyme though it is a bit less likely than with conventional tests. Many who have M also have lyme. And some of its symptoms are also common to M.

There are tests for the viral infections in the herpes family and some of us have been diagnosed with one or more of these. There's about eight known herpes viral infections and the list is growing with additional research. If you can find a good infectious disease doctor and only mention symptoms you may find out through testing a few of the infections you might have. Unfortunately reports on ID doctors by M patients range from good to bad as far as knowledge and willingness to find out what a patient's M infections may be. It is best never to mention M to avoid DOP labels. So far there is no identified common cause. We do not know that Morgellons is other than a collection of symptoms causing fibers and sometimes skin lesions. Skin lesions have many diseases and parasites which may cause them.

Although natural methods help remember there are low cost ways to treat naturally which is why it's good to go to the treatment section where various members discuss what worked for them. Quite often very cheap products have helped, many of which Annesco has already mentioned in her post on this thread. As a newbie it pays to be careful for there are many who post on forums simply to sell overpriced products which are often found elsewhere at cheaper prices. If someone claims an M cure I run the other way, whether those words come from someone selling products on forums or from doctors who want to carry out unnecessary treatment protocols.

quote=lucas2422;87191]Thank you for your advice. I am so happy to find this website. Can anyone Tell me what type do tests should i Tell my doctor to do? My second question is it common of this disease to cause this itching and coughing effect in others? Has anyone experience this?[/quote]

[tinker6e11]

I feel great empathy for what you are going through! As regards the cough, I have just read about something called oregicillin for a morgue cough. I get this cough where I cough up solid black matter. I am going to try this, apparently it works. I read about it on either Trisha Springstead or pamala mae's site, I think. They are both great.
Good luck!

[lucas2422]

I don't have anything coming out of my skin nor have skins lesions. I just see these minuscule tiny threads flying out of my head but I will be happy to send you samples. Thank you for offering your help.

[lucas2422]

You don't know how much I appreciate everyone's help and words of support. Going through this has been absolutely sad. I try to keep strong for my love ones but i am so afraid of these, specially not knowing what really causes this. I would like to know and assume this is very contagious correct? I work with a large group of individuals a d see how people itch and cough iny presence. Am I some type of host? Are the people that work with me getting also infected? I have one more question. I have seen something very similar to the tiny lints flying from the clothing at the stores. Could I have contracted from clothing? Thank you again.

[cheryld1]

I don't have pets, but have suffered with this horror since 2008. I think the lint in fabric is actually collembola or "springtails", and some of the biopsies actually have shown them in skin lesions. I don't think they are the only culprit here, I have tried so many remedies it is pathetic. However, I finally have something worth sharing. If you don't already have a small magnifier, get one. I purchased a 16X at a hobby store in the stamp collecting section. A couple nights ago, my knuckles were hurting so bad, I grabbed what I thought was generic aspercreme, but this had menthol in it. I smelled like a grandmam but thought maybe it would stop the itchy crawly sensations in my left arm. I put a "glob" of the stuff on, and in about five minutes there was an INCREASE in sensation, not less. I looked down at my arm to see numerous little brown spots, grabbed the magnifier, and to my horror I saw brown wormlike organisms...they were dead, but they were segmented, medium brown, and looked flat. Some of them had a black fiber at one end, but most did not... my arm hasn't had any crawly sensations since, but I am repeating it several times a day and still getting a few more worms. I KNOW this sounds crazy, but I have seen over 25 doctors who all thought I was nuts with two exceptions- an optometrist who said I had numerous black "sticks" in my right eye, when all the other eye doctors said I was crazy, and a neuro-opthalmologist who found I had damage to three cranial nerves, when I could no longer control movements in my right eye. It moves laterally and upwards making it impossible to read, do close handwork, etc..
I am a registered nurse, have two Masters degrees, and nearly completed a doctorate degree. I used to be high energy, had lots of hobbies, but now I barely have the energy to get through the morning, never mind a whole day...if anyone has ideas on improving energy please let me know. This is one of the most isolating illnesses. I remember in the eighties when doctors laughed behind backs of patients who are NOW diagnosed with fibromyalgia, a real condition. Is there a correlation between that and Morgellons? Maybe autoimmune? Good luck to all. Cheryl