This is why Doctors won't help!

[Robin]

This article really makes me mad i would like to find this woman that wrote it and literally choke her like a chicken!
GRRRR
No Infectious Agent Found in "Morgellons" Research | HealthMap

[janedoe]

why? we wanted them to look, they did, thats what they found. i know nobody talked to me, so clearly they didnt include everybody. the people they talked to, i guess thats what they found.
i feel into the 'bug bites' catagory. again, they didnt test me, but i had two skin biopsys that said bug bites...i know when its clean here, no bug bites.
what did you want them to find? whats making you so mad? just curious

[Pollyringworm]

Originally Posted by janedoe

why? we wanted them to look, they did, thats what they found. i know nobody talked to me, so clearly they didnt include everybody. the people they talked to, i guess thats what they found.
i feel into the 'bug bites' catagory. again, they didnt test me, but i had two skin biopsys that said bug bites...i know when its clean here, no bug bites.
what did you want them to find? whats making you so mad? just curious

I know. I'm with you. I don't really give a crap anymore about the CDC or anyone else. My doctor isn't looking to the CDC for guidelines on how to treat me, he just doesn't know how. What makes me mad is the doctors who won't even look at you before diagnosing you as delusional or making fun of you. Those people burn my butt. Arrogant SOB's.

[janedoe]

agreed polly.. to write us off as crazy, and whats worse, i have tried to get to mental health, you have to be arrested then reffered now to get to mental health!!
lets try this. the next doctor that calls us crazy, go along with it.. let him refer you to mental health, take the pills, then when we STILL have symptoms, go back to doc and say 'now what?'
but i still say, if you can see my sores, im not delusional.
delusional would be if my skin were clear as a babys butt and i still think i had sores. but if you can see them, then your delusional too! ya know?

[Pollyringworm]

Originally Posted by janedoe

agreed polly.. to write us off as crazy, and whats worse, i have tried to get to mental health, you have to be arrested then reffered now to get to mental health!!
lets try this. the next doctor that calls us crazy, go along with it.. let him refer you to mental health, take the pills, then when we STILL have symptoms, go back to doc and say 'now what?'
but i still say, if you can see my sores, im not delusional.

haha, well, unfortunately by accepting the diagnosis we're basically admitting it. I'm not quite there yet. I won't give them the satisfaction.

Yes, even with two insurances, I need referrals for mental health. My daughter has ADHD and I had to jump through hoops to get her care.

[janedoe]

haha, i dont think its so much 'giving in' more like calling their bluff. because if mental health meds would cure me, id be on them! if you call their bluff then they have to do work themselfs, not just push you off to someone else.
sorry to hear they ran your kid through hoops, thats even worse than you getting sick and no help, when your kid gets sick and we get no help, we go into fighting mode...we dont fight as hard for ourselfs as we do for our kids.

[Robin]

Well Janedoe,
I did expect them to find something significant! not just cotton fibers and other nonsence! i don't believe them thats why.these doctors aren't allowed to think outside the box nor do they believe parasitic infections even exist outside the third world countries and they do! i wanted them to do punch tests on peoples scalps and really examine them it seems like all they did was surface crap! what about real testing for parasites such as a high EOS count on a CBC misdiagnoised by physicians as common allergies, not even realizing that the primary allergen could very well be a parasite! or that abnormal levels of vitamins,minerals,and enzymes can indicate parasitic involvement!
Even Bronchitis and potentially asthma just might be Roundworms inhabiting the lungs. I.B.S could be a misdiagnoised bowel problem caused by giardiasis.
or that ulcers and cysts could be adult worms living in our intestines utilizeing nutrients and sucking the blood from our bowel contents, resulting in small intestinal or colonic inflammation,anemia and ulcers.
I could go on but Jane this is why i'm SO mad they found Squat after how long and how much? does that answer your question?
There is no way in you know what i would let them put me on heavy duty pysch meds! just to prove them wrong.I KNOW THEY ARE WRONG! because i have been living with this for too many years already along with everyone else!
Robin

[janedoe]

i keep hearing 'could be ' 'could be' shoulda,woulda,coulda......
if you dont want to be on mental health meds, then dont, i said that joking to polly, but ive been on mental meds after my son was born, post pardum depression that turned to agorophobia... then i got off of them.. so theyre no big deal to me, its funny how many people are so offended by the mere words mental health, put it this way. if mental meds would clear up my skin id take them in a heartbeat! why doesnt anyone else think that way? if it helps your skin, i dont care what the hell you call it, kick down! give me some! im out more for my skin to be clear, im not out to fight the CDC, if they dont help, i look elsewhere.i dont care about what ever name they land on with this, as long as they start getting meds out to help folks.but ive said it before ill say it again, if they did figure out all the little details of what it is, how we get it, how we get rid of it, when they figure all that out, they wont call it morgellons. that i guaruntee.. why? it would make them look bad to admit a bunch of 'crackpots' were right...
but robin, if you didnt fall into one of the catagorys they listed, then something else is wrong with you, it would seem to me.but this is only one study with a small amount of people, right? who cares what they think?
for instants....if they found what was wrong with you, but called it something other than morgellons, would you be happy? basicly, morgellons may be under a different name. they change the names of meds all the time, why not diseases?

[skylark99]

just a few comments.

as i stated before the us army has known about unexplained dermopathy for many decades - a relative of mine learned about it in basic medical training over 20 years ago and was taught that it was a delusional mental disorder to be treated with psych meds.

no surprise that the cdc did not come up with something different.
can you imagine the litigation from military personnel if otherwise?

the doctor that 'decided' that i was delusional HAD NEvER MET ME IN PERSON before making that 'diagnosis'.

i feel strongly that this is a setup to make people shut up.

the reason that a lot of people do not respond well to antidepressants is because most of them are ssri's --serotonin re-uptake inhibitors.
this means that the brain must be producing serotonin in the first place so that the drug prevents its being used up too quickly.

many have a problem with a brain chemical called bh4 --the precursor to serotonin.

if there is no bh4 there is no serotonin to be 'regulated' by the antidepressant and the consequence is very unpleasant side effects rather than relief of symptoms.

again it is a matter of financial considerations rather than treatment of a disease or condition.

imagine the litigation against doctors and big pharma if this were illuminated.

in the world we live in today money and profit are priority rather than doing the right thing. this is how things are but many are trying to change this way of thinking and action -a political discussion not germane to this thread.

what is very obvious however is that more and more people have the same symptoms as most of the members of this forum-- and those numbers will continue to grow.
eventually the truth that something is actually occurring can no longer be overlooked.

it is cold comfort to suggest patience in the face of such horrible symptoms and such a life-destroying condition --and i am not saying that.
however we do have the support and help of others in this forum which is more than we had before Franky started it.

i am not being cheeky when i say that had it not been or this forum when i was at my most ill i am not sure how i would have made it through.
i cannot imagine what it would have been like without being able to turn on my pc and being able to read that others had the same thing going on and affirmed my own experience. as alone as i was with no medical or any other type of support this forum was a lifeline.

i am much much better now. i took a lot of meds and changed my diet very much and probably those have a lot to do with the how and why.
i can tell you that i was so ill that i was very wiling to give up and if i can get better others can too.

i haven't posted much or replied to pm's because i have a problem with my keyboard yeah -the old pc is wearing out.

so for those waiting or replies-- sorry i am not ignoring you but am just struggling with ancient kit.

[annesco]

good to hear from you Sky! I have been wondering where you've been...

i'm happy to know that you're doing so much better!

Originally Posted by skylark99

just a few comments.

as i stated before the us army has known about unexplained dermopathy for many decades - a relative of mine learned about it in basic medical training over 20 years ago and was taught that it was a delusional mental disorder to be treated with psych meds.

no surprise that the cdc did not come up with something different.
can you imagine the litigation from military personnel if otherwise?

the doctor that 'decided' that i was delusional HAD NEvER MET ME IN PERSON before making that 'diagnosis'.

i feel strongly that this is a setup to make people shut up.

the reason that a lot of people do not respond well to antidepressants is because most of them are ssri's --serotonin re-uptake inhibitors.
this means that the brain must be producing serotonin in the first place so that the drug prevents its being used up too quickly.

many have a problem with a brain chemical called bh4 --the precursor to serotonin.

if there is no bh4 there is no serotonin to be 'regulated' by the antidepressant and the consequence is very unpleasant side effects rather than relief of symptoms.

again it is a matter of financial considerations rather than treatment of a disease or condition.

imagine the litigation against doctors and big pharma if this were illuminated.

in the world we live in today money and profit are priority rather than doing the right thing. this is how things are but many are trying to change this way of thinking and action -a political discussion not germane to this thread.

what is very obvious however is that more and more people have the same symptoms as most of the members of this forum-- and those numbers will continue to grow.
eventually the truth that something is actually occurring can no longer be overlooked.

it is cold comfort to suggest patience in the face of such horrible symptoms and such a life-destroying condition --and i am not saying that.
however we do have the support and help of others in this forum which is more than we had before Franky started it.

i am not being cheeky when i say that had it not been or this forum when i was at my most ill i am not sure how i would have made it through.
i cannot imagine what it would have been like without being able to turn on my pc and being able to read that others had the same thing going on and affirmed my own experience. as alone as i was with no medical or any other type of support this forum was a lifeline.

i am much much better now. i took a lot of meds and changed my diet very much and probably those have a lot to do with the how and why.
i can tell you that i was so ill that i was very wiling to give up and if i can get better others can too.

i haven't posted much or replied to pm's because i have a problem with my keyboard yeah -the old pc is wearing out.

so for those waiting or replies-- sorry i am not ignoring you but am just struggling with ancient kit.