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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| The CDC report reminds me of that computer related saying GIGO, or Garbage in, garbage out. Computers will process any nonsensical input data, only to produce output data of the same kind - nonsensical data. Evidently that holds true in DC as well? We know that there was an abstract produced by David Cave & Daniel Chao at the U of Mass which stated, in part: "This is the first time that evidence for systemic disease has been demonstrated in association with what has previously been considered a disorder limited to the skin. Further investigations are warranted in a larger patient population." Refer to my post of April 2, 2010 where I 'broke' that story/abstract regarding the above found here: AMA confirms Morgellons Systemic- origin in gut http://download.abstractcentral.com/...oofs/P984.html It has been stated that Morgellons is Systemic in this Morgellons patient and that she has internal lesions or "...denuded villous patches in the jejunem, which were unusual for their sharply angulated appearance, similar to her skin lesions." That makes sense. Many, if not most sufferers have digestive issues, bloating, pain and so on. Obviously this issue is not limited to the skin but rather, IMO, the skin issues are a manifestation of internal problems/issues. The information in the above abstract was known prior to the release of the report and because it impacts what is known about Morgellons in a huge way, it should have been a part of the report. I believe that U of Mass was a part of the study as well. We started out years back on the wrong foot by calling this a skin disease. The focus was on the itching and other discomfort related to the skin while ignoring the other symptoms that were common to the majority. Maybe a new name and a few actual facts as relates to the syndrome would spur interest from Washington? (sans illicit drug users) Personally, I held out no interest or hope as relates to the CDC study so I'm not disappointed but rather convinced. You don't ask the Fox to do a background check on the personnel at the henhouse. ![]() ~V~
__________________ "When you dine with the devil, bring a long spoon." Machiavelli |
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| Venetia, really good to see you here, I've missed you. Hope your doing okay.
__________________ One of my favorite Einstein quotes: A question that sometimes drives me hazy: am I or are the others crazy? |
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| a TCM view: this reminds me that the small intestine channel in TCM functions to nourish the function of the physical organ, and that its purpose is to sift the clean out of from the turbid (my translation). Assuming the SI channel and collaterals are affecting the skin, the yin and blood will be damaged. rich nourishments would be appropriate in this case, foods such as organic ghee, and cold pressed organic seed oils - sesame oil, hemp, flax etc. Conversely avoiding most cooked fats and all types of transfats would be indicated too as they are considered "turbid" substances. I am totally convinced this is a systemic condition. To say it is a skin problem never conveys the whole idea...it makes it sound like a localized only ulcer or bite or something that isn't from an internal problem. M is definitely is systemic. Last edited by jeanlong; January 29th, 2012 at 03:50 PM. |
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| You better say that I told you this long ago or I will show you what exactly is inside our guts as I have many pics of what's in there and they are ugly and huge.Wanna see? Herbs so far has no affect upon getting them to release their hold and leave the area they were stuck to and sucking blood.Are you avoiding me Jean? |
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| Hey, Venetia, good to see you once again. All the news (yesterday's) from the CDC is not unexpected, but...anyway we probably all have been aware for some time that the intestinal area of the body is affected in Morgellons. Using the TCM diagnosis method this would mean the lungs are involved too. The lungs control skin health. This echos some of what Dr. Harvey was finding in his Morgellons study before he unfortunately was taken from us. Also according to TCM the lungs are paired with the large intestine while the small intestine is paired with the heart. And then there's the liver/gall bladder and stomach/spleen. It would be hard if at all sensible and/or sane (hmm, what am I saying here? LOL) to deny that these areas of the body are linked to the illness called Morgellons and that there is something out of balance in the body in these areas which needs to be studied in depth. While it appears these observations may remain far from obvious to the majority of medical doctors they are pretty obvious to anyone who has studied Chinese medicine. The wonderful thing is that no microscopes or tests are needed to determine what is out of balance using TCM methods. The paltry and few private study breakthroughs to find out out about Morgellons via Western medicine (the gastrointestinal study of one person is here the prime but not only example) are long overdue and definitely echo what a TCM diagnosis would find in short order. If only everything was dictated by common sense and not by the sort of narrow minded despotism which seems to have taken over the Western medical field.
__________________ "Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885) Last edited by tcmgpt13; January 30th, 2012 at 07:44 AM. |
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| quote-tcmgpt13 "If only everything was dictated by common sense and not by the sort of narrow minded despotism which seems to have taken over the Western medical field." Here's another quote for us to enjoy.It may be sad because it's true but I get a kick out of it. " It is no measure of mental health to be well adjusted to a profoundly sick society." Krishnamurti Check out this link about sparganosis. I don't recall if this article mentions the discovery of S.Proliferum altered with a virus but there are many that do and they're easy to find. Tropical Medicine Central Resource |
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| Hey there haywire, thought you might enjoy this old thread too: morgellons-disease-research.com/Morgellons-Message-Board/parasites/4137-sparganosis.html You know when you start reading about the infections which have been found in those with Morgellons symptoms by a few of the early researchers and then go on to learn how such infections may be interconnected with invertebrate parasite infections it kinda makes your head spin. Somehow it seems that these possibilities were missed by those at the CDC who do not seem to have thought much beyond the obvious. And even that is open to question for at times they appear to do little more than scratch their heads throughout that released report. I wonder, do they ever think to check the Pubmed site to read about research in these areas or do they just use it as a screen saver?
__________________ "Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885) |
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| Sure, post some pix. I would not be surprised if many M sufferers have intestinal parasites. I am thinking you have not been under the care of an OMD, and thus haven't tried any TCM-herb-remedy-decoctions for parasites. I am an expert in TCM but not in other types of medicinal herbal remedies. I don't know if I do or don't have parasite, and I believe certain human parasite are more common than most want to imagine. TCM herbal remedies work for many conditions. Quote:
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| Thanks Steve- I'm doing well, thanks for asking, and you? Jeanlong, agree with you about avoiding trans-fats and the like. I have some Flax oil and may try it soon. Scabdraggr - I'd like to see any images you have when you get a chance to put them up. TCM, good to see you as well and thanks. Still in my 1st place spot for 'gut' issues related to M - Pathogenic Candida Albicans but IMO, that is an consequence of the disorder and not the cause. Could relate to Celiac that many have and may not be aware that they suffer from? ~V~
__________________ "When you dine with the devil, bring a long spoon." Machiavelli Last edited by Venetia; January 31st, 2012 at 02:55 PM. |
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| Again, just my humble opinion and two cents, but I have never developed the serious skin lesions, but did have the others, like the brain fog, eye and ear issues, some respiratory issues, crawling, itching, lint, black specs, fibers, paper cuts, etc. I became convinced that my manifestation was heavily internal. The antiparasitics yielded very significant evidence of heavy parasitic infestation, and after a few weeks of usage, my improvement was undeniable. After adding doxycyclene to the mix, improvement increased even more. My concern is anthelmintic resistance, as these deworming meds are not intended for constant usage, but rather rotational usage. I have noticed that during my "off" times, my symptoms increase. I am trying to research substitutes to incorporate into a rotation schedule to avoid this. Of course, a true cure or permanent remission would be ideal...! |
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