Why has all research stopped since like 2009?

[Fables429]

Why no research... no updates? Besides the mass hysteria/up roar/environmental up roar that would maybe occur?

I am confused, everything about this seems like it would be easy for society to see and accept.... but I am having a hard time getting my own parents and friends to even believe this is real at all, even though there are no other symptoms like it. (How do I do this by the way?)

Med School Doctors especially... which is weird cause Med School seems pretty **** hard.

[jonsi]

Because there are no pharmaceutical medicines to "cure" Morgellons. If there was a pharm to treat this disease, it would be recognized by the docs who write prescriptions. Meanwhile, they will feed you the pharms and tell you that you take this for a little while longer. ok, take this one instead, that other one didn't work. There are so many people with "M" strung out on pharmaceuticals.

Homeopathic/natural medicine works for some of us. Takes time...

this is MY opinion only and I have been told I am too bold with my warnings about pharmaceuticals...

In the white light,
~jonsi

[posey]

This is for information purposes only.

Fables, there is a fairly new product on the market, at least I think it is new, that some are using on their bodies, clothes and just about anything else. One girl was given the instructions how to use it by her Dr. who treats M. It is called Monofoil.

The Charles E. Holman Foundation (CEHF), and OSU-Dr Wymore, has been informed of it and are doing some research with this product. On the internet it is listed anywhere from $89. to $109. a gal. but the company who makes it, Coeus, has been selling it to M patients at a discounted price. This is news I have come by via people form another forum.

I have not used this product myself but after reading about it I find it very interesting. The Dr. says to put it on the body 3 x a day. A lady that emailed me said that you use 5 oz. in a another rinse cycle after the last one and this lasts on your clothing for 20-30 washes without doing it for each wash.

Coeus Technology

It is non-toxic.

[posey]

What I don't understand is every independent researcher I have seen and read their information does not mention the aspect of clothing being infected. I think they may feel this sounds too far fetched but why? Fabric somes form plants doesn't it? Plants I think we al agree have a lot to do with M due to GMO and cross contamination as well.

I am a firm believer in fabric being infected. Plus I believe it goes further than just cotton. However, even if it were only cotton, most other fabrics are stitched together with cotton thread. Has anyone looked at stitching closely? I see small cobra shaped fibers sticking out from most of it. Also, whenever I buy something new and wash it, and even before washing, there are loose threads all over; some attached yet and some not. I can't remember years ago that my clothes would have threads all over them before and esp. after washing. Some may be due to poor craftsmanship, but I believe most to be due to M.

These are my speculations as we have no exact facts about M. But I think it is the hyper vigilence and observations of those with M that are going to help solve the mystery. It's just that it is hard to explain the many aspects to one who does not have it because it does make one look as if they are off their rocker. But it is a strange and very real disease.

Someday all the aspects are going to be pieced together to make the puzzle. I find myself at times holding back things from Drs. because they will not take me seriously. I guess we need to put ourselves in their shoes and see what it would take for us to validate a person's illness of M. It's not fair but life isn't fair.

I recently went to the UW-Madison Infectious Disease Clinic where the Dr. I saw does research on biofilm and has papers published in PubMed; Dr. David Andes. To my huge disappointment, he was a Dr. just like any other. That day was such a downer for me that I made up my mind that I quit searching for a Dr. because I just could not take the let downs anymore. But that really is not the way to be. There are some out there, they are just hard to find.

[tcmgpt13]

I have recently had some new testing which revealed another reactivated herpes infection which led me to the following information. I truly think that this would be quite helpful to many with morgellons as IMO most people do have herpes infections of one type or another from childhood. If reactivated it could be causing many symptoms which are also identified as M symptoms. Even the most innocuous of M symptoms can be caused by a reactivated herpes infection. Such as yesterday I learned that herpes infections can cause paper cuts in some people. And that health care workers, along with children, are some of the more commonly infected people who have this type of herpes symptom.

Six years of using mostly natural methods did not help my severe symptoms of fatigue and brain fog caused by these reactivated infections. The recent use of an antibiotic and a more potent antiviral is now enabling me to get my life back and actually feel normal. The most dramatic improvement has been in my energy levels and the lifting of brain fog.

Part of the reason (lack of funding is a huge reason) that M research has stopped for the most part is that some researchers were discouraged by some of the more far out discussions some who have M have posted all over the internet. Most reputable scientists do not want to be associated with the disease called M as a result of this. In the end M may only be a bunch of knotty loosely connected hyper infections when the truth about it is someday teased out.

Anyway here is the article which discusses how the herpes virus may remain on incorrectly laundered fabrics:

Tests show herpes virus adheres to fibers Specialty Fabrics Review |
June 2009

The herpes simplex virus hangs on to fibers, as evidenced by the presence of its DNA even after fabrics have gone through the washing machine. Photo: CDC/Dr. Erskine Palmer. The herpes simplex virus hangs on to fibers, as evidenced by the presence of its DNA even after fabrics have gone through the washing machine.

Cold sores on the lips and inside the mouth, both caused by the herpes simplex virus, rank among the most uncomfortable and embarrassing skin ailments. The virus, transferred from person to person by contact with saliva, may have more modes of transmission than previously thought, according to the Hohenstein Institute for Hygiene and Biotechnology (IHB), Boenningheim, Germany. Testing at the institute shows that herpes simplex adheres strongly to textile fibers, which means that the virus could be transferred via hand towels, napkins, wash cloths and dish cloths. The virus DNA remained on some fabric test swatches even after laundering

The advanced testing process makes it possible to determine whether other viruses may adhere to textiles and transmit diseases through textile products. The implications for medical and health products, such as hospital gowns, bedding and towels, is obvious; however, the testing techniques also make possible the development of new technologies that make fabric resistant to viral adhesion. For more information about the research, visit :hohenstein.de.

specialtyfabricsreview.com/articles/0609_sw8_herpes.html

quote=posey;88378]What I don't understand is every independent researcher I have seen and read their information does not mention the aspect of clothing being infected. I think they may feel this sounds too far fetched but why? Fabric somes form plants doesn't it? Plants I think we al agree have a lot to do with M due to GMO and cross contamination as well.

I am a firm believer in fabric being infected. Plus I believe it goes further than just cotton. However, even if it were only cotton, most other fabrics are stitched together with cotton thread. Has anyone looked at stitching closely? I see small cobra shaped fibers sticking out from most of it. Also, whenever I buy something new and wash it, and even before washing, there are loose threads all over; some attached yet and some not. I can't remember years ago that my clothes would have threads all over them before and esp. after washing. Some may be due to poor craftsmanship, but I believe most to be due to M.

These are my speculations as we have no exact facts about M. But I think it is the hyper vigilence and observations of those with M that are going to help solve the mystery. It's just that it is hard to explain the many aspects to one who does not have it because it does make one look as if they are off their rocker. But it is a strange and very real disease.

Someday all the aspects are going to be pieced together to make the puzzle. I find myself at times holding back things from Drs. because they will not take me seriously. I guess we need to put ourselves in their shoes and see what it would take for us to validate a person's illness of M. It's not fair but life isn't fair.

I recently went to the UW-Madison Infectious Disease Clinic where the Dr. I saw does research on biofilm and has papers published in PubMed; Dr. David Andes. To my huge disappointment, he was a Dr. just like any other. That day was such a downer for me that I made up my mind that I quit searching for a Dr. because I just could not take the let downs anymore. But that really is not the way to be. There are some out there, they are just hard to find.[/quote]

[posey]

That is really of interest TCM, thanks for posting. I too believe that most people have one or more types of herpes. It's almost inevitable.

When I had Lyme disease, which it took the Dr. 2 weeks before he even thought of testing me for Lyme. they did a battery of blood tests on me. I learned that sometime in my life I had Hepatitis A and Mono; 2 diseases I never knew I had. My titres for Mysoplasma and Chlamydia Pneumonia were elevated as well recently. I did do the treatment for it even though there is no test to tell if you currently have these 2 diseases or have had them in the past.

So many naive people share lipstick and lip balms and I think herpes can be passed this way too. Who knows that the virus can't live on toilets for a time either. I think it is highly possible.

We have seen too many times in the past when we are told one thing about a disease only to have it changed in a few years. Researchers only know so much; as far as they go in their research. Plus as time passes and new technologies are invented, things are learned that were never known.

[scabdraggr]

Fabrics came become infected through contact with repro fluid from lesions but fabrics as a whole do not contain M lifeforms.The colored lint balls come from the fluid of a ruptured LF and the sandy grains that are released grow into the fiber bundles.Not all lint balls come from lesions as M also infects plants and insects which do have dna for the lf to feed upon.DRS are a waste of time and money.

[scabdraggr]

All M research has gone underground in that it is being conducted in a silent manner due to the possibility of espionage and from there anarchy due to the horror of the truth.I have been made aware of this through my studies.It's the hospital records that I wish could be made public or at least give access to rsearchers of m but that folks ain't gonna happen.M is responsible for most of the ills of mankind and please quit trying to link M to Lyme which doesn't do anyone any good but does confuse many sufferers and causes wasted time and money.Diet is another futile attempt at controlling the M life form.

[tcmgpt13]

Well, scdrgr, I am sure we all have different experiences with doctors and with results we have from doctor advised treatments. IMO seeing an ID doctor three years ago helped for a time. When his treatment was less than helpful (he kept ignoring my complaints of intestinal pain and heartburn) I stopped abruptly. I went to another doctor, just a GP, for a scan and then learned I had an intestinal blockage in the area of the duct by the liver which perhaps was due to a build up of dead parasites from the albendazole and ivermetin the ID doctor gave me? I do not know its cause for sure, but guess the aforementioned scenario as the cause.

I then went to my TCM guy with the diagnosis and he treated me with herbal brews and two sets of teapills, one for the large and one for the small intestines. When the teapills for the small intestine were added I saw something move out which looked like round worms among other possible parasites. After that I started to recover.

I do not feel that seeing the ID doctor was a total waste for the medications he gave me reduced the debris I was seeing in the toilet, on the floor and everywhere in the house. The medications (antiviral, anti- parasitical) lessened the number of lesions I had been having with the return of every spring and fall. So progress though.

I stayed with TCM treatment for a year and a half before seeking more help from yet another doctor (GP), this time for an infection behind the ear. He tried cipro, but this soon led to severe ringing and buzzing in my ear as well as tingling in my legs and feet. He then switched to doxy and this was my first revelation as far as vast improvement over natural treatments alone (I still for instance use the two intestinal teapills plus another teapill for the gall bladder). For years I have been very fatigued and this drug (doxy) not only stopped that (right around Thanksgiving too, what a holiday gift) but also stopped the constant heartburn (despite attempts to treat herbally) I still had. Wow! My appetite also returned.

I then decided to seek out another doctor more familiar with ID and found yet another one. This time an even more effective anti-viral this doctor RX'd along with additional doxy really made me feel better, more myself. So more progress in feeling better. For me seeing more than one doctor has helped. I also no longer see much as far as parasitic involvement these days, but one small lesion is now being treated with a medication for that as well. So we will see. None of my symptoms has ever returned to what they were before using drugs. There has been a steady improvement for me.

I have recently read a lot more about reactivated herpes infections. I am learning that sometimes, if the levels of these types of infections are very elevated, it can affect the heart. And thus causes extreme fatigue...So saying that no one will benefit from doctor medications IMO does not tell the whole story. In my case the fatigue remained totally untouched by strong herbals. Categorically stating that medications and doctors never help might turn people away from needed help which may lead to improvement in how someone feels. I have tried natural methods alone for the first three years I was sick before ever first approaching the first ID doctor but natural treatment has not been enough in my case. I sincerely wish it had been.

I think that M is a lot more complex in its causes than what you call a 'lifeform'. It may also be a reactivation of old infections (bacterial and viral and perhaps even fungal). Just my theory and speculation. Additionally parasitic infections may improve from treating the accompanying co-infections, something scientists are starting to notice and prove.

More research will hopefully lead to better answers than any of us guess at as Posey has mentioned on this thread. As BO points out you need a lot of verifiable researchers to identify all that is probably going on with this disease before declaring anything as the 'cause'. IMO it is not always a waste of time and/or money to seek help from doctors willing to help treat symptoms.

quote=scabdraggr;88383]Fabrics came become infected through contact with repro fluid from lesions but fabrics as a whole do not contain M lifeforms.The colored lint balls come from the fluid of a ruptured LF and the sandy grains that are released grow into the fiber bundles.Not all lint balls come from lesions as M also infects plants and insects which do have dna for the lf to feed upon.DRS are a waste of time and money.[/quote]

[Baraka Obam]

We have so many issues, some times doctor drugs do help with issues, some may be symbiotic symptoms or develope because of low immune response, low immune response does not have to mean that your immune system is ruined, it could mean that the hidden tumors on or under the skin and in the body make a steroid like fluid that destroys immune response in the whole body, not just at the site of the lesion/ TUMOR


I have a feeling that at some point the body recognizes the issue and starts a all out war with the tumors forcing the issues to the surface.

The body will do this even with items that have been inside the body for a huge amount of time, such as glass from a accident that was never found, bullets that were not removed, bone fragments from a smashed leg.

I do believe that there is something more to it with the hidden under skin tumors, that surface to be tumors as they can surface almost all at once.

I have seen with my own eyes when you get down to the bottom of a lesion/TUMOR there is a distinct opening in the center that spews blood like a pump all around it still is the thick plastic protective barrier.