i love this message board...

[die_trying]

it is truly a blessing. i've been reading what you people have written, and i'm so touched. also strenghtened by discovering you all. i'm amazed at your spirits. this is such a profound disease or nanobots, whatever it is, and we are treated worse than the lepers of ancient time, we are as outcasts. and the ailment is so dang radical, it like transcends any kind of normal human experience in misery, so it like isolates one. makes one different. being able to be in touch with others of my kind, gonna contribute alot to me keeping my sanity. word up!seeing other people brave their way thru this desolating thing is truly inspiring, touching and the thing great poetry, art and music are made of. you are all in my heart and mind.

[Franky]

We try

[oscar]

I think its a great board, with lots of nice people, which seems to growing day by day now.

[die_trying]

that was precious, thanks guys. yes, misery loves company, i've never seen a more worthy group. yah, nanobots from hell, man. ya all blew me away, the intelligence! the scientific knowledge! i had a field day first day here, big THANX franky.

[jano]

You guys are such a comfort! What an absolutely beautiful bunch of people!!!! Morgellons or not! I feel lucky to have encountered you!!!!!!!

[jovie]

Originally Posted by jano

You guys are such a comfort! What an absolutely beautiful bunch of people!!!! Morgellons or not! I feel lucky to have encountered you!!!!!!!

Welcome lots of great people here! The board seems to be growing pretty fast now.

[cd3girls]

I just joined today. Have had this for 5+ years, but just found the morgellon connection only 1 week ago. I can't believe, after suffering in silence and humiliation (thanks to all the dermatologists I have seen) - its amazing to find a group of people who have the exact same symptoms. I had stumbled onto the salt treatment myself within the last 4 months. Will be trying the full treatment as outlined on this website shortly.
One symptom I have that I haven't seen anywhere - does it smell very strange? I have a constant sickly sweet smell ever since I have been barding the affected area (on my face) with salt.

thanks for providing the information and support through you website. it's nice to know I am not alone.....far from it. May we all get cured soon!

[ellie]

Hi cd, the funny things about the smell is no body else can smell it and it changes every now and then.
ellie

[Franky]

Originally Posted by cd3girls

I just joined today. Have had this for 5+ years, but just found the morgellon connection only 1 week ago. I can't believe, after suffering in silence and humiliation (thanks to all the dermatologists I have seen) - its amazing to find a group of people who have the exact same symptoms. I had stumbled onto the salt treatment myself within the last 4 months. Will be trying the full treatment as outlined on this website shortly.
One symptom I have that I haven't seen anywhere - does it smell very strange? I have a constant sickly sweet smell ever since I have been barding the affected area (on my face) with salt.

thanks for providing the information and support through you website. it's nice to know I am not alone.....far from it. May we all get cured soon!

Thats what we are here for! Support and sharing of info. You will see and meet a great group of people here. May i ask you , by any chance do youhave any idea how you this over 5years ago?

[cd3girls]

Hi Franky! Nice to hear from you. I have no idea how I got it, wish I did. Again, I have many theories (but that's as far as it goes). I believe it was transferred by a tick or other bug bite. I have had an open wound for the full 5 years, and no one else in my immediate or extended family, or people at work, have gotten it. I would say for the first 1+ years, I was not overly careful in not transferring it to the girls, as I just thought it was a poorly healing wound). Also, my husband and I have continued to be intimate throughout and he has not been infected. But I am somewhat lucky in that I only have it on one side of my face, not over my entire body, so it is possible to avoid contact with that one area.

I believe the critters die immediately once they are removed from the host (aka me - yuck!). this would also explain why the DR's cant see them, they die too quickly once extracted. (yes I brought samples, in desperation, with zero luck). Therefore, I think it would take a direct transference from one host to another (ie: bug bite). That might also explain why some people get it, and others not. I have traveled to other areas as part of my job, without my family. Very possible that I could have gotten exposed and they didn't. Alternatively, our family could have all been in the same area where bugs host these, but only I got bit by something. Maybe this is why others have a few family mbrs with it, but not all of them? It might appear that one person got it first and then gave it to the other person. but I believe (again, theory only!!) that they could have gotten exposed/bit at the same time, but the incubation within each person is different based on their immune system. Or possibly, the maturity stage of the parasite that got transferred was different?. I would LIKE to think that, because then we could interact normally in society without fear of giving this to anyone else. If it were very contagious, I think my entire family would have had it by now.

Another strange observation - I have had it five years, and I have only had it in the one area on my face and down my neck on that one side (spread quite a bit, but seemed to radiate from that one initial area). I never had an outbreak anywhere else. I would be interested to hear from others, who have multiple areas. Any thoughts if each could have been an initial bite? I saw Bubba's story that it lives deep inside and can come out anywhere (that just scares the h*** out of me). But I plan to follow her treatment just in case