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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| Ive been trying the GSE and it's kicking the *** of whatever this is that's on my face. SUCH a relief! I believe I can use it on my daughter, as well. I'm sorry for doubting and being rude to you. I'm not necessarily on board with all your theories, but you hit the nail on the head with treating this symptom. I'm thinking it's yeast, but I'm not sure. Hopefully the GSE will continue to work. |
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| Well, it was short-lived, but I had a good 12 hours of relief. I even put it on straight with no irritation, nothing. What is this stuff? It can adapt that fast? This is so depressing. |
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| GSE is grapefruit seed extract. itwl, ~jonsi
__________________ There is a reason I have "Morgellons". Helping and teaching others how to survive in our toxic world may be the reason. Hang in there everyone who has this. |
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| You will find not to judge things because they hurt, cause more itching, make your skin look worse, adverse affects items seem to be the only thing that turned this around for me. The skin on the face will look very nice after using GSE, it will have a slight red tint, if it is irritated you have issues right where its aflicting.. I have told you about the bumps on the bone in the front of the leg going away with use of GSE, here is another test, rub GSE on your shoulder, down the arm, under the arm, and down the side of your body, as soon as you get up look for lines, be careful on your neck, the neck is loaded with this mess. If you read what I write on it you will find how better to use GSE. The stuff works over time, you have to be careful with GSE, it can uncover the hidden mess. I can use it full strength all the time anywhere I want now, that is except the groin or mouth, some people brush their teeth with it, they must water it down. As you see, the GSE does not BURN regular skin but will set off a reaction on invaded close to the surface involvment. If you use it on the scalp carefully you could be drying up the hidden mess under the flesh. To say GSE only works once, I know it does not, and then what you may be seeing or feeling is the monster fighting for its life. So far Polly there is nothing that works wonders in a day, ten days, a month, it takes time, what seems to be aggravating the condition some times is destroying it. It is tough stuff. I suggest using it on your lower half first and learning how to work with it, watch the skin closely if you see a round red rash starting, hit that baby with hydrogen peroxide 35% and you will see exactly HOW large it is, the red blood spot will show itself right in the middle. If you start a reaction there is nary a thing that can stop it, so really be super careful with your daughters scalp, what I have found is these reactions may happen only once or twice and then the scalp will be perfect. Then I have heard others say they had pain for more than that. |
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It didn't burn at all. And you are right, my neck is a mess of hard nodules that refuse to open up or go away. I'll stick with it to see what I can accomplish. My face is a mess of what looks like acne now. |
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| Polly, I used ground cumin and water (applied as a paste, like a body scrub) after using GSE and it helped pull out the bio-film (looked like elmer's glue) sheets from my skin. Again, don't try too many things at one time. It will mix you up. And, I never used any pharmaceutical/prescribed drug to get treat this disease. In the white light, ~jonsi
__________________ There is a reason I have "Morgellons". Helping and teaching others how to survive in our toxic world may be the reason. Hang in there everyone who has this. |
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| I think that anyone who lives in a dry climate like you do is at a distinct advantage when it comes to Morgellons treatment. Those whose climate is damper seem to have a harder time in general as far as controlling symptoms, probably because although even deserts have mold the overall mold burden is much less than in coastal areas of the US. I used alternative treatments only for over three years and could only get so far as far as improvement. Brain fog never lifted. It has been my more recent conventional treatments which have made some difference in my Western diagnosed infections which herbs could not control. Lymph machine treatments did not touch that either. The lesions still formed no matter what substance was applied to the skin and no matter how much kefir and active yogurts were eaten. The one huge difference as far as herbs has been two TCM formulas for the large and small intestine as well as another formula for the gall bladder. Taken over a long time now these do keep whatever M is from building up in the body. I believe M supports the probable secondary infections I have, but of course this is only a guess. All the aforementioned treatments did not control symptoms. I am thankful that I decided to give some new drugs a trial recently as they have made a huge difference in how I feel and are lifting the effects of my brain fog. Some illnesses are very hard to cure with only natural treatments. Believe me when I say I have been going to some TCM practitioners who know how to treat infections but I could only improve to a point using these herbs. Sometimes drugs for viral, bacterial, fungal and parasite infections may be needed to reach to an enhanced level of health and to function in every day life. It is very hard to stick with just naturals when you can hardly get out of bed in the morning to do anything. I had even lost my appetite for most foods. Just looking at food and kind of having that heavy feeling that M places on the body usually had me back in bed. That is not a normal life and too many years of that saw me reaching out for whatever help I could get from now a third doctor (over the span of three years). IMO while skin treatments are interesting they do not reach what causes M which is deep inside the body, not just on the surface of the skin. Treating infections at times with the correct drugs which may be supporting what ever causes M (whatever M is) will help over the long run. The easiest intestinal formula that most can find for the intestines is TRIPHALA, an Indian herbal formula. If anyone wants to try it do the research on it (Michael Tierra has a good article on the internet about it and explains doses and effects etc). It can be made into capsules to take it which is the cheapest way to buy this. A pound will make a lot of capsules. Cheaply. There are inexpensive capsule machines which can make it easier to make capsules. Pharmaceuticals are now allowing me to function enough to start enjoying life again. While I am not suggesting using drugs over the long term they may be necessary for some to reach any vast improvement in health. I use what herbs I can as well as drugs to support to help my body regain health. Right now the only herbals I use are the ones for the intestines and that seems to help the drugs work better. quote=jonsi;88206]Polly, I used ground cumin and water (applied as a paste, like a body scrub) after using GSE and it helped pull out the bio-film (looked like elmer's glue) sheets from my skin. Again, don't try too many things at one time. It will mix you up. And, I never used any pharmaceutical/prescribed drug to get treat this disease. In the white light, ~jonsi[/quote]
__________________ "Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885) Last edited by tcmgpt13; January 10th, 2012 at 07:35 AM. |
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| Just a thought for babies like me; I can't tolerate 100% GSE on my skin, esp. the face. I bought some Aloe Vera Gel and GSE from Amazon. I mixed 12 drops of GSE in 4 oz. of the Aloe and put this on my skin with no irritation. I would imagine one could play with the amount of GSE to see what they can tolerate. I also have Fibromyalgia and maybe that is a reason I can't tolerate 100% GSE on me. We perceive pain more deeply; so I am told.
__________________ posey |
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| TCM, you seem to be very knowledgable. I'd be interested in knowing what your take is on trying to rid one's self of most of the biofilm which is on the skin in order to attack the pathogen with conventional drugs. Through my reading I have learned that the biofilm is what keeps the drugs from reaching the pathogens. I think all have to be aware that until the pathogen/s is/are eradicated from the body, the biofilm will continue to grow back. I read at PubMed thet Different bacteria have different ways of creating biofilm. To me, this would mean that more than one stratedgy might be needed. I also read about biofilm and fibers and this baffles me that Drs. won't recognize this disease. Anyone, do a search on fibers and biofilm. It is a real and distinct issue so why are we laughed at behind closed doors? TCM, I am using Triphala and I will vouch for it 100%. I am even taking meds that are constipating. N oproblem while take Triphala. I am also taking Amla C because it is supposed to be the highest possible Vitamin C content. Triphala has Terminalia chebula in it also, (Tc)
__________________ posey Last edited by posey; January 10th, 2012 at 09:11 AM. |
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| Second day off of doxycyclene, and I noticed right after my shower that my skin behaved very differently. It dried almost immediately, and felt almost too smooth. I applied my usual oils, which seemed to be sucked into the skin. No fibers were shed. I had the uneasy feeling that the lack of antibiotic has caused a bit of a set back with the biofilm issue, even though I am substituting oregano oil and olive leaf extract. I for one will vouch for the efficacy of doxycyclene in treating this thing, and can't wait for my new supply to come! Quote:
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