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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| Hi All, Because I consider this news that is signficant, even though it is in my other thread, I have decided to post a new thread which will include the test options. I am now convinced that my itching, and skin excreting fibers is almost entirely from an environmental pollution problem. It's all manmade form pollution. These skin problems stem from fibers that are in our bodies, and these contaminants are in our food chain. that is the primary exposure. With the fibers which originate from synthetic textiles breaking down, it gets into the environment at home through laundry lint, and into the oceans via washing machine sewing, resulting in wastewater treatment plant effluent into a waterway. In our homes there are two problems. I have found fibers in our laundry lint screen, dust, and in the air filters. This implies we breathe them in if not trapped in the air filter or dryer screen. So the skin excretes and sheds fibers. Then it's a pollutant in our homes. That's the first problem. We have to find a way to get them out of the household to become 100% well. That's not easy and we're considering ditching all carpet to accomplish this goal. Additionally fibers can bear a carcinogenic and mutagenic load from its colorants, textile mordants, detergent optical brighteners, and POPs from the environment such as PCBs and DDT or its metabolite DDE. My blood test has confirmed this. Ridding the body of these is difficult too. I have been reading science and medical research for nearly two years to sort this out and LabCorp offers two new tests that may help those of you who, like me, were misdiagnosed for a long time. More on that soon to help doctors/clinicians and patients both. best regards Jean |
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| Hi all After substantial frustration as BOTH a patient and a clinician, I am pleased to report I have located two new LabCorp tests. This is important as they are one of two major nationwide labs that the major health insurance carriers use. To view go to the LabCorp menu page and type in PCB. https://www.labcorp.com here are test numbers. No. 084624 for pesticides; and two for aroclors (trade names for PCBs) 84616 and 722009. The first is a test for specific numerous pesticides. The last two each test for two specific PCBs so tests for 4 are available. I am self diagnosed with chloracne, confirmed with lab test 084624 showing blood levels of a DDT metabolite. Exposure to DDT is extremely harmful and may potentially create decades of severe skin problems. It is my intention to have acupuncture treatment - I would do it myself but the most effective points are on the back and I cannot reach them so I will ask my OMD buddy to help out. this western test totally supports my prior TCM diagnosis of toxic heat syndrome which is the older chinese name for inflammatory illness of this sort due to harmful material(s) getting into the system. I hope for a fully, complete recovery from this miserable intense itching with skin eruptions and skin lesions. Additionally I will also use a revised TCM herbal formula. The bad news is I have a difficult health problem that is so severe I never sleep more than a couple hours at a time if it is flaring up. The good news is I know partly the reason why , as opposed to not knowing. I have been extremely diligent in attempts to protect my health and limit exposure to harmful substances, and eat only organic and have done so for decades. Except I have eaten seafood , and in fact in retrospect, my flare ups of M do follow seafood meals. My conclusion is that there is a problem with food contamination stemming from fish. best regards, Jean Last edited by jeanlong; December 30th, 2011 at 04:27 PM. |
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| Hi all, for those who have big bucks (not me), there is an additional resource. see Profiles Categorized - Metametrix Clinical Laboratory go to the part that says Toxicity Profiles. All of these tests can be run. It is highly likely that many chronic hard to diagnose health problems stem from environmental exposure to toxic man made chemicals that are hard for the body to jettison or break down. Additionally some of these items have toxic metabolites, meaning that if your body does break it down the small chemical pieces are also very toxic. If I get a big money windfall I will order all of these tests for myself. that's probably not going to happen any time soon, but this is a resource most doctors do not know about. best regards, Jean |
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| see prior post. they are new lab blood tests for toxic chemicals. btw there is no effective or proven western treatment for chloracne from PCBs or DDT or other organochlorinated pollutants. Last edited by jeanlong; December 30th, 2011 at 04:29 PM. |
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| I had Lab Corp testing for pesticides (seven pages worth too) when I was first sick six years ago. And the test showed nothing abnormal in my case. So IMO this illness is way beyond having just one or two environmental issues behind it, even pesticide issues. IMO there are also various infective agents involved, some known and some which so far remain unidentified, as well as probably various other environmental issues being causative factors. Not too hard to see that when considering the extent of the deaths of so many sea animals, such as fish, dolphins, whales, sea lions and others and the illnesses which have been identified in them. Some of their illnesses mimic those some of us have too, such as herpes and various bacterial infections as well as lesions and parasites and cancers of various types. Well, about the seafood...I long stopped eating seafoods due to the ciguatera exposure which triggered the rest of my symptoms of reactivated infections. In fact this toxin started my whole symptom picture. I have written about that in various posts since first joining here. Once you start poking into what is going on with seafood you quickly learn that a lot of farmed seafood (a lot of what is on tables today) is grown in excessively poor conditions, often filthy conditions, especially in Asia. Various toxins in this seafood (depending on type of seafood) remain in the body for some time, often causing uncomfortable long term effects. Ciguatoxin messes up the sodium ion channels in the body, often for years after exposure to it (this has been my experience). Any re-exposure to this toxin usually will cause even worse symptoms. These kinds of neurotoxins are also a problem which is found in fresh water, although not exactly in the same form as the seafood neurotoxins. It apparently stems from certain toxic forms of cyanobacteria in algae blooms found in fresh water as well as brackish and ocean waters. There is also a lot of discussion about cyanobacteria on the forum although I believe some of it was recently removed by some posters which is sad. One problem with neurotoxins such as cyanobacteria is that these toxins are currently not easy to remove from drinking water supplies, so it is possible that this problem is far more wide spread than is currently thought. Or perhaps it is known, but those who know try to keep it quiet. Who knows? For those interested in an older discussion of ciguatera: morgellons-disease-research.com/Morgellons-Message-Board/morgellons-theories-speculations/7153-ciguatera-ciguatera-like-toxins-ionizing-radiation-part-morgellons-puzzle.html For those interested in reading more about cyanobacteria and algae: morgellons-disease-research.com/Morgellons-Message-Board/complementary-alternative-therapies/1649-blue-green-algae-powerful-immune-enhancer-4.html#post87415 Not everyone who has M symptoms will have toxic heat as part of their symptom picture. For some this may be true (such as in exposures to neurotoxins), but for others this may not be true. quote=jeanlong;87896]Hi all After substantial frustration as BOTH a patient and a clinician, I am pleased to report I have located two new LabCorp tests. This is important as they are one of two major nationwide labs that the major health insurance carriers use. To view go to the LabCorp menu page and type in PCB. labcorp.com here are test numbers. No. 084624 for pesticides; and two for aroclors (trade names for PCBs) 84616 and 722009. The first is a test for specific numerous pesticides. The last two each test for two specific PCBs so tests for 4 are available. I am self diagnosed with chloracne, confirmed with lab test 084624 showing blood levels of a DDT metabolite. Exposure to DDT is extremely harmful and may potentially create decades of severe skin problems. It is my intention to have acupuncture treatment - I would do it myself but the most effective points are on the back and I cannot reach them so I will ask my OMD buddy to help out. this western test totally supports my prior TCM diagnosis of toxic heat syndrome which is the older chinese name for inflammatory illness of this sort due to harmful material(s) getting into the system. I hope for a fully, complete recovery from this miserable intense itching with skin eruptions and skin lesions. Additionally I will also use a revised TCM herbal formula. The bad news is I have a difficult health problem that is so severe I never sleep more than a couple hours at a time if it is flaring up. The good news is I know partly the reason why , as opposed to not knowing. I have been extremely diligent in attempts to protect my health and limit exposure to harmful substances, and eat only organic and have done so for decades. Except I have eaten seafood , and in fact in retrospect, my flare ups of M do follow seafood meals. My conclusion is that there is a problem with food contamination stemming from fish. best regards, Jean[/quote]
__________________ "Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885) |
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| tcm, thanks for sharing thoughts. well now they don't offer seven pages of lab reports of testing now. If you could please share the lab test numbers that would be helpful. They offer very abbreviated testing for pesticides. Do you have itching coupled with fibers? I don't know that I have all the right answers for myself yet. But it seems to all fit. I would love to get to the bottom of all of this. And for the first time ever I have a positive on a lab test. I also wanted to get tested for ciguatera. Labcorp doesn't offer it, nor any local lab. You're probably on to a good clue and this may be a part of my problem too. I was always negative for all/any infections (pathogens) testing including the biopsy of lesions. best, Jean ps, I am terrified of seafood now. do you avoid it 100% these days? Quote:
Last edited by jeanlong; December 30th, 2011 at 07:18 PM. |
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| all food has m infestations.M is enviromental in that it's everywhere around us.Look in boxes of cereal,grits,flour,cornmeal,rice and the list goes on.This tiny life form can stay inside any food, wet or dry.It needs the fluids to grow but can stay alive for years without any moisture only to start growing again once a food source has been found.Millions if not billions already have M growing inside them,growing and taking over.The more I look around me the more M that I see.We are way past the tipping point with Morgellons and it's ability to infect mankind.It's so much easier to deny it than to accept the truth about it.It cannot be stopped.Jean are you not yet familiar with this life form? |
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| you might be right. I don't see bugs or parasite in my skin or coming out of my body. I can't prove or disprove my theory, and am only trying to connect the dots I see so to speak. It would not surprise me that there are parasites making these fiber objects. But on the other hand, I haven't observed such a creature. I have good days and bad days, and good weeks and bad weeks . . . and episodes with major itching and lots of rash or acne type bumps. I do have lesions once in a while when larger objects emerge, usually chunkier stuff like a blue square or a shiny hexagon but those have stopped, and mostly I see colorful fibers, some stringy and some knotted up. Quote:
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