POSITIVE TEST RESULTS FOR EVERYONE, please post them, plus drugs that worked.
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Old December 9th, 2011, 08:19 PM
Baraka Obam is FEARLESS LEADER
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Default POSITIVE TEST RESULTS FOR EVERYONE, please post them, plus drugs that worked.

I have been seeing alot of interest in doctors lately.

The conversations have been more about how to get a doctor that will be able SAVE YOU!

SORRY, there there has been some results from doctors but todate I really would doubt a true healing.

The issues at hand here would be more productive if everyone that has had a TRUE DIAGNOSIS FROM ACTUAL TESTING to relay the disease and the results from treatment with what made them IMPROVE the best.

I dispise the idea that EVERY new person will come here and go wildly blind into the doctors office with the fear of death pleading with money hungry and idiot doctors ready to cut them up and kill them with drugs and then leave them in the poor house.

This was what they did to me, I am lucky, being aware of what was killing me and how it works saved me a spine operation on my neck.

One of the lesion/TUMORS became what I call active, that is when they start to BURN.

The pain was so horrific I would have cut it off if I knew it would always feel like that, it started in the lesion stop and went up my arm into the elbow, up the arm and into the neck. I told the doctors that and they looked at me like I was a moron.

Then these a/h saw my legs, and insinuated I was a drug addict because of the huge lesion and would not give me somthing for pain.

NEW PEOPLE listen closely, there has been NO real help from doctors curing us, they may at best alleviate our issues, our symptom disease problems.

Try to find out what everyone has tested positive for, my test said MYCOPLASMA, and HERPIES that was all.

That test I asked for, why did I ask for a MYCOPLASMA TEST, others had tested positive for it. If you do not test positive for a disease DO NOT GET TREATED FOR IT, you have enough issues to deal with that you do NOT need new symptoms from DOCTOR DRUGS.

Please everyone the best you can do for the newby is list your positive results so they may be tested for the same items, this does not have to be a big conversation of the rights and wrongs of anything. The list will save people time, money, insults, and they will be closer to the correct treatments they need for symptom disease that rides along with our issue (SYMBIOTIC), is caused by our issue (INJURED IMMUNITY), or is the exact same item that has shifted gears into one of its other faces (MORPOLOGY).

Give a real gift to these people you can save them 10s of thousands.

Maybe someone else can put this better than I, truly it needs to be done, 100 doctors visits will have them down the road were we are now only with a diagnosis of DOP, broke and still hurting.

They need a good start.

I have a very funny feeling that HERPIES has alot to do with the lesion/TUMORS and the itching.

I think A get that word A treatment wide a (wide range antiparasitic drug) for a few different types of parasites, know this, there are many parasites and because of their makeup one type that will expire with one form of drug will not be eradicated wor even bothered by another.

STILL, do not go wild with parasite drugs, as the bible says everything in moderation.

Being afraid of this disease does not mean you should kill yourself trying to get rid of it.
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Old December 9th, 2011, 10:31 PM
absurdlyhaywired has no status.
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Join Date: Oct 2011
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Posts: 90
Default doctors and RX's

Hi everyone,

What comes to mind from my experience that may save someone time,money,

extra undue aggravation, and delay of treatment is to question any Dr.

about any 'script written while you have the doc in front of you.

I hope I remember this myself. I neglected to do this, I'd just take

what was handed me in the office w/o even looking at the paper. Could have

been anything-hate to say it but maybe I felt a little bit intimidated

or thought it more respectful not to look, as if I'd be double checking

or something and that wasn't my place. Well, most of us need double

checked no matter who we think we are.

The first derm. RX I received turned into a 5 month long ordeal of delayed

or nonexistant medical treatment. I had a problem from my ears all over

down to the navel and I was only getting 30mls of med. That amount

wouldn't treat one elbow. Oh yeah, 30mls supposed to last 10 days.

I'll spare you all the comical details of that 5 month battle. But when

I did remember to question the next doc. writing a 'script I asked "Can't

you write it as such and such .........." Doc replies " I don't see why

not, never would of thought of that."

I hope this makes sense. So much crazy stuff happens and I'm not

always sure I'm thinking right.

Also to those of you researching with your microscopes, you can sometimes

find some good deals for supplies at American Science Surplus( sciplus). I used to get their hardcopy catalog

and I'd read it cover to cover for entertainment. You'll see why if check

'em out. I've also purchased from them for years and am a loyal customer.

Never had any problem there.

AHW Concerning the subject of the thread-I've

had positive diag for herpes 32 years
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  #3 (permalink)  
Old December 9th, 2011, 10:38 PM
tcmgpt13 is "status viatoris."
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Posts: 4,657
Default

I have listed what I tested positive for and was diagnosed with and mentioned drugs that helped. I have reported about other members who came back here and told us what they tested positive for as well since most of these people no longer post here. Even mentioned some drugs they found useful if they reported about that. So what do you mean? Talk about positive tests and diagnoses and drugs? They have been discussed here and more than once.

Lyme itself would be one disease which could be missed in testing. Some doctors will treat symptoms and not just test numbers. Going by test numbers alone often means that people remain untreated for a disease for years. That was true in my case when most doctors only treated thyroid disease by TSH NUMBERS alone. At the time TSH numbers that were treated had to be within a certain high range. Yet I had severe thyroid issues including a low body temperature. I had TSH numbers which were considered too low to treat. I was finally treated by a more alternative doctor with a trial of medication to see how I would feel. What a concept. It was like a miracle to feel so much better so quickly. So bless those doctors who do not just treat test numbers but do treat patients who are suffering and even try to find out what infections they may have as in the case of lyme and Morgellons syndrome.

No one with Morgellons syndrome who has seen a doctor has come back here and claimed they were cured, not like some here who constantly push the flavor of the day sale for the latest all natural cure which...guess what? Does not cure either. Of course a lot of this these days is more subtle though it does not entirely pass unnoticed. So you think only doctors push dangerous protocols? You know I believe in natural treatments, but I do not believe those who make promises of total health if only you will see that their product is special. Works better than any other similar products. Yeah, lots of that has gone on here.

Read up more and you find that not just herpies (acyclovir helps quiet this one) is connected to cancer issues. So is lyme and lyme is extremely under diagnosed. Patients who have it are ignored if their tests results show a false negative. This in spite of often severe symptoms. Then they get to go home and get sicker, because again lyme (as M) is very hard to cure with herbs and natural treatments alone. Even Stephen Buhner who has a whole protocol based on herbs for lyme says that probably at some point some drugs will have to be used.

Anyway to return to cancer, fungal diseases and other bacterial diseases are also connected to cancer.

For more than six years I have suffered extreme fatigue which started with the ciguatoxin to which I was exposed. Every symptom I had of M started with that exposure although as the doctor pointed out most of it was probably reawakened in me by that neurotoxin. It was like a miracle to me when very recently I took some doxycycline for an infection behind the ear drum and felt some energy again. That energy is still here even after stopping that medication. Since I have lyme possibly it killed off some of that and that was the cause of my fatigue. Or maybe the medication made it harder for the parasites to survive, if indeed parasites are involved. Lyme patients often report their energy levels rising after using this particular medication. No way to know how long that effect will last either, but even a short time is a gift to someone who has had trouble getting out of bed due to fatigue and general weakness. For the first time in years I feel hungry again. Just in time for Thanksgiving too.

Sometimes even doctors can alleviate symptoms (notice I am not saying cure and never have anymore than I would say that about herbs or other alternatives). I agree that it is best to do everything in moderation to include all drugs and herbs. Overdoing anything does not seem to be good for anyone's health.

So a warning to newbies as well. If someone wants to sell you a product shortly after you join take a huge leap back before buying into it. Natural medicine and Western medicine all have a place in life. Learn all about whatever you decide to do before spending large sums of money on any treatment. And remember just as there are doctors who are money hungry there are snake oil men selling the latest natural 'miracle' product cures who are even more rapacious.

quote=Baraka Obam;87164]I have been seeing alot of interest in doctors lately.

The conversations have been more about how to get a doctor that will be able SAVE YOU!

SORRY, there there has been some results from doctors but todate I really would doubt a true healing.

The issues at hand here would be more productive if everyone that has had a TRUE DIAGNOSIS FROM ACTUAL TESTING to relay the disease and the results from treatment with what made them IMPROVE the best.

I dispise the idea that EVERY new person will come here and go wildly blind into the doctors office with the fear of death pleading with money hungry and idiot doctors ready to cut them up and kill them with drugs and then leave them in the poor house.

This was what they did to me, I am lucky, being aware of what was killing me and how it works saved me a spine operation on my neck.

One of the lesion/TUMORS became what I call active, that is when they start to BURN.

The pain was so horrific I would have cut it off if I knew it would always feel like that, it started in the lesion stop and went up my arm into the elbow, up the arm and into the neck. I told the doctors that and they looked at me like I was a moron.

Then these a/h saw my legs, and insinuated I was a drug addict because of the huge lesion and would not give me somthing for pain.

NEW PEOPLE listen closely, there has been NO real help from doctors curing us, they may at best alleviate our issues, our symptom disease problems.

Try to find out what everyone has tested positive for, my test said MYCOPLASMA, and HERPIES that was all.

That test I asked for, why did I ask for a MYCOPLASMA TEST, others had tested positive for it. If you do not test positive for a disease DO NOT GET TREATED FOR IT, you have enough issues to deal with that you do NOT need new symptoms from DOCTOR DRUGS.

Please everyone the best you can do for the newby is list your positive results so they may be tested for the same items, this does not have to be a big conversation of the rights and wrongs of anything. The list will save people time, money, insults, and they will be closer to the correct treatments they need for symptom disease that rides along with our issue (SYMBIOTIC), is caused by our issue (INJURED IMMUNITY), or is the exact same item that has shifted gears into one of its other faces (MORPOLOGY).

Give a real gift to these people you can save them 10s of thousands.

Maybe someone else can put this better than I, truly it needs to be done, 100 doctors visits will have them down the road were we are now only with a diagnosis of DOP, broke and still hurting.

They need a good start.

I have a very funny feeling that HERPIES has alot to do with the lesion/TUMORS and the itching.

I think A get that word A treatment wide a (wide range antiparasitic drug) for a few different types of parasites, know this, there are many parasites and because of their makeup one type that will expire with one form of drug will not be eradicated wor even bothered by another.

STILL, do not go wild with parasite drugs, as the bible says everything in moderation.

Being afraid of this disease does not mean you should kill yourself trying to get rid of it.[/quote]
__________________
"Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885)

Last edited by tcmgpt13; December 9th, 2011 at 10:43 PM.
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  #4 (permalink)  
Old December 10th, 2011, 01:42 AM
Baraka Obam is FEARLESS LEADER
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Join Date: Aug 2008
Posts: 3,493
Default Dear sweet TCM

This tread was to get them closer to an idea of the issues they face without spending 1 million dollars to find out from ten different doctors, thats all.

I did not have one positive diagnosis from the doctor.

Imagine this, a doctor teating the first time with 5 positives from testing that he treats and removes that threat for lets say $150, testing is the best way out, if you have a simple list to follow what is the problem.

Watch how easy this is,

Find a doctor that will agree to do your list along with their $$$$$guess after $$$$$guess after $$$$$guess, after $$$$$guess

Actually the doctor did not think the rest of my testes were not useful and she skipped them and that was the last time I went to her, she did not see the use of POSITIVES RESULTS of others facing the same disease as I

SO FAR I SEE THREE CASES OF HERPIES, 3


HERE is all the people needed to see, the rest is kinda not a list.

I had a diagnosis of

1. MYCOPLASMA, nothing was used as I was over the infection

2. HERPIES Acyclovir (Zovirax) No change that I could see

Last edited by Baraka Obam; December 10th, 2011 at 01:53 AM.
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  #5 (permalink)  
Old December 10th, 2011, 02:43 AM
Pollyringworm has no status.
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Default

Quote:
Originally Posted by tcmgpt13 View Post
I have listed what I tested positive for and was diagnosed with and mentioned drugs that helped. I have reported about other members who came back here and told us what they tested positive for as well since most of these people no longer post here. Even mentioned some drugs they found useful if they reported about that. So what do you mean? Talk about positive tests and diagnoses and drugs? They have been discussed here and more than once.

Lyme itself would be one disease which could be missed in testing. Some doctors will treat symptoms and not just test numbers. Going by test numbers alone often means that people remain untreated for a disease for years. That was true in my case when most doctors only treated thyroid disease by TSH NUMBERS alone. At the time TSH numbers that were treated had to be within a certain high range. Yet I had severe thyroid issues including a low body temperature. I had TSH numbers which were considered too low to treat. I was finally treated by a more alternative doctor with a trial of medication to see how I would feel. What a concept. It was like a miracle to feel so much better so quickly. So bless those doctors who do not just treat test numbers but do treat patients who are suffering and even try to find out what infections they may have as in the case of lyme and Morgellons syndrome.

No one with Morgellons syndrome who has seen a doctor has come back here and claimed they were cured, not like some here who constantly push the flavor of the day sale for the latest all natural cure which...guess what? Does not cure either. Of course a lot of this these days is more subtle though it does not entirely pass unnoticed. So you think only doctors push dangerous protocols? You know I believe in natural treatments, but I do not believe those who make promises of total health if only you will see that their product is special. Works better than any other similar products. Yeah, lots of that has gone on here.

Read up more and you find that not just herpies (acyclovir helps quiet this one) is connected to cancer issues. So is lyme and lyme is extremely under diagnosed. Patients who have it are ignored if their tests results show a false negative. This in spite of often severe symptoms. Then they get to go home and get sicker, because again lyme (as M) is very hard to cure with herbs and natural treatments alone. Even Stephen Buhner who has a whole protocol based on herbs for lyme says that probably at some point some drugs will have to be used.

Anyway to return to cancer, fungal diseases and other bacterial diseases are also connected to cancer.

For more than six years I have suffered extreme fatigue which started with the ciguatoxin to which I was exposed. Every symptom I had of M started with that exposure although as the doctor pointed out most of it was probably reawakened in me by that neurotoxin. It was like a miracle to me when very recently I took some doxycycline for an infection behind the ear drum and felt some energy again. That energy is still here even after stopping that medication. Since I have lyme possibly it killed off some of that and that was the cause of my fatigue. Or maybe the medication made it harder for the parasites to survive, if indeed parasites are involved. Lyme patients often report their energy levels rising after using this particular medication. No way to know how long that effect will last either, but even a short time is a gift to someone who has had trouble getting out of bed due to fatigue and general weakness. For the first time in years I feel hungry again. Just in time for Thanksgiving too.

Sometimes even doctors can alleviate symptoms (notice I am not saying cure and never have anymore than I would say that about herbs or other alternatives). I agree that it is best to do everything in moderation to include all drugs and herbs. Overdoing anything does not seem to be good for anyone's health.

So a warning to newbies as well. If someone wants to sell you a product shortly after you join take a huge leap back before buying into it. Natural medicine and Western medicine all have a place in life. Learn all about whatever you decide to do before spending large sums of money on any treatment. And remember just as there are doctors who are money hungry there are snake oil men selling the latest natural 'miracle' product cures who are even more rapacious.

quote=Baraka Obam;87164]I have been seeing alot of interest in doctors lately.

The conversations have been more about how to get a doctor that will be able SAVE YOU!

SORRY, there there has been some results from doctors but todate I really would doubt a true healing.

The issues at hand here would be more productive if everyone that has had a TRUE DIAGNOSIS FROM ACTUAL TESTING to relay the disease and the results from treatment with what made them IMPROVE the best.

I dispise the idea that EVERY new person will come here and go wildly blind into the doctors office with the fear of death pleading with money hungry and idiot doctors ready to cut them up and kill them with drugs and then leave them in the poor house.

This was what they did to me, I am lucky, being aware of what was killing me and how it works saved me a spine operation on my neck.

One of the lesion/TUMORS became what I call active, that is when they start to

The pain was so horrific I would have cut it off if I knew it would always feel like that, it started in the lesion stop and went up my arm into the elbow, up the arm and into the neck. I told the doctors that and they looked at me like I was a moron.

Then these a/h saw my legs, and insinuated I was a drug addict because of the huge lesion and would not give me somthing for pain.

NEW PEOPLE listen closely, there has been NO real help from doctors curing us, they may at best alleviate our issues, our symptom disease problems.

Try to find out what everyone has tested positive for, my test said MYCOPLASMA, and HERPIES that was all.

That test I asked for, why did I ask for a MYCOPLASMA TEST, others had tested positive for it. If you do not test positive for a disease DO NOT GET TREATED FOR IT, you have enough issues to deal with that you do NOT need new symptoms from DOCTOR DRUGS.

Please everyone the best you can do for the newby is list your positive results so they may be tested for the same items, this does not have to be a big conversation of the rights and wrongs of anything. The list will save people time, money, insults, and they will be closer to the correct treatments they need for symptom disease that rides along with our issue (SYMBIOTIC), is caused by our issue (INJURED IMMUNITY), or is the exact same item that has shifted gears into one of its other faces (MORPOLOGY).

Give a real gift to these people you can save them 10s of thousands.

Maybe someone else can put this better than I, truly it needs to be done, 100 doctors visits will have them down the road were we are now only with a diagnosis of DOP, broke and still hurting.

They need a good start.

I have a very funny feeling that HERPIES has alot to do with the lesion/TUMORS and the itching.

I think A get that word A treatment wide a (wide range antiparasitic drug) for a few different types of parasites, know this, there are many parasites and because of their makeup one type that will expire with one form of drug will not be eradicated wor even bothered by another.

STILL, do not go wild with parasite drugs, as the bible says everything in moderation.

Being afraid of this disease does not mean you should kill yourself trying to get rid of it.
[/quote]



Im reading Stephen Buhners book on lyme right now. I havent gotten to the protocol part yet. Has anyone tried it?
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Old December 10th, 2011, 02:59 AM
jonsi is live and let live. Let's get through this!
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No MD is going to cure anyone who has "M". If they had the pharm drug we would be healthy now and hooked! Look at high blood pressure, high cholesterol. etc. there is a pill out there to fix it if they can figure it out.

Not for us. We need to pay attention to what we eat and pay attention to toxins. And meds aren't going to "cure" us in the long run.

Itwl,
~jonsi
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There is a reason I have "Morgellons". Helping and teaching others how to survive in our toxic world may be the reason. Hang in there everyone who has this.
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Old December 10th, 2011, 03:10 AM
Baraka Obam is FEARLESS LEADER
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Posts: 3,493
Default I do not know if anyone gets the idea of the thread

This thread is not about how many hairs in your nose, NO, its not about how nice your cat is, its not about your feelings of cold.


The tread is about listing your POSITIVE DIAGNOSIS and your results, what drugs you took that worked.

This is to save all the NEWBYS thousands of dollars and possible eliminate some of their more possible issues.

The newbys like doctors and do think they are the ones that can help them.

I was diagnosed with

HERPIES

MYCOPLASMA
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Old December 10th, 2011, 08:29 AM
tcmgpt13 is "status viatoris."
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Look, no one is saying cure here. About natural methods or Western medicine. Though I am sure others here who push and sell natural methods will continue to claim cures and indeed have in the past even though those claims were patently untrue. No conflict of interest or anything on their part. Some people do not get well however with just diet and natural methods. In my experience some drugs have helped, though I still take herbs too. Every day in fact.

I have been very, very sick with M and I am thankful for the help that drugs have given to me though I still take the least amounts of them that I can. When I was on acyclovir I took half the dose I was supposed to and all the lesions on my back that strong herbal formulas had not touched dried up within a few months. Those lesions were herpes lesions and were all up and down the side of my back. If I had not taken the drug they would still be there because natural methods for these lesions did not work, were not touching them.

Acyclovir however did not however clear up those lesions which seemed to have other involvements. Still I am very happy that I no longer have lesions on my trunk area. And have not developed any more either after being off the med for two years. Or maybe folks should just sit around and wait for herpes viral lesions (if they have them) to clear up with natural methods? I wonder how many years that would take? I took herbs (strong brews), saunas, foot detox and more for three years before I saw the doctor and was diagnosed with the herpes type infections. Then a couple months on the medications dried up the lesions which were the herpes type lesions. And if someone only takes acyclovir for a short time it will not effect a long term resolution of these infections according to what my doctor said. My doctor wanted me on it for two years though as it turned out I only took it for a year and a half.

Taking what I have taken as far as drugs has allowed me to function. Some people get very sick with M and some seem not to get as sick. Perhaps things work differently for those who do not get as sick. Also if I had not gone to the doctor I would never have learned that the trigger for all my symptoms of M were triggered by ciguatera exposure three years earlier.

Oh and the use of stromectal (ivermectin) has helped me too. I do not believe that using anthelmintics frequently is good for the body (especially the CNS), but it was surprising how much this stuff killed off in my stool and it has even slowed down lesion formation somewhat (the ones which are not viral in origin). So I thank God there is more than one way to treat M. Or at least the infections which seem to be piggy backing on it.

Forgot to mention I was negative on the mycoplasma test. .

quote=jonsi;87176]No MD is going to cure anyone who has M. If they had the pharm drug we would be healthy now and hooked! Look at high blood pressure, high cholesterol. etc. there is a pill out there to fix it if they can figure it out.

Not for us. We need to pay attention to what we eat and pay attention to toxins. And meds aren't going to cure us in the long run.

Itwl,
~jonsi[/quote]
__________________
"Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885)
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Old December 10th, 2011, 08:34 AM
tcmgpt13 is "status viatoris."
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Try getting on his online forum. Loads of discussion about it there. Even he though mentioned that sometimes some drugs would probably be needed to get better when one has lyme.

quote=pollyringworm

Im reading Stephen Buhners book on lyme right now. I havent gotten to the protocol part yet. Has anyone tried it?[/quote]
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Old December 10th, 2011, 02:18 PM
MeaganM is in a lot of pain!
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I tested positive for Mycoplasma, Bartonella, Vit D deficiency, Vit B12 deficiency, Postural Orthostatic Tachycardia (POTS), CMV, Parvo, EBV, increase in liver enzymes and I'm waiting on my Lyme test from Igenix and my CD57.

The beta blockers are helping my POTS, the B12 injections helped that deficiency, the increase in Vit D helped with that, the anti-viral meds did nothing, the Albenza brought on my M symptoms and oral antibiotics caused inflammation of my esophagus making my symptoms worse. I am probably going to start a Lyme IV antibiotic treatment for 9 weeks in January. I will post my results when/if it happens.

I have also been diagnosed with Chronic Fatigue Syndrome, Fibromyalgia, cysts on my ovaries, loss of vision and cysts on my right eye, TMJ, cystic fibrosis in my breasts, endometriosis (sp?), Rheumatoid Arthritis, recurring kidney/bladder infections, dysautonomia and chronic bronchitis.
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