Has anyone used this lab or seen this website confirming Morgellons??

[Anna R. Key]

This is the lab she says proves she is sick with Morgellons.
Home - Metametrix Clinical Laboratory

This is her website as well-
Morgellons Disease Awareness - *Functional medicine is personalized medicine that deals with primary prevention and underlying causes instead of symptoms for serious chronic disease.Functional medicine is anchored by an examination of the core clini


Has anyone treid this lab? I am going to order one of their kits.

[janedoe]

why are you ordering a kit? whats it supposed to tell you? do you know ehos lab this is?
you need to realize the docs wont cure you, only YOU can cure you

[tcmgpt13]

I do not believe this lab can confirm what Morgellons is as yet, as they seem to be reporting what they find in their tests but so far they do not appear to have a test for Morgellons itself. This lab seems to be finding something which could be a parasite, but are calling it a non-human parasite, taxonomy unknown. Saying it this way sounds really weird to me. If it's a parasite found in a human, even if it is an unknown parasite by definition it would be a human parasite, just a so far unknown human parasite since it appears the lab is seeing this in humans tested by them. Claimed sightings by one lab of unidentified parasites in tests would never be an accepted finding in the medical world. One, this unknown parasite would have to be found by other medical labs. And two, it would have to be identified as far as its taxanomy at the very least.

Finding common patterns among those with Morgellons symptoms is useful, but again these findings are not exactly the definitive test which prove what we have is Morgellons. Better perhaps than what the CDC and Kaiser are doing these days (twiddling their thumbs), but it is still a stretch away from what I think we would all like to see here which is a positive known identification of a common parasite or other common infection among all our varied symptoms by more than one lab or one person. Finding some common test results among various tests and various people with Morgellons is what is being reported here. Still Harvey and Savely and others have also tested for some commonalities as far as symptoms and found some other commonalities too. Again, even what they found to be fairly common among Morgellons patients, does not provide proof positive of Morgellons as a separate disease with a separate known cause. The unidentified common Morgellons bug (if there is one, crossing fingers it is/has been found and will at some stage be positively identified) remains a complete mystery to us. I am not sure what they are finding as far as DNA commonalities which could provide clues as to genetic susceptibility to Morgellons syndrome, but again it would not exactly be proof of Morgellons.

You might like to search the forum Anna. These two labs have been put forward on this forum before. I think the jury is still out, just as it was back then.

[sammy]

i think if this lab was as good as this savley and some others would be using it they use something completly diff. sammy

[janedoe]

yes i agree sammy. now am i the only one smelling a plug for this lab?

[jeanlong]

agree, tcm right. That testing can't "prove" M. No one can but I just did a quick read and to be accurate their site says "these tests won't tell you if you have the disease" . Proving the existence or absence of M according to the western science paradigm must wait there is an underlying condition that is common that is established/found. then a test could be established for that condition, such as a common mutation, a common toxic substance, a common pathogen etc. until then all the problems (fatigue, lesions, itching) are, in a sense, treated symptomatically even if chemical imbalances and/or secondary infections are ID'ed and remedied. So i use acupuncture and chinese medicinal herbs which technically when viewed from the western view, only treats symptomatically , but at least there is a long history of observing syndromes and finding safe effective treatments.

so this result of a newer test may be better than the CDC position (that if an organism/bug is not a known parasite in the CDC database it is NPF) since it eliminates the DOP concept. but isnt that is the only point it could definitely make? that it provides evidence to refute DOP. but then we're still back to an unknown etiology.

DOP is nonsense since there are unwanted critters that are found but until the CDC can explain the bugs in the NPF-diagnosed individuals this is a problem. I still want to become healthy and well and free of all M problems. I'm studying Frito's threads so this makes me think there are mutagens that have damaged us, resulting in a number of endocrine disorders.

[tcmgpt13]

It does sound as if it might be yet another promotion of these labs on MDR (we had a similar one about a year ago too), especially since now one of the two labs is preferred over the other on the link Anna left here. The person running the other site definitely prefers the lab which does the dna testing.

What I do not like about this dna testing is wondering what exactly this lab is doing with the dna tests. Who are they and what, if anything, does the dna testing reveal? Will anyone ever know? And who will know? In whose hands will any results end up? Those with Morgellons are being used as guinea pigs to see if a test can be found for Morgellons. They even get to pay for the privilege of being tested with a test which so far does not seem to have determined what exactly Morgellon is and may never do so. Too soon to tell. Usually this sort of trial is paid for by the person/lab doing the testing. So far all Morgellons testing cost we hear about is being borne by Morgellons patients as guinea pigs. Completely upside down to the way recognized research is done. It does not sound like anything close to a clinical trial to gain acceptance and recognition by others in the medical field.

[tcmgpt13]

Yes, Jean, I agree the labs do not appear to be making these claims of definitive testing for Morgellons. Not sure what the site Anna linked is doing, but I think perhaps there seems to be more than a bit of promotion of various sorts to be found there, but just IMHO. Actually I was answering the question that Anna used as her title: Has anyone used this lab or seen this website confirming Morgellons??. The title of this thread leaves the impression that the testing confirms Morgellons while this is not what their testing shows at all.

Originally Posted by jeanlong

agree, tcm right. That testing can't "prove" M. No one can but I just did a quick read and to be accurate their site says "these tests won't tell you if you have the disease" . Proving the existence or absence of M according to the western science paradigm must wait there is an underlying condition that is common that is established/found. then a test could be established for that condition, such as a common mutation, a common toxic substance, a common pathogen etc. until then all the problems (fatigue, lesions, itching) are, in a sense, treated symptomatically even if chemical imbalances and/or secondary infections are ID'ed and remedied. So i use acupuncture and chinese medicinal herbs which technically when viewed from the western view, only treats symptomatically , but at least there is a long history of observing syndromes and finding safe effective treatments.

so this result of a newer test may be better than the CDC position (that if an organism/bug is not a known parasite in the CDC database it is NPF) since it eliminates the DOP concept. but isnt that is the only point it could definitely make? that it provides evidence to refute DOP. but then we're still back to an unknown etiology.

DOP is nonsense since there are unwanted critters that are found but until the CDC can explain the bugs in the NPF-diagnosed individuals this is a problem. I still want to become healthy and well and free of all M problems. I'm studying Frito's threads so this makes me think there are mutagens that have damaged us, resulting in a number of endocrine disorders.

[Baraka Obam]

The reason nobody pays for anything in our case is we as a unit can break the backbone of the modern drug industry.

What we have if found and cured will litterally destroy the symptom drug industry along with having us live longer lives.

The government could not possibly want such a thing to happen.

We are by the majority here, 50, 60ish in age, mostly women, and white.

That by itself does not prove anything but it does suggest the most prolific symptoms are as we age, it seems we are mostly white, does it manifest differently in people of color, then you have the idea of more women have it then men, could it be hormonal or are men just deeply anal to the aspects of disease.

I know I caught somthing 39 years ago, it made my hair funny, gave me an instant case of some form of dermatitus, had short tiny fibers coming out all over my head that showed under black light, and that was just what started the ball rolling, floaters in the eyes, liver spots appeared all over my arms, twisting turning hairs that bite, a film in my eyes and on my head, gall bladder removed, bone ulcers in my joints, stinging hairs in my nose, heavy legs, kidney problems, brain fod, loss of memory, red dots on skin, fibers in every part of my being, loss of motor skills, fibramialga, carple tunnel you name it I was plagued by it.

Then I think even though these things attack we may be some of the lucky ones, as I also feel this underlaying cause of all my torment has a much larger and more devistating pool of symptoms.

Nobody in the know wants to cure what fuels the trillion dollar industry of drugs and hospitols.

Disease is the new TV, if you can not keep them in a box watching the boob tube, keep them sick so they are poor and under control, we are the last generation that knows what being free means.

When we are gone all ills of society will be handled with the promise of a new computer game, a tattoo and some cheese for FREE!!!

[janedoe]

baraka, aint nobody making money off us because they call us crazy and send us home! they dont keep us in hospitols, they kick us to the curb..no money to be made from a crazy person.
tcm has made very good points. what does dna have to do with morgs and why would a sufferer be more concerned with dna testing then getting themself better?
maybe my views on dna are different than most since im adopted, blood ties dont mean much to me.but morgs doesnt seem to be a blood thing, but a skin thing.( before you call me dumb baraka, im not a lab tech or a doc. just a person trying to figure all this out too)
what i do know, is the more complicated people make something, the harder it is to find an answer. we find an answer when we strip away the gobldy gook and get back to basic simple explainations. maybe thats why i keep trying to simplify..