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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| Hello everyone, Strength and hope to everyone today. I finally decided to register on here after having this since early march. I wanted to briefly share my story, hear some advice and opinions, and share things I have learned. I am a 28yr old fit male, former athlete. I contracted this in south florida living in a very ghetto neighborhood. One night I got absolutely destroyed in my disgusting room I was renting by small biting midges, and also mosquitos which left much larger red welts on my right arm. I was bitten close to a hundred times or more over two days at first, hard, sharp bites. I was trying any type of shower or lotion but it didn't get them to stop. I learned that coastal biting migdges (culicoides species) hatch at that exactly that time of year in coastal environments and are known to attack in swarms of 100 or even thousands. I learned that in australia, grass tick juveniles can do the same thing. Both culicoides/biting midges and mosquitos are huge disease vectors in tropical and subtropical environments. I was also very run down, 3-4 hours of sleep a night, high stress and long commute for several months before the attack. The insect vector is my hypothesis for this condition. My symptoms are the small, different length and shape blue fibers, some look more like small worms, occasionally red, and white. The initial bites were bad but this is quite sh***y also. Stuff going in my ears, eyes, on my face, the irritations, the bites I still get that leave small red welts. It is a very difficult condition physically. My overreaching family who lives in the suburbs did not think that what I was saying was possible (just the first night, about getting bit dozens of times), that they deceptively flew down the next day and exercised a law that had me locked up for 3 days in an acute psych ward. A very unpleasant experience where I was given very strong drugs, told by 6 doctors it's impossible to be getting bit by bugs that many times, etc.. I even showed them one night when I had small black dots CRAWLING into my ears. I removed one on a cotton swab after saying, " watch this I'll show you". The guard looked at it for a second, then said, "doesnt look like any bug I've seen". After that I lied and said I had been drinking every day and hallucinating and they let me out. What a nightmare that was. But only the beginning. Fast forward to now... I have been taking doxycycline, got prescribed after making up a detailed travel itinerary to an area where it is used for a malaria prophylactic (after begging my MD from home, who also happens to be friends with my parents, who denied me medication but scheduled a drug test and a brain MRI). It has helped with the really bad stomach symptoms that were starting to develop as well as the unnatural fatigue. The fibers, itching, crawling, remains, and is the worst part of the condition for me. How could I concentrate and not stick a q-tip in my ear or scratch 50 times at a business meeting or on date? I am a young fit amateur athlete, just started my own business despite these major setbacks, and the only way I am able to work is on my own which luckily I can do for right now. I am also looking to implement the salt and vitamin C protocol and continue a healthy diet and continued exercise. I have been smoking pot to deal with some of the issues, which sometimes helps, sometimes doesn't; but I want to stop that also. I have been considering alternative remedies that I won't discuss yet, but would give anything to have a normal good summer. I have had enough going on without this stupid disease and I would like to enjoy life again. I know many more have suffered longer and harder than me. There were several times I considered ending it early on. My family was turned against me. We used to be very close, I know we will be again. I am an intelligent master's student, have a 3.4 in grad school, and have alot going for me now.. this is majorly holding me back. I intend to post on here for advice, share what I have learned, and possibly vent like about the little motherf****er that just got in my ear. Supplements, things I have tried/am trying listed below. Peace and love. A. Multivitamin Vit C 1000mg (soon to be increased to 3-4000 with salt intake) Himalayan Pink salt ( havent used yet) Sea Salt ( Havent used yet) NAC(havent used yet) Fish Oil Diatomaceous earth (havent got or used yet but finally found it locally) Doxycycline (been on for 2.5 weeks, going to continue for 12 weeks based on a study that noted remission of symptoms if taken for that long in morgellons/CFS patients) Full blood work done with tests for lyme and epstein barr, hiv, etc etc.. results not back yet. Occasionally took valium to help with anxiety and thinking of getting another prescription. Ideas welcome. Supergreen shakes Alfalfa Tea Trea Oil, peppermint oil, bicarb spray Just ordered Kleen Free, Neodymium magnets (who knows.. it does seem like there is a static/magnetic component to this somehow) Considering colloidal silver or MSM in the future. By the way I have come across some very unscrupulous marketing done by Nutrasilver in the way of fake interviews. One of my old jobs involved private investigation type work with referrals to the Federal Trade Commssion etc for companies that are unethical and breaking the law. I'd like to do the same with them, just because they are picking on people who are beyond desperate for help. And that's it for now. Thanks for listening to my ramble. Made it through one more day.. Thank you Lord. |
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| I love your name. But I'm sorry you have to be here and so very sorry for the way you got it and what you've been through. You sound like you've been reading a lot and have come up with some ideas. There are lots of people here to support you and we're all glad to help in whatever way we can. Check out all the threads, especially the housekeeping / laundry threads. Very important while you work on the physical symptoms, and you may notice a decrease in your symptoms just from that. Borax in every load of laundry! Sometimes we get mouthy and you have to take us with a grain of salt but we try to behave ourselves. Well, mostly. |
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| Take notice guys ..... of the writing...same person as other personalities. Sock puppet 101.....bring up religion, politics. It's a hot button. The writing is so Me too Isadora Ect. Last edited by Janice; June 13th, 2011 at 07:07 AM. |
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| The real shame is that those who are new here are now being accused of being other people. If he is someone like Isadora that will show up soon enough in future posts. Perhaps genuine, perhaps not. Also I suggest reporting any and all suspicions to admin and mod.
__________________ "Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885) |
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| Soji thank you for your words of encouragement. To the others, I have no idea who you're talking about. You are pathetic and I am going to block both of you. Whoever the f**k Isodora is, my name is Andrew and I am a real person who happened to create a username that said something about my beliefs. I am not trying to sell anything or create any "hot button issues". Yes, it was a huge rant. I have had this bottled up inside me for so long, I WAS LOCKED UP IN A PSYCH WARD, I wonder if the two conspiracy theorists could handle that for 3 and a half days. Did I mention that my roommate there was pure schizophrenic and had beaten his last roommate up? I woke up to him standing over me one night becaues the metal plate in his throat was telling him to. How I wish I was making this sh*t up. It's interesting to see how positive people retain their positivity, and negative people sink deeper in their negativity, through the ravages of this purgatory. Since it's impossible for two people on the internet to have a similar writing style, then I must be someone else you're right. /rant. I am me, could give a f*** less what some conspiracy theorists think. You guys are head trippin. I know, it's easy to do when your life becomes a bad hallucination that never ends. Again thank you to dizzy, soji, and tcm. To the others, as you may be able to tell by now, I am far from being a perfect example of my faith. But it is what it is, I am not promoting it, I am not saying anything other than this is who I am. And I didn't even verbalize that until you called me on it. Peace and love- A. |
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