Lots of unanswered questions-please help!

[virgowoman]

Hi everyone, I'm new to this site and I don't know where to turn. I've been so sick for 28 years with no clear diagnosis. One doctor said maybe it's Lyme although my test came back negative, another doctor told me I had Myalgic Encephalomyelitis or CFS-Fibromyalgia. Then I also developed Graves disease. During the course of my illness I noticed strange marks on my body that I couldn't understand but always felt it was somehow related to my illness. I don't know if Morgellons can make you this sick on the inside or is it mainly the skin? I get these little black slivers that appear for no reason and I tweeze them out. Also I get these marks on my back that look like scratch lines and scabed over that resemble something like a sewing needle.It also feels like something is biting me on scalp . About a couple of months ago I developed a rash on my lower leg that was so very itchy. It lasted a long time and when I got it my whole bodily symptoms got even worse than ever for some reason.Could this be Morgellons?

[JimDoe]

Originally Posted by virgowoman

Hi everyone, I'm new to this site and I don't know where to turn. I've been so sick for 28 years with no clear diagnosis. One doctor said maybe it's Lyme although my test came back negative, another doctor told me I had Myalgic Encephalomyelitis or CFS-Fibromyalgia. Then I also developed Graves disease. During the course of my illness I noticed strange marks on my body that I couldn't understand but always felt it was somehow related to my illness. I don't know if Morgellons can make you this sick on the inside or is it mainly the skin? I get these little black slivers that appear for no reason and I tweeze them out. Also I get these marks on my back that look like scratch lines and scabed over that resemble something like a sewing needle.It also feels like something is biting me on scalp . About a couple of months ago I developed a rash on my lower leg that was so very itchy. It lasted a long time and when I got it my whole bodily symptoms got even worse than ever for some reason.Could this be Morgellons?

I can,t awnser some of your questions. It does sound like it certianly may be. I also got the needle like scratches but when I looked closer I saw the line was actually a broken line. And were independent bites that looked like a continious line. You haven,t mentioned itching or brusing or fibers so its hard for me to draw a guess.

[virgowoman]

No I don't have any fibers but it actually feels like individual strands of hair are moving.I also had to have this big clump of something (they don't know what it was) removed from under my fingernail. They told me it probably was from using Brillo or sos but I never use brillo...Whatever i have is very similar to Morgellons or else it goes along with the diagnosis of Myalgic Encephalomyelits ,CFS/Fibro.

[JimDoe]

Originally Posted by virgowoman

No I don't have any fibers but it actually feels like individual strands of hair are moving.I also had to have this big clump of something (they don't know what it was) removed from under my fingernail. They told me it probably was from using Brillo or sos but I never use brillo...Whatever i have is very similar to Morgellons or else it goes along with the diagnosis of Myalgic Encephalomyelits ,CFS/Fibro.

Many with this feel the same thing with hair moving. Some feel bites as well in the area of movement. I do. It,s the only sympton I have left now. When I was getting florense colored fibers from hair I would examine them each time from my comb with magnifacation. It only happened once but I saw a very tiny worm half inside and half outside the blue fiber. The worm was moving wildly like it was stuck inside this fiber as active as it wsa there is no doubt to me that it could easily cause hair movement. So I may still have some of these worms and just can,t find them. I,m going to use some selsome blue and leave it on for a couple of days again. Maybe the sulfer will knock them out.