Morgellons Conference

[lostintime]

Hope to see many of you at the conference this year. There will also be a group discusion at the hotel on Sunday.

For those of you that want to start a movment, and I know you have all talked about it, come join us.

This is about quality of life.
You can sit in your homes posting and chatting as you suffer through life. You can let others make disisions for you or you can get involved.

I choose to be involved.
There is no other organization or event that brings Doctors, scientist's and patiants together not to mention the backing of a state of the art medical universaty, Oklahoma State.

If you have something to say, the conference is the place to say it.

Morgellons Disease Conference 2011

[jonsi]

Hi lostintime,

I attended the first conference in 2008.

I wish they would discuss homeopathic/natural medicine. Wymore is very close minded about diet... & IMHO pharmaceuticals do not help us "Morgies" in the long run.

Please take some good notes and share anything NEW that they might have to share. Thank you

In the white light,
~jonsi

[lostintime]

Hi Jonsi,
If you know a really good homeopathic/natural medicine doctor by all means ask him/her to contact the organization for the opportunity to inlighten us.
I don't think Dr. Wymore is closed minded about diet and would agree with any doctor that good nutrition is important in our lives.
I don't think there has ever been a Dietician speaker but I am sure one would be welcomed.

As far as a Homeopathic/natural medical speaker goes I can tell you this, Dr Wymore does not schedual the speakers for this event.

Hope you change your mind, I would like to hear your voice in this fight as well. Looking doctors in the eye's and asking the hard questions is what we need from everyone.

[hellalone]

I went last year and really liked the whole presentation. There are different people than those who talked last year. Most anyway. It probably be bigger than before. And you never know what some of the presenters will talk about.

I will not try to get people to go - like last year. Yall know if you are or not. And I may not remember what "they" said, as I have lost about 1/2 my memory!

Take care. hella

[sammy]

Where is Ginger snavely located anyone know.?? tks sammy

[tcmgpt13]

Sammy, you are in luck as it appears that as well as San Francisco she has an office in D.C. Here's the information from her site:

Ginger Savely, DNP - Office Location - DC

Her San Francisco location:

Ginger Savely, DNP - Office Location - SF Hm, evidently she is closing this office at the end of this month. I wonder why? It would be interesting to know why. I have some ideas but just a guess...

If you go I wish you the best of luck in finding some really good help.

BTW, a great post to Posey. I know it's hard to go on, but as you say we do when we realize that the next day we start anew. It may prove to be a better day and often is. I hope you will let us know how it goes if you do see Ms. Savely.

Originally Posted by sammy

Where is Ginger snavely located anyone know.?? tks sammy

[sammy]

tcm, Thanks for the info on Ginger snavely, Might as well make an appt seen everyone else what do I have too lose. tks again sammy

[sammy]

tcm, Why do you think she is closing the sf office??? Thought there would be more patients in calif. sammy

[tcmgpt13]

Hi Sammy,

Well the state of CA is going broke in general and I am sure that's affected the number of folks who can afford go to see her. So many are unemployed there now.

I think she may also be interested in D.C. because there may be some knowledge of parasites there, government and military. Here's something in that area run by the government:

U.S. National Parasite Collection

Also Walter Reed is there--I wonder if they are gaining any insight from some of the parasites the G.I.'s have, especially old world Leishmaniasis. Maybe she hopes to learn more about this?

Plus in D.C. she would be closer to the NIH. Maybe she could interest them in a Morgellons study or at least maybe they could give her some guidance to set up a study of her own, one that actually analyzes what is there in the lesions. Harvey used to look for parasitic involvement and found quite a few. Also they keep trying to find out what is in the blood and what types of infections are involved. Since Harvey has disappeared it seems we hear nothing much about these areas of study, including what Savely has published.

My last thought is she originally comes from Maryland and perhaps wants to be closer to home again.

I don't know that any of what I am saying here has anything to do the closure of her SF office, but maybe it could. If nothing else it would be very expensive to maintain two offices in expensive cities.

[sammy]

tcm. Thanks again for your info. I live very close too nih. my insurance may pay for visit and tests done by snavely. I would have too pay first and collect later no big deal since I ha ve spent so much already. Next week Iam seeing an endrocrnologist since my thyroid as nodules and is very hard. go there first. sammy