insurance companies are the losers

[sammy]

When I total the amount of money just I alone have spent over the last year and a half it would have been much cheaper for my care first too have seen there is a problem and addresing it. I know they have spent 15 k on my case alone and still going up. the 25the of this month I will be going too the top at Johns hopkins and I wont stop till I get answers. sammy

[lamb]

Do it while you can. Having private insurance is soon to become obsolete.
Soon we will all become sheeple and have no choices but told to get in line.

For those of you who still believe in alliopathic medicine, go for it now!
I mean this sincerely.

[jonsi]

I saw 4 MD's and they all diagnosed with POD.

I'm glad I don't have medical insurance! It led me to homeopathic/natural Doctors and we (my daughter & I) are very healthy today.

In the white light,
~jonsi

[sammy]

Jonsi, The new doctor I saw last week told me the same try a homopathic doctor after I see this one on the 25 at hopkins. I will go that route. have some other issues I have a hard thyroid and had a screen done on that this week no results back yet. Thanks for your advise and I know this has worked for you . the best sammy

[scabdraggr]

After being diagnosed DOP I sought a psychiatrist and his opinion.He,after 6 sessions informed me that I was perfectly sane and that there was no delusional of parasites involved.He did say that I was quite a mystery about my condition and my understanding of this dilemma.When did Dermatologists obtain the right to make a psychiatric evaluation?They are as much a problem as anything associated with M.It's easy to see why they would stand in the way of a cure.Their waiting rooms are large and almost always full.It often takes 3 mths. to get the first visit.What is really upsetting to me is that my derm is head of the university BOD and is also in charge of the main laboratory that drs. send their samples to for internal medicine.Go figurte!

[sammy]

The next and last derm I go too is the one at Johns Hopkins He is associate prof of derm there and has high credentials. of skin problems if I get the same run around Iam done . sammy

[tcmgpt13]

If you have a clean bill of health from a psychiatrist then why not sue that dermatologist for labeling you DOP? As a dermatologist does not meet any requirements for making a mental health diagnosis it seems you might have a case. It may be time to find a good lawyer.

I did a search to bring up this excellent post by Niecy. Just look at what a doctor must do before ever labeling someone DOP. Although rules may vary some from state to state I feel that anyone who has been told they are sound and sane by a truly qualified practitioner of mental health probably would have a case to sue any doctor who was not careful about how they labeled a patient as DOP. I imagine that opinion alone probably will not cut it in a court of law. Read Niecy's link:

Originally Posted by niecy

Hi everyone, I tried to do a search for Delusional Parasitosis, but the search option doesn't work for me right now. This may not be the correct place to make this post, and it may already be posted, but as I said I couldn't do a search.

A friend had mentioned the other day the process of diagnosing a patient with DOP, he said it was a lengthy process, and if done properly it is.

I wonder how many of us went through this process before being handed that diagnosis, I know I was diagnosed in less than 10 minutes, and that was from the time I walked in the room, the doc was in the room for about one minute when he handed me a brochure on Delusional Parasitosis.

Niecy
xxxxxx


Delusory Parasitosis - Minnesota Dept. of Health

Diagnosis

The diagnosis of DP is a lengthy process involving the following steps:

1. Take a careful case history.
2. Perform a complete physical examination and laboratory evaluation, including skin scrapings and/or biopsies, blood counts, chemistry profile, thyroid function tests, and vitamin B12 levels.
3. Rule out other medical conditions (eg, diabetes, atopic dermatitis, and lymphoblastomas) with skin manifestations that can appear to be caused by arthropods.
4. Work with entomologists or parasitologists to rule out true infestations (eg, scabies mites, animal mites, lice, fleas, and bed bugs).
5. Rule out other organic causes (eg, allergies and contact dermatitis).
6. Rule out history of drug abuse (especially in younger or male patients).

I actually had a biopsy report that suggested an arthropod attack, and got diagnosed with pernicious anemia (B-12 dificiency), but the DOP is still in the records....go figure!

Originally Posted by scabdraggr

After being diagnosed DOP I sought a psychiatrist and his opinion.He,after 6 sessions informed me that I was perfectly sane and that there was no delusional of parasites involved.He did say that I was quite a mystery about my condition and my understanding of this dilemma.When did Dermatologists obtain the right to make a psychiatric evaluation?They are as much a problem as anything associated with M.It's easy to see why they would stand in the way of a cure.Their waiting rooms are large and almost always full.It often takes 3 mths. to get the first visit.What is really upsetting to me is that my derm is head of the university BOD and is also in charge of the main laboratory that drs. send their samples to for internal medicine.Go figurte!

[junknira]

luckily have not been labeled, as of yet, but have a feeling the docs in my group may have questioned my sanity

[belle9]

Perhaps that would be the best way to approach this. The greedy national corporations would respond to a loss in profits. Perhaps they might send some grant money toward a study. I was considering writing all the cereal companies and those that make sweets and letting them know that if this spreads toward even epidemic proportions, no one will buy their products. I don't know about you folks, but I can't eat anything with carbohydrates in it. I have a sweet tooth and actually dream about having a bowl of cereal or a Lindt truffle. The deprivation makes me food obsessed and envious of those who can eat normally. To me, this is a serious quality of life issue. I think companies would respond to lower sales, therefore lower profits. We really have to have someone declare this a real disease though for us to be taken seriously. Blasted CDC and their procrastination!!

Originally Posted by sammy

When I total the amount of money just I alone have spent over the last year and a half it would have been much cheaper for my care first too have seen there is a problem and addresing it. I know they have spent 15 k on my case alone and still going up. the 25the of this month I will be going too the top at Johns hopkins and I wont stop till I get answers. sammy

[belle9]

My doctor is an integrative medicine and internal medicine specialist. She has gotten me much better and does believe that M exists. The problem is...she like many docs want a quick cure to a chronic and changing illness. I just don't get that. She wants me to see a rheumotologist because my ANA was positive but the DNA thingy was negative (which means I don't have lupus, duh!), the itching (from the bugs that I don't have according to the docs who found 6 of my 7 biopsies full of eosinophils) and the yeast, and because she can't get me well in three months. I am so much better because of her treatment and I do believe that she (and my loving hubby) saved my life literally. I can't tell the rheumotologist that I have M, so what do I tell him? Geez, docs need to quit reading literature about DOP. All of that is psuedoscience and not empirical at all. Makes no sense. I know this is rambling. Sorry I'm a little foggy today.