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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| Of course the title of this thread comes to my mind due to the recent health issues I have discovered about myself; that being DVT and PE (Deep Vein Thrombosis and Pulmonary Embolism). I have been removing film from my lips from M and during this process have gotten red shiny substances attached to the plaque. They are either short 1/4 inch or longer and shiny in nature, almost crystal like. It is not my skin from my lips, it is definitely the film whch covers my whole body and that which is indicative of M. I am wondering the thoughts of others regarding blood thickening and M as a causitive agent. In the medical society there really is no definitive answer as to why DVT and PE happens. Cancer can be a causitive factor as well as sitting too long. Cigarettes do not cause it but when you have DVT or PE it is best to quit because the nicotine constricts the veins making blood flow harder. My Dad had PVD (Peripheral Vascular Disease) but the clinicians tell me these two are not related so DVT is not something I inherited from my Dad. I know there are some researchers here and I would be most interested in their findings re: anything about M, but due to my present blood findings I am particularly interested in blood. I myself feel the DVT and PE of myself is secondary to M. Howeve, I do not know this and am always cautious not to assume anything. This is my speculation on my blood. posey early and got to run to get INR test- please excuse typos
__________________ posey |
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| Sorry Posey, but where are they? There used to be quite some interesting research on this forum....but...now... the way I see it...actually the theories and speculations section could be removed. Perhaps someone will look in to this a bit closer somewhere else. Kat Last edited by Katinka; December 22nd, 2010 at 12:15 PM. |
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| Saying anything except the most basic information is not something I am willing to do here anymore. There are too few real posters left on MDR. The rest seem to be selling, playing the part of a newbie or hoping to snag a newbie, as one recent but currently absent member appears to have done. The other pastime seems to be going into the archives to snag ideas to post elsewhere. Hardly worth the effort to post much here. ![]()
__________________ "Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885) |
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| There are still people here who really need information, so please Y'all don't stop posting. I know it is frustrating with the charlatans and people out for a buck. These people are really sad. Some want to rip very ill people off with a miracle cure and some want to make fun of us thinking we are not really ill, but delusional as the quack doctors suggest. I would like to see more scientific curiosity in the medical community. Please take the time to find out if the new people are real. I came here for support a while back and have been very glad I did. I wouldn't be alive right now if I hadn't. Quote:
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| There just aren't a whole lot of posters here anymore, period. There were sure a lot more when I joined last spring. And why might that be? Some of us are still stubbornly reading, and posting, and not going away even though we 1) still consider ourselves newbies compared to a lot of you, and 2) have nothing to sell, and 3) don't have an axe to grind. The reason there are so few posters is that there are so many arguments. It's hard for a brand-new, or even a not-so-brand-new person to take the site seriously when there are so many arguments and so much animosity. I think some New Year's Resolutions are in order. Then there'll be more "real" posters. And if people become afraid to say what they think, or don't want to post anything other than the "basic" info, then what's the point in the forum? Why bother? |
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| As many have stated some of us do need this site. Too get the help we need. I have gotten such good advise from nice people. and I wasnt even sure in the beginning what this was all about. or what I had so many doctors and prescriptions. later. I have learned quite a bit from a lot of you. and I thank you didnt know plain salt or destin or tea tree oil even existed too treat this. thank you thank you. sammyl |
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| It's all about focus. Are you focused on helping yourselves? Or are you focused on being "The Savior"... the One who is right? Personally, I like to read everything... but I am not real popular here. We need to focus on what is important and stop the infighting that persists. ALL opinions should be welcome... if the post is repetitive... then comment.. don't try to destroy. A Mother of 4 small children under the age of 9 died yesterday, four houses away. She was 41 had a brain anyuerism and the little boy called the Dad at work and Said "Daddy.. Mommy won't wake up". About a hundred people were at the house today, it's so very sad. I did not know her personally but have seen her build her life and love her children in the 9 months that they have been nearby. I am devastated that I did not take the time to say hello. What kind of human beings are we? We are ill, all of us but WE FIGHT AND SNIPE and to what purpose? HELP and comment but stop this madness. If you think something is commercial then say so politely. Let's stop trying to decimate those who disagree. God Bless You all. Merry Christmas and A HAPPY HEALTY NEW YEAR FOR US ALL! |
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| Good post, Lamb. And I for one, don't care about the scammers, the charletons and the opportunists. I'm an intelligent adult and I don't need to be protected. If I fall for something on the internet, knowing full well that "too good to be true" probably isn't, then it's my fault, not the fault of the forum owner or mods. My suggestion is that they simply pull the offending threads. No explanation is necessary. But stop all the fighting and very public police-ing of posts. And let's get back to regular ol' discussion. There's no reason why disagreements with treatments or theory should be so volitile. Simply state the case and let it go. And if I get banned for saying so, y'all have a merry Christmas! |
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