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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| Please share your ideas on how you contracted this disease....here is mine: Lived in a house with a few roomies for about a year. During that time, one of my roomies began showing all the symptoms. i had no idea that he had Morgellons at that time since his many doctors including Stanford diagnosed him with DP. i thought he was crazy too until i began to notice fibers, black specs and biofilm throughout the entire house. i frantically began my research which is how i learned all about this hellish disease. I shared this info w/ him but was in complete and utter denial. This resulted in a huge argument and me moving out. A little over a year has now passed and it has only been a few weeks since my symptoms began. I moved back in with my mother and sister and hope to God I don't infect them. |
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| I think you should talk with him and apologize, if you feel like you owe it to him...what would it hurt?? Im guessing he needs someone to stand behind him for support as you will feel the same soon enough Im sure I know how alone I feel surrounded by people! My symptoms began 5 mths ago and my husband was leaving me & filing for divorce bc he sd I had lost my mind! I was devestated but the Lord must have laid heavy on his heart and just tonight I sat him down to discuss with him how I'm feeling everyday for 5 mths. Some days are better than others but the days that are bad are REALLY BAD & thats when I dont want to go on. This is a HORRIBLE disease... Good luck and God Bless |
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| The longer I think about it, the more I wonder if I wasn't an asymptomatic carrier for a long time before symptoms began. At first I thought I got it on vacation a year ago when I stayed the first night in a not-so-clean Bed & Breakfast. I became symptomatic by the time I came home ten days later. Then, I thought maybe it had been my dog. She'd had two tick-borne diseases when I adopted her 3 years ago. I used to let her sleep with me and she tracked all kinds of black things into my bed. But a couple of weeks ago I remembered a friend I'd had years ago, in the 80's and 90's, who had gone through a horrendous experience of feeling bugs crawling all over her. She saw every kind of doctor you can imagine and was diagnosed as delusional. She actually had been mentally ill when she was in her teens 25 years earlier. She'd also been through emotional hell as an adult; she'd been stuck in Tehran, hiding out in a hotel, during the revolution. After 6 months, she was sneaked out of the country by friends of her husband. It took its toll. I thought she had a nervous disorder. Finally she went to an endocrinologist and whatever he did gave her some relief. I spent many nights at her house when my husband and I were separated. I haven't talked to her in a long time, but I wonder if she has morgellons and if I caught it in her home. That would have been in the mid-1980's. That was about the time I started having tiny red spots that look like fresh blood but don't bleed, eczema, phantom mild itching, and moles, all of which I chocked up to a med I was taking for tumors at the time. So I don't really know. It could be none of the above. |
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| I have no frickin idea how I got Morgellons... Maybe a mosquito in Telluride, maybe a spider bite in Santa Ana Pueblo, maybe walking on a beach near San Diego 25 years ago that had hazmat teams with full body suits telling us to get off the beach, maybe because of my dna. Maybe because of my high vibrational level. Maybe it has to do with genetics & our cellular structure (thin walls, I am of German & viking descent). Personally, I believe "M" is man/extraterrestrial made, and feeds on toxins. My daughter has "M" too, but I don't think I have passed it on to anyone. We are both very healthy now. Please pay attention to the food you eat. GMO foods are bad. The government is spraying us with toxins Aerosol Crimes Pesticides, pollutants, nanotechnology, pharmaceuticals, water... it is overwhelming what we are putting into our bodies. yukbugs, please come back and let us know how you are. Some of us are doing much better now. Hope I didn't freak you out. There is a lot of helpful information on this site. In the white light, ~jonsi
__________________ There is a reason I have "Morgellons". Helping and teaching others how to survive in our toxic world may be the reason. Hang in there everyone who has this. |
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| Hello. Im new here & to be honest I wish I didn't need to come to this site as Im sure the rest of you sufferers feel the same but who better to seek help from other than from people who experience the same things....And a big sorry in advance for rambling ![]() 5 mths ago I was pulling weeds from under a friends plants while she was watering what I had already done. It was 10 pm out in the country by the reservoir & all of the sudden I felt like I was litterally being shot by a bb gun repeatadly. I was screaming and she started spraying me w/ the hose but seems it was too late bc 4 days later I had sores on my face, chest, arems & legs. As I walked past the mirror I felt a tickel on my face & I see what looked like a very thin black worm headed straight for my eye I tried to grab it w/ tweezers but it went into a sore right next to me eye! Hospital assumed fly bites after that I got REALLY SICK & honestly I didnt expect to wake up any morning after that morning! I thought that was the end! I had a fever of 103 for 2+ wks, my ears would ring every time I stood up to the point I felt like my head was going to explode they also drained and smelled horrible, I was seeing "stars", couldnt eat bc of vomiting, rash & sores all over me, extreme fatigue during the day & insomnia @ night bc of the feeling of "bugs" in my viens litterally mad me feel like I was crazy! Thats when the "dirt" specs started showing up ON EVERYTHING and red & blue glitter everywhere. 90 degrees outside & I had on long sleeves, pants & a baseball cap to go to my kids soccer game w/ a beach umbrella bc the sun & heat made evrything worse I would blister almost instantly & the specs would burn my skin. I was terrified to hug & kiss my babies for fear that they would catch whatever I was dealing w/! Then on w/ the long road...3 visits to the med clinic,1 to a dermatologist, 2 visits to physicians & 1 last visit to a diff ER while my 7 yr old was in my arms bc she was trembling uncontrolably w/ fever after tylenol & a cool bath of 102, the nurse @ the desk asked me "I dont know what you want or expect for us to do for your rash & shes prob just got a cold but Ill go ask the doctor if he thinks he should see you!" I dont know that Ive ever been so angry in my life! They have no idea what this is like!!! All but 1 doc diagnosed me different the 1 doc sd "I can tell you what you dont have but Im sorry that I cant tell you what you do have!" How devestating & they get the big $! Not 1 doc ran a single test! So of course to my husband I look crazy & to my family I must be on drugs! Now 5 mths into this of course I cant clean enough Ive been throwing things out of the house, vaccumming 3 times a day as well as try to go to work & care for kids & husband while on my "death bed"...Im exhausted! The other night my 5 yr old baby cried when I put him to bed that he didnt want to sleep in his bed bc bugs were biting him! I dnt talk about it around them they just know mommy's sick I dont want them to be scared. But both kids now have "sores" just a few tho Ive managed to watch them like a hawk bc God forbid they get as bad as I am! I currently have I would guess 75+ sores plus scars! I had breast augmentation 1 1/2 yrs ago bc of my low self esteem and now well...I look 100xs worse than I did before it! I was almost fired from my job bc I was so sick, we've spent so much 4 on pesticides, herbal remedies, over the counter meds & cleaning supplies & NOTHING has helped! I was treated for scabies more than once even tho they all assured me it wasnt scabies, 4 diff antibiotics & anxiety meds...Final diagnoses Folliculitus! I almost gave up and sd to hell with all of it but my babies need me & its my duty to fight & stick up for them so thats what I intend to do!!! Oh & my husband has read a few articles & he seems like hes starting to come around thank God bc I already feel so alone! I almost lost EVERYTHING! I will be looking into contacting our congressman & Ive already contacted a few local tv shows in high hopes that I hear back from them! Does anyone have any other advice or suggestions Im desperate for the sake of my babies PLZ help if you can! Thanks so much! |
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| Hello... Your story is heartbreaking and yet it sounds like many other stories we've all heard here. You are in great company on MDR. There are some mothers here who have shared the same experience that you've described and come through it with their health and sanity. Carla, Jonsi and KCKC, just to name a few. I'm sure they will offer some sound advice. I am a single guy so I haven't had the child morgie experience. Recovery and remission are possible though. Many of us are so much better, maybe not cured, but again, remission is possible. I have heard of many mothers using an enzyme cleaner to treat their children, even to the point of putting some in a small spray bottle and giving this (along with some simple instructions such as none in the eyes or mouth) to the small child to treat herself. Enzymes are safe and effective and in my experience provide IMMEDIATE relief for the "biting" and itching that especially occur at night. They work because of enzymes such as chitinase, protease and cellulase affect both insect chitin and fungal chitin which some people believe are implicated in the biting sensation. This is not a cure but an effective tool in an arsenal that you will need to utilize. Topical treatments will not be enough in themselves... but they are a great start. In addition to this forum, I have a page on my blog Morgellons Aid that has many suppliers of different enzyme products and some suggestions for use... including a few recipes for homemade enzyme. Enzymes & Skin Morgellons Aid Good Luck and God Bless You. Xiblanque There are some great posts here and this forum is an excellent place to meet others and ask questions. ps... I think I either got this immediately upon moving into an "infected" house (bedbugs and/or mites), or I had slowly been creeping towards a tipping point that I reached upon moving there. Last edited by xiblanque; November 18th, 2010 at 04:14 PM. |
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I go for NO 4 evil nasty Pakistani landlord provided second hand bed,,,,,,,,each time i was laying on it i was itching,,,,,,, I know it started from there.......one of those chinese futton sofas full of threads inside ....... and oh guess when i got sick i told him next time before letting the property check the bed properly let your mother sleep on it,,,,,,, if your mother survives then it is safe for everyone else....... treat others as you would threat your mother........... he got pissed and evicted me ......... stealing everything from there......... I was in agony........ and guess what.......... his mother died soon after that........ coincidence or wot/////////// I know there is a justice..... in this world and it works in mysterious ways xx Last edited by Dzana; November 18th, 2010 at 05:05 PM. |
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I think it is out of control now it is everywhere..... ![]() |
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