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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| Has anyone been to Marc Neumann's site lately? He has latest updates posted and this is one of them: May 10, 2010 - FIRST GERMAN LYME CLINIC THAT ADMITTS MORGELLONS!! I asked Marc if I could copy from his site for personal info and he said yes. Since I do not have his permission to post from his site to anywhere else, I do and will respect him. The link is: Latest Morgellons news - latest Morgellons-Research updates Marc Neumann So now it looks as if he has them wrking with him. Marc has more interesting and informative info on this page of his. posey
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| Katinka I'm very interested in the Lyme/Morg clinic in Germany that you have attended. Is it the one in Augsburg? Can you give me any info on the treatment you received and whether you would recommend it? Thanks Chica |
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| Hi Chica, Hope you are good. That's the clinic that tested 5 of us for Borrelia, C.pneum and babesia. The only positive results were related to red and white cell function - low CD57 + NK cells in particular. Those that had been infected the longest had the lowest CD57+NK counts, showing immune system disfunction. The thoughts from Dr Stricker and Dr Schwarzbach are that this indicates chronic Lyme disease. Some Drs in UK are not drawing this conclusion as yet, due to other possible explanations. Jo |
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| Hi Jo Thanks for that info. Did you all go over to Germany? Also did they give you a treatment protocol similar to Katinka ie antibiotics, antifungals etc. If so how are you all doing on it? Having had this for a while now I guess my CD57 + NK count will be pretty low. Not sure it's worth going over to Germany just to be told that!!!! Thanks for that Jo. Chica |
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hope you are doin ok. We all had blood draw in London on the same day and fedexed to Germany - apparently the blood needs to be fresh <24hrs. None of us tested for any of the lyme related bacterias, so no antibiotics. I have had soo many in the past from Dr Wright in Bolton, inc ivermectin. I'm doing alot better (minimal white particles and fibres/good energy skills) with an anti morg diet, an active life and salt becoming my bestest daily friend for skin detoxing. Bye for now Jo ![]() |
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| Hi Jo, glad you're doing better. I'm wondering though about the Lyme test. Are you saying that none of you have tested positive for Lyme's or co-infections?...hmmm...and what about your CD 56/57 counts? Or do you think the blood didn't make it on time?....What did the docs say?..strange, really strange... Kat |
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Hi ya, hope you are doing well Kat. The bloods got there quick. All 5 of us were tested for Borrelia, C.pneumonia and babesia - all negative. The only positive results were related to red and white cell function - low CD57 + NK count was the only significant deficiency. Some low hemocrit/hemoglobin scores but not dramatically low. All were analysed at the Lyme Clinic in Germany and reports via Dr Schwarzbach. Jo xxx |
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| I'm glad you're doing better. I remember you telling me Dr Wright prescribes Ivermectin, and it put me off seeing him. Don't want to take it unless I have to. I'm feeling soo much better than I did a few months ago. Similar to you as I'm trying to eat well and have been taking loads of supplements. Plus drinking lots of green tea and organic apple cider vinegar. My energy level is up and I'm seeing way less white fibres and particles. Maybe the cold weather is helping!!!! Keep well Jo and thanks for all your help. |
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