Calling the CDC

[lostintime]

When calling the CDC do not be ignored by a recorded message.
Call a live person.
Please be nice to this person as he/she is only working in a call center.
State your concern and / or request but be nice.
These people have to document your call in the system so please do not make them angry. We need the documentation.
800-CDC-INFO
(800-232-4636)

The morgellons community has been ex communicated with a pathetic claim for a study. A study that cost 380k. That is an insult.

Our second ex communication is a recorded message.

I don't know if the CDC and the medical community at large really think we are skin pickers and tweekers or they just don't care.
The 380k was only to appease the 40 or so in congress that requested they look into the matter. They did that. Badeep Badeep Badeep,Thats all folks.

This institution works for your tax dollars.

I have personally sent emails to my congressmen, senators and the President of the United States and requested a response.
I have called and made appointments with my congressmen.
I have registered on https://centernet.okstate.edu/morgel...gistration.cfm
Registration Page - Morgellons Research Foundation®
I have called the CDC and registered for email feed back on this matter.
I have spoken to the CDC call center and my request was documented.
I am now writhing hand written letters to all of the above.

Many of you spend countless hours searching the internet and reading blogs.
Right now I would like each and every one of you to put a post it note on your PC that reads FIGHT BACK.
Each day make contact Wright a letter, send an email.
Please be respectful when making contact with all of these people in positions to get things done.
When you run out of people in your state contact another state.

Now you may say "I have done that before". Well do it again and again...

The media jumped on this a few years ago but now that’s all forgotten. People are not concerned as it is out of sight out of mind.

Don't forget the AMA. Doctors need to be held accountable too.
https://extapps.ama-assn.org/contactus/contactusMain.do

Be active in this fight. Don't sit back and say...They won't do anything anyway. With that attitude they won't and we have enough government employees coasting on the tax payers dime.
I assure you they would like you to just go away and hang out on blog sites crying about your lot in life.

Start today, start now.

Read my story at Morgellons

[KiraErikson]

When I've got the energy, I contact pharmacists, coroners and vetenarians and tell them about Morgellons and how it can kill people and pets. They're often more receptive. The more people curious about this disease and on the look out for it, the more answers we'll get in recognizing and treating this disease in the long run. I personally don't think the CDC works for our taxes. They serve other people and causes (such as bio warfare research).

[KiraErikson]

When I've got the energy, I contact pharmacists, coroners and veterinians and tell them about Morgellons and how it can kill people and pets. They're often more receptive. The more people curious about this disease and on the look out for it, the more answers we'll get in recognizing and treating this disease in the long run. I personally don't think the CDC works for our taxes. They serve other people and causes (such as bio warfare research).

[lcuevas6]

The NIH(National Institutes of Health) had a website back in July 2007 that mentioned the CDC as a point of contact regarding rare diseases regarding Morgellons. Well, that same website no longer has any mention of the CDC as a point of contact it was dismissed as an error but I retrieve a photo copy of the website in its original state through some of my wife's research at Morgellons exposed but I can not post it because I do not have the required 15 post yet. If you would like a copy PM me and I will sent it to you or you can try and find it at "Morgellons Exposed" website.

I have to agree with you that 380 thousand dollars doesn't even give you enough money to even start a study it is a slap in the face. But lets not fool ourselves, Who do you think controls what the CDC does? The government. What a surprise! Do you think that maybe they do not want us to find out what is really going on. You are right about not mistreating the people that my answer the phones when contacting anybody regarding Morgellons. Thanks for the info.

[janedoe]

your complaining about the amount the CDC wants to spend? or you kidding me? you FINALLY get them to listen and start research, but oh, no, thats not enough money? jeez...if there is something more, then they will allocate more money, you just want stanninger in on it..and thats not gonna happen..
but if they are willing to look into something and your STILL not happy? why not? what are you not happy about? how much do YOU think it should cost AND WHY?
ps.. stop saying it kills pets, theres no proof of that anywhere...THATS what makes you sound crazy..
some of us know whats going on, others are simply complaining because maybe they dont want to be cured, if they arent sick, then what will they complain about?

[combatentomologist]

I agree with Kira, You draw more flies with Honey than Vinegar (why anyone wants to draw the flies but us silly Entogeeks, I'll never know!) I Had a surprisingly affirming experience confessing to a brand new (to me) new Psychologist that the main reason I was feeling 'stressed' was because of the increasing alienation I felt subject to as I sought treatment or support for this Syndrome. Even upon finishing saying the sentence out loud in the Doc's Office I sarcastically rolled my eyes - feeling I knew what was coming.....

She had actually never heard of it.


She questioned and then listened and asked even more discerning questions as she took notes here and there before our conversation concluded she summed:

"Geez, you would think more people would want to get to the bottom of this if there are as many people affected as you say. No Wonder you are Stressed!!!"


Yea! NO WONDER!