My families story the short version

[lcuevas6]

My wife and I have had Morgellons since 2004. There is so much to say and too much to write. My wife is in very bad shape. She does not leave the house unless it is to a doctors appt. and even then it is getting more difficult to get her to go. Her lesions(over 100) seem to correspond to me going out into the public and coming home only to reinfect her. Of course, over the years these are just ideas and beliefs one puts together for lack of any other possible answers. We live in an area were chemtrails are constantly being drop which I am sure that the chemtrails add to the problem. In the beginning, I, her husband had broke out with all the symptoms that everyone complains about. So for about 2-3 years we spent most of our time cleaning each others lesions. So tedious and time consuming. My symptoms seems to have gone into a remission stage. I know that I am still infected. Just look a your hairbrush after brushing your hair, look at your blood under the microscope, or take the black light and turn it on yourself and you know that although the lesions are not present I am not in the clear. It is difficult to watch my wife suffer everyday not really having any companionship. Of course, I spend a lot of time with her but she needs more friends. We also have a daughter who was born in 2004 and she shows no signs except the white fibers that we find in her hair when I brush it. Thank God that she is free of lesions I would not know what I would do if she broke out. One thing I have noticed over the years as people lose family members, jobs, houses, and friends including myself is that there is a big need for those that are infected and are barely hanging on to hope and have nobody to turn too. We as a new community need to come together more. I know that there are a lot of brilliant minds out there my wife being one of them. Those minds need to come together. I going to purchasing a house not very expensive but with many rooms where those that do not feel that have anywhere to go to can still be part of a family. Of course I wish that I could help everyone but I will try and do what I can. I am about 6 months away from starting all this with Gods help. I know that I have read in some of the threads were people have called each other on the phone just to wish them well or have a few kind words. I think it is a great. Sorry, for the rambling now, my mind is wondering, to much to say and can not seem to organize my thoughts. I would appreciate your thoughts. God bless everyone.

[Baraka Obam]

you know she can be helped, but just what can be done. You know at one point I just went into the ocean salt water and rubbed these things while in the water, mind you it hurt real bad as I was not gental. Here is the wonder of it, the lesions on that are were wiped out pretty easily, but then after this I was burned badly on that arm and low and behold they came out again. What was the real surprise, the other arm which had not one tiny spot as of yet opened up also with some monsters.

I do not know why the womans body is so prone to getting like this, maybe, JUST like cancer it has a predisposition to hormone types. Just a guess, but its kinda a guess that has relavence in cancer, these are not really lesions, they are tumors. what part of the country are you located in anyway.

[lcuevas6]

To answer your question we are from the Palm Springs area in California. I remember when my wife and I realize we had Morgellons we were living in San Diego. I remember that I always felt that taking a dip in the ocean would help. Of course we tried salt water back then and did get a big reaction. I was just telling my wife that I think she should try and take a dip in the ocean. We have tried just about everything except the ocean. I am sorry it did not work for you. I will try and get her to go.
I had heard and I can not remember where that some of the Morgellons are DNA specific(weapon) that got out of control and because they are able to mutate so quickly and adapt to their changing environment. I know that they play off our emotions. I remember my wife and myself had a sudden surge of adrenaline due to a scare and you would not believe what came out. The only way I can describe it is small clumps of cotton candy like fibers that came out of are bodies and this happened more than once. It could of been isolated incidences but I don't think so. Well thanks for your input. I appreciate your work on the site I read more than I write. I'll pray for you and all others that are suffering and hope that there will be a solution in the near future.

[Baraka Obam]

if you were both scared at the same time maybe your adrnilin had somthing to do with the instant growth. I did not say the salt ocean water did not work, on the contrary it worked pretty well in a way. I actually dug the lesions out in the salt water in one arm. you can feel how tough the stuff is.
It was a wonder that I did not have sharks looking for a meal while I was doing this, the lesion/TUMORS are fed by a vein so they are engorged with blood and bleed like mad. I even had one take squirted as my heart beat. Maybe the lesion/Tumors have a valve and this one was stuck open.


I always was completly relaxed after a swim in the ocean, what causes that I do not know, maybe a bit from the salt and a bit from the current of the earth when you stand in the water, who knows but it causes very deep sleep just like the foot ionic baths. When i put my feet in there and hook up the wrist to the little wrist thing you can feel some times the tingling inside of spots that were lesions but are areas still suspect in not being completly destroyed.

Hope you and your wife do go down to the beach, you may forget how refreshing it is.

It seems no matter how far I went down the beach when i was covered with lesions and wanted to be alone, here would come a family with a frisby a kickball, a boom box and plant their bottoms on top of my encampment, want to talk about disdain, LOL. Give me a firehose.

[posey]

Hello lcuevas6,

What you plan to do is absolutely wonderful. I know of no one in my area who has this and I am just like your wife. Going on 2 yrs. now, I have gone no where except maybe to run to the store quich and I don't even like that.

I too can't stand to go to Dr. appts. I have not seen grandchildren for 2 yrs. because everything about this disease is an "unknown". At least to the best of my knowledge there are no absolutes, that is except for one:.

I'm not preaching now, I'm speaking for myself. If it had not been for my Faith in Jesus Christ as my Lord and Savior I would have been dead since about 4-5 months after I discovered for sure what was going on with my body. I would just sit in a dining room wooden chakr all day, afraid to even move. I didn't want to stir up any dust by moving.

I still get some bad days but then I remind myself that I am not alone. Although I can not see Him, He is with me. I pray daily for strength to deal with it if I must endure it. I know that this world is not my real home so I try fast forwarding my brain and think of the world to come which I will be a part of because I am a Christian.

Before this "stuff" started moving on me I began a Bible Study at home via DVDs by a theologian. I like to think God gave me this hunger and thirst to know His word so I would have strength to deal with what He knew was in my body.

I love Jesus Christ and continually tell myself that what I am going through is absolutely nothing compared to what He went through for things which I did.

I'm glad you found MDR. There are alot of good people here such as Baraka. If your wife would like to talk to someone, send me a PM with your phine no. or I'll send you mine so she can talk when she is up to it. I feel so bad for her. I don't know why but I have not had the lesions; yet. However, I do have the white spots on me just as if I di d have the lesions at one time.

May God bless you and your family,

posey

i didn't spellcheck so disregard typos

this is a very lonely disease

[lcuevas6]

Thank you for sharing with me and my family. We too are God loving people. I would love to PM you with my number. We are actually moving to the east coast in the next few months. My wife wants to be closer to home either Virginia or North Carolina. Her family lives there. I am so sorry to hear of your pain and family situation. Yes, you are right about this world only being a temporary stepping stone. There are many things that I am thankful for but when I am feeling discourage and human the thought of Jesus and a better place keeps me going. I hope to talk to you soon

[lcuevas6]

Hey Baraka,

I glad to hear that the ocean did work. But you know what I mean when I say that it works temporary. Most of us would not be on the site if it really worked. We are all trying to find relief even if it is for a short while. Ultimately, we would like to eliminate the problem one step at a time. Enough people communicate with one another and the smart people might be able to put two and two together. My wife is the genuis(literally) and I am trying to get her to join or write. She has valuable insight and Ideas that I think can be helpful.

[posey]

lcuevas6 .

One day not too long ago my family had one of the every Summer weekend family gatherings. They go out on the Mississippi with pontoon boat and stop at sand bars or dunes then come back in and have supper together. Its the whole family from all generations.

As usual, I was home. This particular time I got a pity party beginning in me; not big, just teenie weenie. Then I thought of something and convinced myself to smile. I had been thinking of my home as a prison, which in a matter of speaking I guess it could be close to being it.

However, even though I am not a criminal, I then told myself how awful it would be to be in a "real" prison!! I then decided I had it pretty good.

Ya know, one can always find something which could make a bad situation worse. A good many innocent people are in prisons all over.

Can you tell by my post that I talk to myself alot?

posey

[lcuevas6]

We all have a few good memories we can always fall back on when things get tough. Being in prison isn't just a location it is a mindset. Hey it's okay to talk to yourself as long as you don't get responses without anyone being there

Have a great day! Someone is thinking of you.

[belle9]

You sound like a very good man, much like my husband. The loneliness is the scariest part. I never thought I would be sort of agorophobic but I am. It is so much effort to go out and I itch and have to pick "things" off me and doing that in public, well...you get the idea. My lesions are small at the moment but whatever is hopping around is scary and disgusting. I'm glad you found this group and yes there are people who will help you and that are better.