CDC's Scientific report on Morgellons is done

[DonArmogi]

Originally Posted by fritolay66

Herpetic dermatitis, anyone?

Actually Sky, I believe us lesion sufferers suffer from Dermatitis Herpetiformis. I have been studying and treating this for a couple of months. This is a dermatitis similar to herpes lesions, but they are not formed from the Herpes Virus. The name only denotes a likeness to the Herpes Virus. The actual lesions are result of eosinophils, neutrophils, (both of which contain numerous granules and degranulate in immune response), and IgA depostion in the skin. It is symmetrical.

Pharma treatment is Dapsone. Herbal Treatment is PABA.

Notice PABA is another B vitamin or Vitamin Bx. The leaky gut resulting from the celiac in which forms lesions and immunilogical response in the intestines and ongoing damage from the aformentioned, in which destroys all the B vitamins either made or absorbed in the body.

Cytokine responses.

Secondary infections of the lesions.

Malnutrition or malabsorption, anemias, inability to fight infections resulting in chronic infections, multiple infections.

Bacterial translocation of enterobacteria and also including those of staph and strep.

Dermatitis Herpetiformis is Celiac Disease which manifests in the skin. It manifests in the junction of the dermis and epidermis with IgA depostion in the papillae.

Celiac will explain the bacterial translocation, the entero-bacteria from cultures, Klebsiella, E-Coli, yadi ya as well as cultures of the lesions in which nothing can be found.

Also found in those with DH are thyroid issues, such as Hashimotos. Lymphomas and adenomas are a common results of unresolved Celiac and DH. Diabetes.

Gluten, Gliadin, and Transglutimase all fall within Celiac and DH.

It explains quite a bit to my own personal case.

For those interested in more information, look at the pathways of methylation, folic acid and vitamin B12, transsulfuration pathway, Serotonin and Dopamine pathway, the urea pathway, and how the Krebbs cycle also falls in to this arena. When you look at all these pathways, it becomes very apparent how intestinal disease results in the demise of the affected.

I have been wanting to post all this info for quite sometime now. But I am so far into it, that I didn't know where to start. Certainly don't want to hijack this thread, but since it was mentioned, thought I might too.

Frito

I went to Bikram Yoga, which is a 90 minute long 26 posture continuous exercise system done in 105 degree room, as they had a special $30 unlimited month which would ordinary cost $200 and after being there for a session thee days in a row, I felt that yoga heals better then anything else. After a month, I'll see if it really does. It should. I talk to real people and people of the land say that it is nature that is good and that all this materialism is the destruction of the planet. It doesn't have to be Bikram's Yoga but he does have a good system. Mind and body are what will cure you. Study mind and focus it in the right way, study body and focus it towards health.

[fritolay66]

We moved discussion over to the Methylation thread.

Just for clarification, Dermatitis Herpetiformis and Herpetic Dermatitis are two different conditons. DH is not viral.

And thank you for your compliments.

Frito

[tcmgpt13]

Hi Sky,

Don't feel bad about hijacking the thread. I think a few of us here did that. Sorry Anna.

Yeah, I think DH could be an issue for some, but probably is not the only cause of our symptoms. I think viral infections could be a big issue as well, especially those which are of the herpes type. These also may cause lesions and scalp issues:

some interesting suggestions for our scalps (permalink 6)

About the little black and brown specks. I think some of it could be from parasites (their waste products) and some of it could be tiny insects. Certainly I used to have some of them move when I treated some of those light brown spots on the skin. They would emerge and start crawling and biting as well as causing itching. I think there is much to be learned about what Morgellons is.

See you on the other thread, but just thought to give a couple quick answers here. I have long suspected a connection to gluten sensitivity and DH for some who have lesions, especially those with thyroid issues, but causes for lesions will probably be more than just that issue.

Acyclovir did dry up all the lesions I had which were caused by viral infections the doctor found by testing. I have been on a gluten free diet for at least seven years now, but I still became sick with morgellons and developed lesions over a year later. I still get some too and they have evidence of visible parasites though these have become smaller over time. I believe those caused by the herpes viruses have stopped forming, but I could be wrong about that too.

DH lesions can look like herpes lesions, but are not supposed to be caused by herpes infections. Who knows though, really knows though whether all types of viruses can be ruled out? It's always possible that DH has a connection to an as yet undiscovered viral infection of another type entirely. The two large studies on chronic fatigue will probably explore the connection of chronic fatigue to a type of retrovirus. It's always possible that new information will revise current thinking about DH and Celiac disease.

BTW thank you for the compliments on my earlier DH and Celiac disease posts.

Originally Posted by skylark99

Frito, TC, since the hijack is already underway, I will interject to say that it is rare that I have the honor of reading posts like yours. Brilliant and insightful, well thought out. I have no doubt that Herpetic Dermatitis is the cause of such torment for many posters on these types of boards.

HD is very likely responsibe for some people with skin and scalp problems that primarily present as lesions and itchiness, with stinging and piercing sensations. The stinging sensations often seem like 'bites' but are actually tiny thorn-shaped structures embedding themselves in the dermis as the HD spreads. This is a variant of the herpes virus, I think I read.
Frito? TC? comment?

I myself have small brownish-black specky things that come out of my scalp lesions. It's not the specks that are the problem -it's what's INSIDE them. These move swiftly toward eyes, nose, mouth, ANY skin surface, and bite or burrow in. The bite is horrendous.
It is like having a flea circus on steroids living in my scalp. Torture day and night, non-stop. When I try to eat, they fall out of my hair like pepper into my bowl, or my cup. They are all over my clothes, my house, from my shedding them everywhere.

I have lived with this for a year and a half, I never sleep anymore, I hardly eat. I am near at the end of endurance, to be honest. To have this is the worst thing I have ever experienced,. To have doctors refuse to look at my scalp or what I am showing them and simply label me as delusional, is devastating. At 55, barely five feet tall, after this, I find that I am afraid of absoutely nothing. Hell would seem a picnic compared to this.

Maybe I don't even have Morgellons, since I don't have fibers. I don't know.
Do I want the CDC to 'report' that Morgellons is HD after all this time of waiting?
No.
We already know aout HD, what is missing is doctors being educated to recognize and treat it, and treatment is available. Some say that olive leaf powder works very well along with acylovir (spelling?).

I would like the CDC to tell me what small horror riding my scalp, that is resistant to all chemicals and herbs that I have thrown at it, really is. And how to kill it.
(rant over)

That said, it remains that understanding the sequale of symptoms resultant from HD is important for those afflicted as regards the restoration to full health. All illness has consequences beyond the presenting symptoms, and affect many organ systems, sometimes beyond allieviation of symptoms. I also agree, that restoration of healthy physiologic processes is vital to ensure no recurrence of illness. We are only in the infancy stages of understanding the human immune system, and both your posts have added to that understanding immeasurably. Thank you.

Sorry for the hijack, everyone.