Sent Home from work today

[Steve Frey]

Well this could be a first! I'm not hiding what I have because I want it gone. I'm not afraid to tell the world about it because this disease needs the attention of the top doctors and scientists. But today I was sent home on an involuntary paid leave of absence because I have Morgellons! My employer is going to continue paying me for atleast a month, he really is a great guy just concerned for his other employees. So what now? I see no way in getting disability insurance or S.S. for something unrecognized by the mainstream medical community. I hope I'm doing the right thing by being so vocal, but it looks like it's going to cost me my job if nobody can cure me or assure that it's not contagious.

[Steve Frey]

Well this could be a first! I'm not hiding what I have because I want it gone. I'm not afraid to tell the world about it because this disease needs the attention of the top doctors and scientists. But today I was sent home on an involuntary paid leave of absence because I have Morgellons! My employer is going to continue paying me for atleast a month, he really is a great guy just concerned for his other employees. So what now? I see no way in getting disability insurance or S.S. for something unrecognized by the mainstream medical community. I hope I'm doing the right thing by being so vocal, but it looks like it's going to cost me my job if nobody can cure me or assure that it's not contagious.

[standswfist]

Geeze....what if a co-worker decides to come down with the fiber frenzies. Can they actually "sue" you? Or do they have to have proof, first?

And the so called physicians who do not deserve to put their wicked hands on innocent people and F--- with their lives.

Isn't it pathetic when human life can't hold a candle to many peoples prize possession...$$$$$$.

[standswfist]

Geeze....what if a co-worker decides to come down with the fiber frenzies. Can they actually "sue" you? Or do they have to have proof, first?

And the so called physicians who do not deserve to put their wicked hands on innocent people and F--- with their lives.

Isn't it pathetic when human life can't hold a candle to many peoples prize possession...$$$$$$.

[Franky]

safrey what did you do? Did you announce at work you had morgellons? And what was your reasoning behind it?

[Franky]

safrey what did you do? Did you announce at work you had morgellons? And what was your reasoning behind it?

[Steve Frey]

I'm going to try to answer your questions by condensing my story as much as I can. Besides the fact that I really need to vent right now I feel it necessary to tell the whole story in order for you to understand how my employer became aware of my condition. Sometime ago, in excess of 13 years, I began having problems with my feet, I'll spare you the details, just things I thought were unusual, then I began noticing the faint "trails" in my skin, on my hands and nose. Nobody else could see what I was talking about, but I knew something wasn't right. Then 13 years ago I had my first major lesion outbreak on my waist, saw a doctor who advised me to stop wearing underwear due to the contact with elastic. I had no idea then that the lesions were associated with the "trails". My problems with my feet continued and I eventually sought help from three doctors with no luck. Then I got a computer and began searching the Internet. By that time I was noticing the fibers in my feet and I searched every corner of the Internet for answers, I read a little bit about every skin disease known to man, and there was absolutely nothing. Over the years my feet problems continued and I suffered at least three more episodes of lesions on my ankles which I associated with contact dermatitis to the elastic. Then right before christmas last year I had another major outbreak of lesions, this time on my wrists. The condition got so bad that the doctor was shooting me up with steroids and I was missing time from work. I had bought my daughter a Digital Blue microscope for christmas a year or two earlier and I decided to take a look at some skin from my wrists and bam, there they were, fibers, lots of them and colored ones too! So again, I searched the internet using the words skin and fiber and I couldn't believe what I was finding, information and tons of it. I was elated to say the least, to finally know that other people were experiencing the same thing I had for so many years. So the need to talk to friends and co-workers about it was overwhelming as well as the need to explain to human resources why I was missing so much time from work. I'm an honest straitforward person and I told them what I knew. Since then my condition has improved to a degree and I'm not missing work anymore but I kept talking to co-workers about my pro-active involvement in finding answers. Being the longtime sufferer that I am I know that I can contribute valuable information. So talk being what it is the owner of the company caught wind of my condition and the possibility of it being contagious. Since our work involves installing equipment in food and beverage producing facilities he feels that the risk to his company and employees is just to great to ignore, and I can't blame him to be honest with you. I've worked for this employer on and off for over 10 years and I'm a very valued employee, proof of that is the fact that I received a $5.50 an hour raise just a few months ago. To date there has been no one complaining of morg symptoms but that doesn't surprise me since I think one could go years without noticing the sometimes faint symptoms and with the medical societies ignorance to the disease. So here I sit, wondering if I can be cured, wondering how I'm going to make a living if I can't. I have an appointment on the fifth of April with one of the doctors on the board of the Morgellons Research Foundation. I am going to ask for the most aggressive treatment available, I assumn that would be the iv like Lady Colorado has. I will keep you all posted on that topic. Over the next month I plan to be as aggressive as I can be in seeking answers to this disease. I am willing to offer my body to science and will fly anywhere as long as I don't have to foot the expense. I plan on contacting universities and forwarding the pics of my incredible specimens that I obtained when they somehow penetrated the lates gloves, that's the only way an amature like myself could have obtained such specimens, and a topic that's probably going to turn the medical community on its head. I want to thank you all again for your support, this website has given me a place to talk about something that only you guys can relate too. I think the time for the world to acknowledge this disease is coming very soon

[Steve Frey]

I'm going to try to answer your questions by condensing my story as much as I can. Besides the fact that I really need to vent right now I feel it necessary to tell the whole story in order for you to understand how my employer became aware of my condition. Sometime ago, in excess of 13 years, I began having problems with my feet, I'll spare you the details, just things I thought were unusual, then I began noticing the faint "trails" in my skin, on my hands and nose. Nobody else could see what I was talking about, but I knew something wasn't right. Then 13 years ago I had my first major lesion outbreak on my waist, saw a doctor who advised me to stop wearing underwear due to the contact with elastic. I had no idea then that the lesions were associated with the "trails". My problems with my feet continued and I eventually sought help from three doctors with no luck. Then I got a computer and began searching the Internet. By that time I was noticing the fibers in my feet and I searched every corner of the Internet for answers, I read a little bit about every skin disease known to man, and there was absolutely nothing. Over the years my feet problems continued and I suffered at least three more episodes of lesions on my ankles which I associated with contact dermatitis to the elastic. Then right before christmas last year I had another major outbreak of lesions, this time on my wrists. The condition got so bad that the doctor was shooting me up with steroids and I was missing time from work. I had bought my daughter a Digital Blue microscope for christmas a year or two earlier and I decided to take a look at some skin from my wrists and bam, there they were, fibers, lots of them and colored ones too! So again, I searched the internet using the words skin and fiber and I couldn't believe what I was finding, information and tons of it. I was elated to say the least, to finally know that other people were experiencing the same thing I had for so many years. So the need to talk to friends and co-workers about it was overwhelming as well as the need to explain to human resources why I was missing so much time from work. I'm an honest straitforward person and I told them what I knew. Since then my condition has improved to a degree and I'm not missing work anymore but I kept talking to co-workers about my pro-active involvement in finding answers. Being the longtime sufferer that I am I know that I can contribute valuable information. So talk being what it is the owner of the company caught wind of my condition and the possibility of it being contagious. Since our work involves installing equipment in food and beverage producing facilities he feels that the risk to his company and employees is just to great to ignore, and I can't blame him to be honest with you. I've worked for this employer on and off for over 10 years and I'm a very valued employee, proof of that is the fact that I received a $5.50 an hour raise just a few months ago. To date there has been no one complaining of morg symptoms but that doesn't surprise me since I think one could go years without noticing the sometimes faint symptoms and with the medical societies ignorance to the disease. So here I sit, wondering if I can be cured, wondering how I'm going to make a living if I can't. I have an appointment on the fifth of April with one of the doctors on the board of the Morgellons Research Foundation. I am going to ask for the most aggressive treatment available, I assumn that would be the iv like Lady Colorado has. I will keep you all posted on that topic. Over the next month I plan to be as aggressive as I can be in seeking answers to this disease. I am willing to offer my body to science and will fly anywhere as long as I don't have to foot the expense. I plan on contacting universities and forwarding the pics of my incredible specimens that I obtained when they somehow penetrated the lates gloves, that's the only way an amature like myself could have obtained such specimens, and a topic that's probably going to turn the medical community on its head. I want to thank you all again for your support, this website has given me a place to talk about something that only you guys can relate too. I think the time for the world to acknowledge this disease is coming very soon

[deluded]

Originally Posted by safrey

Well this could be a first! I'm not hiding what I have because I want it gone. I'm not afraid to tell the world about it because this disease needs the attention of the top doctors and scientists. But today I was sent home on an involuntary paid leave of absence because I have Morgellons! My employer is going to continue paying me for atleast a month, he really is a great guy just concerned for his other employees. So what now? I see no way in getting disability insurance or S.S. for something unrecognized by the mainstream medical community. I hope I'm doing the right thing by being so vocal, but it looks like it's going to cost me my job if nobody can cure me or assure that it's not contagious.

Safrey... In my opinion, which isn't worth much these days...it is very nice of your employer to give you one month of pay while you are off...I hope you don't sign anything to the effect of it being severance pay...you are being dismissed on the grounds that it is a medical problem, so whether it is recognized or not, you should be eligible for disability, because your employer took you(involuntarily) out of work...whether or not this is a DISEASE recognized by anyone...you should have the right to file for disability...because we all know that you won't be cured in one month...you may start to get better, even with IV drugs, but as Lady C's doctor told her, she will probably have to be on them for at least a year...and that being on the IV drugs would work 5X faster than the oral regimen...correct me if I heard you wrong, Lady C...anyway, kind of like going through a divorce, your employer is very nice now, but when it comes down to it, he will be looking out for number one...which in my opinion, is exactly what you should do...don't think that he will stay that way, if he has to end up paying you for longer than that one month...I am doubtful that he will be so nice about it...ask about disability pay, and don't be afraid to file for it...you have been there enough time to get it, and if for some reason you are not able to work, you would be eligible for S.S. disability after being off for 6 months, and then for medical retirement through your employer, possibly...check into your options before leaving there without a job to go back to, and whatever you do, don't agree to quit, and then be without anything...just my opinion...but hopeful that you check it out before getting too involved in turning the medical community on its ear...that will come too, but, beware that they may also give you a diagnosis of DOP in a heartbeat...I hope not, but even though the evidence is something that YOU think speaks for itself, you will have a hard time making others see things the same way that you do, and if you haven't had a diagnosis of DOP yet, it is like a chain reaction...one says it, then so does the next....I am open and honest like you are, and it got me no where...except for on antipsychotics and a doctor telling my family that I should try electric shock treatments for my depression, and that I needed to check into the psych ward...so be very careful in what you say and who you say it to...I wish you luck in all of it...we are here to listen...hope you have more luck than I have seen so far with this disease....By the way, I couldn't download the video for some reason...got an error...Kentucky haze

[deluded]

Originally Posted by safrey

Well this could be a first! I'm not hiding what I have because I want it gone. I'm not afraid to tell the world about it because this disease needs the attention of the top doctors and scientists. But today I was sent home on an involuntary paid leave of absence because I have Morgellons! My employer is going to continue paying me for atleast a month, he really is a great guy just concerned for his other employees. So what now? I see no way in getting disability insurance or S.S. for something unrecognized by the mainstream medical community. I hope I'm doing the right thing by being so vocal, but it looks like it's going to cost me my job if nobody can cure me or assure that it's not contagious.

Safrey... In my opinion, which isn't worth much these days...it is very nice of your employer to give you one month of pay while you are off...I hope you don't sign anything to the effect of it being severance pay...you are being dismissed on the grounds that it is a medical problem, so whether it is recognized or not, you should be eligible for disability, because your employer took you(involuntarily) out of work...whether or not this is a DISEASE recognized by anyone...you should have the right to file for disability...because we all know that you won't be cured in one month...you may start to get better, even with IV drugs, but as Lady C's doctor told her, she will probably have to be on them for at least a year...and that being on the IV drugs would work 5X faster than the oral regimen...correct me if I heard you wrong, Lady C...anyway, kind of like going through a divorce, your employer is very nice now, but when it comes down to it, he will be looking out for number one...which in my opinion, is exactly what you should do...don't think that he will stay that way, if he has to end up paying you for longer than that one month...I am doubtful that he will be so nice about it...ask about disability pay, and don't be afraid to file for it...you have been there enough time to get it, and if for some reason you are not able to work, you would be eligible for S.S. disability after being off for 6 months, and then for medical retirement through your employer, possibly...check into your options before leaving there without a job to go back to, and whatever you do, don't agree to quit, and then be without anything...just my opinion...but hopeful that you check it out before getting too involved in turning the medical community on its ear...that will come too, but, beware that they may also give you a diagnosis of DOP in a heartbeat...I hope not, but even though the evidence is something that YOU think speaks for itself, you will have a hard time making others see things the same way that you do, and if you haven't had a diagnosis of DOP yet, it is like a chain reaction...one says it, then so does the next....I am open and honest like you are, and it got me no where...except for on antipsychotics and a doctor telling my family that I should try electric shock treatments for my depression, and that I needed to check into the psych ward...so be very careful in what you say and who you say it to...I wish you luck in all of it...we are here to listen...hope you have more luck than I have seen so far with this disease....By the way, I couldn't download the video for some reason...got an error...Kentucky haze