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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| so, i don't really know where to post this, or even if i really should post it, but i'm doing it partly out of guilt to the people i havent responded to for a few weeks....i'm still here, but really not doing very well. i am still getting these horrible twitching, crawling feelings in my stomach, as if something is moving around in there, with a lot of constipation and i'm getting severe headaches (sometimes a stretching feeling around my head and sometimes sharp pains coming up the back of my head) with that weird crawling feeling inside my scalp still. i did start seeing a private doctor a couple weeks ago and im currently waiting for him to tell me it's ok to move into the next stage of the protocol he has laid out for me. i did find out from the doctor that i have borrelia spirochetes in my blood though (which doesn't necessarily mean i have lyme disease, just that i should be treated as if i do have it) and another parasite as well. i am also still getting weird tingling and numbness is my face, neck, head, and occasionally my arms and legs and my muscles feel jerky sometimes, for lack of a better description. there are also a lot of other things i've been feeling as well, but i don't really feel like posting them. regarding my baby...i don't know if i'm pregnant anymore. it's a horrible feeling, but i have a feeling that all of this was just more than my baby could take. has anyone else gotten those weird sensations in their head though? i mean, ones that started out as a digging feeling, as if something was trying to dig into their scalp, or is that just me...? it's been really scary for me and i'm just curious to know if anyone else has felt this and if so, did they figure out what it was and how to stop it because right now, my mind is running in a million different directions and i'm not sure how much more of this i can handle. anyway, i hope everyone is on their way to recovery, and my prayers and thoughts are with all of you ![]() |
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| glad your here, sorry your going through so much, wow, i cant imagine going through this pregnant! luckly, my boy is 23 and im not having anymore babies..hang in there, try not to overthink it so much, get your mind on some kind of project, if you sit around all day worrying about symptoms, you only get worse..be strong, you can do it!!
__________________ love me or hate me, you WILL remember me!! |
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| Hi Whrk, Good to hear from you again. Sorry u r feeling so poorly tho. I haven't had those stomach feelings. Well, sending you a hug!!! Fracty |
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| Hi there whrk, Been wondering where you had gone, so very glad you have let us know you are okay. Sorry to hear you've been feeling ill though. I sometimes get a pressure sensation around my forehead. As you say it feels like something is being tied around my head. Sometimes it feels like something is swimming in the area just above where my nose stops, between the eyebrows. I have had my head feel sore in the back, but no shooting pains. My scalp gets sore sometimes around the top of the head too. If I scratch it will sometimes bleed. I used to get what looked like flat worms, but I no longer see them or the round worms I saw a long time ago. Sometimes it feels like something is crawling just beneath the skin, but I figure this could also be the nerves reacting to the viruses which hide in them. In all though my scalp is much, much better than when I was first sick. I have been rubbing some epsom salt into the scalp when I shampoo it. Since doing that my scalp no longer itches (it never itched all over my head, just in the areas which have been sore). I used to get bad stomach aches, but the latest herbs I have used seem to have stopped that. I have passed a lot of what I think were parasites since using them. Parasites can cause stomach aches and if they are alive in the stomach I imagine they could move and create the sensations you are describing. It has only been since using these particular herbs that the stomach aches stopped. Using Ivermectin did not seem to help that symptom. Whatever this is I feel is hard to control using standard Western medicine anthelmintics. Anyway, so glad to hear you have a doctor assisting you in your treatment. You may get to the bottom of this yet. Meanwhile hang in there. Remember we are all still here despite our weird symptoms, so try not to panic. tcmxxx ![]()
__________________ "Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885) |
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| yes wrhk I feel the same things. I feel like my head is itching and when I itch it I can't feel anything. Its like the itching is underneath my scalp and I can't get to it. I too feel like my muscles or skin is stretching them trying to expand or move and believe me the pain is unbearable. My eyes are always red, my whole head, neck, shoulders hurt me so bad that it makes me sick to my stomach. My mouth is full of them and I think that the reason why i notice them more in there is because the mouth you can stretch and then they pop out. Where there is a curve or a bend that is where they try to continue to go move but can't and you see them pop out. I gargle with the teapot with salt and rinse my nose and throat with it. So yes I experience the same things as you do. ty |
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| whrk The epson salts seems too have helped me also still have the black things and my eyes are bad by evening. amoxcillian helps but should not saty on it forever. going back too the derm next week and have appointments with an eye doctor in the next month its just doctor after doctor grabbing at straws |
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| Hi, for those of you with them in your mouth, try brushing your teeth with the salt and baking soda. I did this for months and no longer find them in my mouth....at least not lately. I am sure there are other things you can use, but this is cheap and handy for most people. I also use listerine for a rinse and gargle. DD |
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| everytime i brush ( everyday ) i pour a bit of hydrogen peroxide on the brush,on top of the toothpaste.. helps to whiten teeth too.ive been lucky so far, no nastys in my mouth..
__________________ love me or hate me, you WILL remember me!! |
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| I soak my toothbrushes in peroxide, then knock off the excess before I put the (all natural) toothpaste on it. When I'm done, I rinse my toothbrushes then put them in fresh peroxide. SS |
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| got my first one in my mouth.. pissed me clean off!! but i found that they HATE anbesol...hehe...
__________________ love me or hate me, you WILL remember me!! |
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