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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| Get off your a**. Write a 5 sentence paragraph in Notepad or Word on your computer. Save it. Then go to every website and news organization that has written about Morgellons. Copy, Paste, and send via email. I have begun to send the same email daily to Boxer, Feinstien, Schwartzeneger, Obama, the CDC, NBC, SF GATE, CNN, and a few others. Oh, and my local congress rep. for my district. Most are people that have already written or commented on Morgellons. No, I have not gotten any replies. BUT, as I have the internet's independent dated documentation of being blown off by these douche bags, it validates and confirms the lack of follow thru by the media, our government, and Kaiser Nor Cal. Kaiser cashed a check from the CDC to investigate this disease, but the rest of Kaiser is doing nothing for it's members to further research or even treat them. KAISER did what the CDC paid them to do, now with the full awareness that something is up, Kaiser goes back to 10 minute visits and delusions. ALL OF US WANT TO GET THIS INFO OUT THERE. SO COPY AND PASTE EVERY DAY. SAVE THE EMAILS IN YOUR YAHOO ADDRESS BOOK. B safe and B a B*tch or nothing gets done. Sincerely, Anna R Key Last edited by Anna R. Key; April 11th, 2010 at 05:26 AM. |
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| Anna, you may want to send a copy of this abstract to those you are writing. This was posted by Venetia and has some information which is very interesting to our cause. It is only one person, but finally shows an organic cause to our illness. I think this could be the area of the body from which our symptoms generate as I am getting very good results from using traditional Chinese medicine (TCM) which are treating both the large and small intestine long term. Since starting them several months ago I have had no new lesions form. I am not saying it is the cure, but this certainly indicates one area of the body which needs to be be looked at more thoroughly than it has been in the past by doctors. IMHO it is gut issues which are at the root of this problem and which allow this disease to progress systemically in the body, to include leaky gut, celiac disease, candida and other issues of this type. AMA confirms Morgellons Systemic- origin in gut
__________________ "Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885) |
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| Hi Anna! Carla, the forum moderator, took the word 'CURE?' out of one of my threads - hopefully, that won't happen to you... Morgellon's Disease : Heath 'Care' (+ Food + Drug) = In Need of Reform | Change.org Anna, Rock On! I'd get some others to do whatever you're doing and maximize your efforts. I always think - if it's worth making sure my own politicians or media know about an issue, others likely need to do the same - let's share and help each other's efforts. I'm about to start a nonprofit and donate Morgie care, I'm working on attorneys for Pesticide Litigation, DOP Medical Malpractice, I'd like a Congressional Hearing into the CDC's inaction for 8+ years and I work a non-fun day job to pay the bills (BOO!) - but Anna, if you are Organizing Morgellon's Activism - please let me know how I can help ![]() The more the merrier, baby! |
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| Somehow I don't think using the word "cure" here means Anna is hinting she has a cure or is outright claiming there is one. Certainly there has been no sales pitch. I am pretty sure that members here can see the difference between those who could be selling products on MDR along with some pretty strong claims for a "cure" vs someone who just wants people to write to public officials asking for help in finding a "cure". ![]()
__________________ "Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885) Last edited by tcmgpt13; April 11th, 2010 at 11:18 AM. Reason: add quotes around the word "cure" |
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| I have wanted to wright sombody in public office but have trouble organizing. I like the idea. I would caution people sending lenghy long drawn out letters with a bunch of stuff cropped into it. Good strong information is best. NOT THEORIES. Keep it simple. Make a few bullet points and keep it direct. Short and direct works better with legislators. They won't spend a lot of time reading gobbly goop. Don't be affraid to put you name and address on it. They will or should reply, it just takes time. |
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| Anna, u r so awesome!!! You are a fighter!!! It's ppl like you who push/inspire us and stand up for those of us who feel weak. This is great! |
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