AMA confirms Morgellons Systemic- origin in gut

[Venetia]

http://download.abstractcentral.com/...oofs/P984.html



Abstract P984: Small Bowel Capsule Findings Suggest that Morgellon's Disease has an Organic Basis and is Not Psychosomatic in Origin
Type: Abstract

[livewell]

V

Subject line says AMA? I don't see anything here about AMA? Link doesn't seem to be complete either

Didn't Dr. Amin share something like this?

Livewell

[kmar]

This is really good research.

Thank you for finding!

Going to read more!

[Venetia]

Thanks, Kmar! I thought the info was outstanding as well. Seems to line up with the work
of Hilde Staninger. She mentions the 'gut' frequently.

This is what the various groups have been striving for- AMA acknowledgment.

Livewell:


American Medical Association - AMA was used in the very small caption box in order to
distinguish that the information came from a source that is affiliated with mainstream
medicine as opposed to another source. American College of Gastroenterology.

IOW- it gives the information credence. It is not a vendor hyping a product.

The link is what I found when I clicked on Google.

There is a lot of information there. It is the first article/abstact that I've read in nearly
10 years of searching that confirms (clearly states) that 'M' is not DOP. DOP has never been an
issue for me but it is for many people. Confirmation from a medical source is awesome for them.

Additionally, the information states that 'M' is not a skin condition but rather:

1) It is Systemic

2) Plant/vegetable matter/material found along with fragments of black material found in gut 'capsule'

3) This sufferer was examined for an unexplained iron deficiency- anemia

The burning question for me today was 'Is iron supplementation needed or to be avoided'?

As an aside, I heard from a woman several years ago, a 'M' sufferer who told me that she was much improved
after her doctor gave her iron. I've suspected for years that I am anemic because my nail beds are very light under the fingernail which is a sign of anemia.

Diseases that show up in your fingernails

Because of the recent posts on various boards re: iron, I searched for an answer, having read both sides
of the debacle.

The above link is a result of that search.

~V~

[Venetia]

Hi Fracty,

You are welcome! I was glad to find this info for many reasons.

From what I understand, the abstract was presented at a conference, October 27, 2009.

Daniel C Chao presented the information and David Cave worked on the paper as well.

The PDF header: The Premier GI Clinical Event of the Year

GI= gastrointestinal

This is not a full abstract. I haven't looked for one yet and won't have time to look with the holiday
planning and preparation.

http://download.abstractcentral.com/...oofs/P984.html

Abstract P984: Small Bowel Capsule Findings Suggest that Morgellon's Disease has an Organic Basis and is Not Psychosomatic in Origin
Authors: Daniel C. Chao1, David Cave1


Presenter: Daniel Chao, University of Massachusetts Medical Center

I don't see a mention of parasites.


~V~

[tcmgpt13]

For what it is worth, I recently experienced some bowel obstruction which has been taken care of by TCM herbs. I was in some pain over the holidays and doctors could not treat this problem to my satisfaction so I went the herbal route. The strange thing is I did have a very dark stool once before starting the herbs, not tarry but very dark. After the herbs were started to clear the large intestine I slowly improved, but when I stated that I was now experiencing hard stools a formula to treat the small intestine was added. It turns out that both these TCM formulas have herbs which treat parasites. When the second formulas was added I had a lot of what looked like round worms in my stool. There was also a lot of whatever in the stool which I did not recognize. I just knew that it was not a normal stool.

In TCM it is known that parasites, especially ascaris parasites, can obstruct the small intestine and this herbal is frequently used to treat parasites as well as constipation. Without these herbs I think I would have been much sicker and without the help I really needed to clear the bowel obstruction. I do not believe I am anemic though I do get tired easily. This has been true since I was first sick with Morgellons. There is no indication of anemia from blood tests, but maybe I should ask that more in depth testing be done, since I have been even more tired since I was ill.

I have long wondered if dematitis herpetiformis is involved with some who have morgellons. Since the food we eat is being tampered with as far as the weird proteins which are being inserted into them, it would stand to reason that those who have any food allergies or sensitivity to gluten proteins would suffer substantially as the gut is being continuously barraged by proteins to which some people are allergic or just plain cannot digest.

Here's a brief discussion about dermatitis herpetiformis (another form of celiac disease). The article is more in depth for those who want to read about it. :

Dermatitis Herpetiformis

"The histology of the intestinal lesion is virtually identical to that seen in celiac disease, although villous atrophy and inflammatory infiltrate are generally milder and often clinically insignificant in DH. Administration of dapsone or other sulfones often relieves the skin itching associated with the skin lesions of dermatitis herpetiformis.

Diagnosis of dermatitis herpetiformis depends on the presence of the characteristic skin lesions and demonstration of IgA deposits in the skin. Although many patients have minimal or no gastrointestinal complaints, an intestinal biopsy generally reveals intestinal involvement."

Another thought, those who are hypothyroid will also frequently suffer from anemia if they are untreated. I think many who have morgellons either are hypothyroid or borderline hypothyroid and would perhaps feel somewhat better if treated especially if there are also other symptoms indicating low thyroid (not just anemia of course which has many causes, not just low thyroid). Too frequently women who have symptoms of hypothyroid are dismissed and ignored because their TSH tests are "normal."

Personally I have been leaning towards a gut involvement in my own case and have been trying to avoid gluten grains (though who knows given the roulette the food chain has become) and using probiotic foods. So I hope that more is done in the future to determine what is happening to the intestines of us Morgies.

[sarothra]

I really want to send a copy of this to my "physician", (yes the quotes are intentional) - The last time I went in there he again suggested Orap for me. I said I absolutely will not take an anti-psychotic because there is nothing wrong with my thought processes. I asked him if I had ever exhibited psychotic behaviors and he said "No." So HOW CAN THEY RECOMMEND A PSYCHOTROPIC DRUG?

I go to a M.D. now who uses alternative therapies (the vitamin C iv, the mineral iv, testing for food allergies, health-promoting herbs/vitamins).

I can't thank you enough for finding this! I wish I knew more about what these "capsules" are so I would know how to treat them.

Best regards,

sar

P.S. Hi TCM! I wanted to answer your question from another post - yes I do think there are nematodes in my scalp. I can't explain why the cells don't show up, but I still believe it is some freaky frankentrans nemawormfiber drinkyourblood thing. I've seen so many things talked about on this board about what this "thing" is, it makes my head swim, but I know what I SEE and experience.

[Venetia]

TCM,

Thanks for the informative post! I never heard of Dermatitis Herpetiformis before and
your link was very helpful. Much appreciated.

Sar,

Thank you for your enthusiasm about the material in the abstract. I also felt it would
be of great value to sufferers but never thought about the paper being used against the
DOP docs.


I'm so very glad that the information will be of help to you-


~V~

[livewell]

Originally Posted by Venetia

Thanks, Kmar! I thought the info was outstanding as well. Seems to line up with the work
of Hilde Staninger. She mentions the 'gut' frequently.

This is what the various groups have been striving for- AMA acknowledgment.

Livewell:


American Medical Association - AMA was used in the very small caption box in order to
distinguish that the information came from a source that is affiliated with mainstream
medicine as opposed to another source. American College of Gastroenterology.

IOW- it gives the information credence. It is not a vendor hyping a product.

The link is what I found when I clicked on Google.

There is a lot of information there. It is the first article/abstact that I've read in nearly
10 years of searching that confirms (clearly states) that 'M' is not DOP. DOP has never been an
issue for me but it is for many people. Confirmation from a medical source is awesome for them.

Additionally, the information states that 'M' is not a skin condition but rather:

1) It is Systemic

2) Plant/vegetable matter/material found along with fragments of black material found in gut 'capsule'

3) This sufferer was examined for an unexplained iron deficiency- anemia

The burning question for me today was 'Is iron supplementation needed or to be avoided'?

As an aside, I heard from a woman several years ago, a 'M' sufferer who told me that she was much improved
after her doctor gave her iron. I've suspected for years that I am anemic because my nail beds are very light under the fingernail which is a sign of anemia.


Because of the recent posts on various boards re: iron, I searched for an answer, having read both sides
of the debacle.

The above link is a result of that search.

~V~

V, I agree with everyone, Great find and thank you for adding more links. I also agree acknowledgement from the AMA is something long strived for. Does this abstract published in ACG mean the AMA acknowledges Morgellons as systemic? I just don't know how that works. Can you explain it please?

Thanks again for the links
livewell

[Jo]

Great find Venetia, thanks for posting.

Distended abdomin is an early sign for some.

Vegetable matter found is an interesting one. Cellulose comes to mind. Produced by agrobacterium maybe?? OR analysis and obs says cellulose, which could just as well be chitin instead.

The hypoalbuminemia isn't consist with Harvey et al morg case definition, but the ANA being negative is.

Its a start!

Jo xx