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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| Hello everyone, I haven't posted in a long time. I just stepped away from the internet because I felt like researching and listening to people and trying all these treatments that didnt work for me but rather put a deep hole in my pocket was driving me more insane than how I already feel. I am now coming to the year mark of this horrible ordeal. I still make people itch their face and their scalp, rub their nose, and at times sneeze, and in fact I think I make myself do the same thing too, if that makes any sense, as I rub my nose because I feel like something is flying (like when you rub your face in a fur jacket and the fur gets caught up in your nose), and I sneeze and my nose is runny as if I am allergic to myself. I get less of the crawling feeling over my body although it still happens. However, the crawling on my scalp/hair is relentless. It feels like something is slightly grazing at my hair and moving it. Also, I still get the stinging sensation as if I am being bit in my scalp, and when I shampoo or brush my hair, whatever is in my scalp/hair will sting my feet too. When I rub my hair as well, I will get a stinging sensation on my hand or get tiny cuts on my hand. Whatever is in my hair/scalp definitely attracts gnats/fruit flies/tiny black flies, as they are constantly following me, landing in my hair, etc.. Another key point is that my hair is full of these tiny threads and dust. They are wrapped around my individual hair strands. I use a lice comb and every time, the lice comb is full of fuzz and these threads. If I were to shake my hair puff of these dust like threads would come out. Same goes for all of my clothes, my shoes, and all of my belongings. If I were to shake anything I owned, puffs of these dust like things would come out. Since the sun is coming out these days, you can clearly see these things even as I am walking. I even have it on my eyelashes and eyebrows. I also feel movement in my eyelashes at times and I know it is these things that are causing the flickering movement. When I am talking to someone, I will see these white dust threads coming off of me and landing on the other person. I feel that these things are what is causing people to itch around me and scratch their face, neck, and scalp because it makes me itch as well or at least gives me the crawling feeling. I notice people scratching more when my hair moves so I am sure it is these dust threads that are flying off to them. No matter how much I vacuum or wash my clothes, it will not cease. I also did an experiment. I bought some clothes, made sure there were no dust, no flying lint, etc, then left it in my house for a couple days, took it outside, and shook it and what do you know dust galore. I dont know where these dusts threads came from. I know for sure I didnt have it before, and now I feel as though I am engulfed by them. I have an Hepa air filter going on at all times so whatever it is just multiplies in great amounts. I know this sounds insane, but my dog is also affected by this, as she will scratch to no end and rub her body on the floor and sneeze when around me. How do I know? Well, a couple of months ago, I did another experiment and gave my dog to someone else and asked them to keep an eye out on the dog to see if she scratched or sneezed etc.. That person said no. As soon as I came to pick her up she started scratching her ear, nibbling at her back as if something was biting her. In any case, I gave up my dog because I couldnt put her through any suffering. She was constatnly scratching sneezing when I came home from work, and shaking her body all through out the night as if trying to get somethign off of her, and she couldnt sleep. The person who now takes care of her says that she doesnt act that way with her. I have tried all treatments, even plastering myself in oil for a couple days from my scalp to my feet and it is still ever so present. I have tried vitamins and internals but it hasnt stopped this mess. Anyone else still facing this, faced this, or have fixed this? ps: For people who have black specks. I too had black specks coming out of my skin when rubbing lotions and whatnot but I took oral antifungals and that went away. |
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| Hi pleasehelp, I just adopted a cat and now she has the black specks coming out under her chin, so yeah (no!) you aren't insane in thinking that our pets can get "M". I'm going to start spraying her with bug arrest. It works! Welcome back! A lot of us old members are doing a lot better. I have no symptoms now except for a few small lesions.... I've made too many posts, they are in the archives, & I'm tired of repeating myself ![]() I'm glad to see you back on this site. There are a lot of new members here!!!! Peace, love to you, In the white light, ~jonsi
__________________ There is a reason I have "Morgellons". Helping and teaching others how to survive in our toxic world may be the reason. Hang in there everyone who has this. |
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| Jonsi, Where have you found the best deal on bug arrest?
__________________ "In a time of universal deceit, telling the truth is a revolutionary act." ~ George Orwell |
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| Please help, I had many of the same symptoms you mention. The only thing I did not notice was the part about making ppl itch. But when it was really bad I stayed very far away from everyone. I would not even see my family I was so afraid of infecting them. And it is perfectly reasonable that your dog would get the infection as well. This is a real illness - parasitic of some sort even if they are nano parasites (but I think they are both). I hesitate to tell you what worked because I knwo what you mean about trying all teh stuff that does not work and wastes your money. Also, I would be very selective about who's advice to follow. When I first got here I noticed some fo the ones who were the most vocal at saying what was and was not OK are not really what I consider to be well at all, despite claims to the contrary. I'll just say a quick temporary help for the hair is to plaster, i mean PLASTER it down w AquaNet hairspray so it is like a football helmet. That is hte only thing I could do at first to keep it from biting and stinging. I also took antibiotics taht helped lots, and I did a very full course of holistic things, but more than what I see most ppl mention. IF you want to know more specifics you can either message me or ask me here and I will try to think of anything I did that might be helpful for you. Good luck to you!! Please keep us updated on how you are doing. |
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| hope this helps.... Hi... I've been dealing with the same issues as you... I suppose most of us have... I'm kinda new to this but have found some info that I hope helps... I just found this video from the Transgenic Revolution guys.... they put out a lot of free vids... called "How contagious is Morgellons"...you can find them on youtube under transgenic revolution... or search under birdmites or superscabies... I haven't bought anything from them but they do have a lot of free info.. The jist of it is that they have a coded system of identifing how contagious a person may be at various stages of dealing with M... red, orange, yellow and green. This kinda confirmed my own observations and helped me a bit. I don't know about buying their products but it's good source of info to start with and then you can search their info here to find more direct and/or FREE sources of the same... I am personally trying more internal cleansings and diet and detox... and have started making my own enzyme cleaners from recipes I have found here. I heard an interesting quote.... something about how important it is that we(hosts) have a stronger will to live then the organisms in us (parasites). I may start another post.... Top ten professions we can do alone.....ie.. Lighthouse Keeper..lol god bless xib |
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| Hi XB, I also like this quote from my friend who is also a TCM practitioner. This was said at a time I was particularly frightened as I had huge and very weird parasites when I first got sick: "Remember you are a lot bigger than any parasites you have and you can get better." This was just enough to reassure me and I calmed down considerably after that. The best medicine was having a friend who cared about me, wasn't afraid to touch me and treated me for over a year until she moved to another state. Without this help, I would have been much sicker. BTW sounds like you are on the right track with what you are doing to improve your symptoms. It may take time, but eventually you should see some results and a lessening of debris. And please keep sharing your sense of humor and laugh when you can as that cures too (lighthouse keeper LOL). tcm
__________________ "Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885) |
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| Howdy All.. Thank you for your words of wisdom TCM. and I'm glad you can appreciate my troubled sense of humor =) My latest overwhelming concern has been the contagion factor too. I am always so worried. I don't understand how people keep co-workers, friends and families safe.... I sometimes feel that I could deal with my affliction but for the contagion factor... It is the aspect that breaks my heart the most. i thought about startng a new thread... I suspect that junior members are not allowed? could be that I'm not computer saavy enough... but I think i can ask my question here on this thread... How are "we" able to support ourselves and keep the general public safe from this affliction?? I am asking for suggestions for a legitamate job that somewhat isolates me... (like that's what any of us really need) I can get by on a moderate income... I am used to paring down my expenses... Ideally a job such as.... 1 Lighthouse Keeper. 2 Vitual Anything.... but I need real suggestions(internet jobs that are legit) 3 Stay at Home Anything.... something that is viable. 4 Outback Park Ranger... right 5 Envelope stuffer... as long as the envelopes have no cotton fiber. 6 Phone sex worker...(does anyone still even do this) 7 Telephone answering service... 8 Morgellons Drug research...Ha 9 Morgellons Research Scientist (need an excellent lab in the basement and funding) 10 ??? as you can tell I need many more suggestions.... and i really am serious. I have curbed my outbreaks but I still have the fear. I do not qualify for any kind of disablity right now... I'm trying to keep my spirits up so don't hesitate to respond...especially if you have something legit or FUNNY.I've heard that it is so important for Us "hosts" to have a much stronger will to survive than the parasites within us. Protocols help but this aspect of morgellons can be crushing to the soul. God Bless Xib |
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| They are itching because a HUGE segment of the population has this, HUGE, they do not have all the symptoms yet, but they have SOME as time goes on they will have MORE. You will be yelling at the top of your lungs nobody will help you with your fringe disease and as they get worse they will blame you for giving it to them. Don't get me wrong you may have, but not by being close to them, you may only have to touch their exposed soft tissue, but I assume this would be a hard sell, sex, kissing, hospitol stays ie used equipment, operations with infected people taking part in that operation, transfer of blood in any way, tooth brush, get real real real close and get this, fluid transfer is the best transmitter. Then even if YOU are the transmitter how available is this person or persons to instant and obvious symptoms. What grade of this disease do you have, is it a very early strain, or have you gotten the strongest mutated form of this plague. PEOPLE you gotta look back in time when this mess really happened to you, so many small things changed, look at the people in your family, mother, father, brother, sister, HUSBAND, WIFE! The results will be either less on men or the men try to HIDE AWAY their illness, women are the first to go running saying their dying, men just slump back in their greasy favorite chair, get a beer, and say its nothing, I am fine the doctor even said I am healthy as a horse. Women, start looking and examining people for teltale signs of early infestation, it may not be early but their immune responce may be better, the difference in hormone may be a reason, the difference in our sex organ alone may have a impact. here are some signs, red dots on skin, new moles or freakles, spots on scalp, small sores or spots that stay red or bleed, hair change, hair coming out, red dot or freakle, new mole on end of nose or ear lobes, tiny scabs when picked mostly on lower legs that bleed like mad, small scabs under hair on head, greasy scalp, evenly spaced small bumps on the shin bone (that alone shows how this develops on the bone. Then there are diseases that are totally connected carple tunnel, fibramialga, thyroid conditions, low then high blood pressure, LOW TEMPERATURE. This invasion does not cause one problem but many, I am dealing with all of these, how do I know, I PAY ATTENTION, I have known since I got this 38 years ago somthing was wrong, too wrong to be NORMAL. Thats it, stop blaming yourself, blame the world as it is and GREED!!!! OH YEAH if you are one that worries about pathogens and catching new problems, get rid of the filthy animals, if your not enjoy the darlins they raise your feelings of well being and may be the only animal left on the planet that you can stand, people have a way of alienating themselve from others that are screaming . I am dying, my sores are leaking toxic waste, netamodes, nana bananna juice, worms are coming out of my skin , fibers are sticking me to velcro, you get the idea, don't insist you will kill all around you with virulence and they will not be SCARED TO DEATH! Some of you even scare me, I would not want to be in the same room with all the demonds of hell exuding from your pores, even though I got the same ones, now if you said maybe my cute red fiber invaders could make friends with your little purple invaders and make christmas decoration, then, maaaaaaaaaaybe i would not be so apprehensive, LOL. Last edited by Baraka Obam; March 26th, 2010 at 02:09 PM. |
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| You could try using real olive oil (as opposed to the often fake super market "olive oil" which is often really soy oil) on your scalp and hair to stop dust and combat the bugs. If you're fortunate to live near the ocean, swim in it daily to get rid of all the bugs -- they hate sea water (which permeates your pores and washes away the bugs). My doctor gave me Eurax Creme which is very effective for the scalp. You can also use sulfa based cremes. |
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| Xiblanque, I know what you and everyone here mean about the contagion concerns. But the good news is if you follow the type of healthy things you mentioned to me I think you will improve from the worst part enough that you won't be contagious. I have not seen my family, not even for Christmas. When I first got this I think I was very contagious. When I was around ppl I just tried to keep my distance. It really freaked me out when ppl would try to hug me, etc. I was so afraid of giving them something. But once you do not have the things on you or coming off of you, I think unless it is blood exposure it is a "tipping point." In ohter words, I think they would have to be around us repeatedly, and very closely. I don't think it would be easy to catch it from me. Even my house does not have any Ms in it. But I still would not want to be around family, sleeping in their beds, etc. I just don't want to take the chance. Hopefully you will get to a less contagious point soon. Maybe you could get hired to do somehting on the Internet in the meantime???? I guess it depends on what you feel are your strongest skills. ![]() |
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| Scabs On My Scalp on RightHealth | This thread | Refback | March 28th, 2010 08:12 PM | |
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