Article

[banana]

Hi all, I go by Banana.

I have Morgellons. As of yet, I have fibers (that move...creepy) but no lesions. Unfortunately, my cognitive abilities are pretty shot. They've been for awhile, and I've accepted it. I believe you often must accept things to overcome them. That by no means entails giving up! It just means working with what you have. I know the disease will probably worsen in time, but I'm trying to enjoy the moment and not worry my life away. Coming here helps.

The aspect of the disease that worries me the most is that it's contagious. A family member of mine has told me of her recently-developed Morgellons symptoms - without realizing what they are. Part of me wants to tell her that I may have exposed her to this illness, but I fear it will only make things worse. This disease certainly raises torturous moral questions. If this illness were more widely-known, would we be quarantined? How can we be responsible for spreading something that doctors refuse to acknowledge?

Anyway, on to the real point of the thread. It's my goal to be an advocate for those with Morgellons. You can be too! Just by banding together here, we are all whistleblowers of a sort. But Morgellons is still under the radar, and unjustly so.

I've always been a terrific writer. With Morgellons, writing is harder. But I've resolved to push myself anyway. And my goal is to write a feature article about Morgellons, exposing it as the nasty culprit it is, and exploring both the denial of Morgellons in the medical world and the community of sufferers who persist in trying to find relief anyway. I've already decided in which publication I would like to see my article...and were I to succeed in getting it published there, it would reach a huge audience of intelligent and compassionate people. (I don't want to say which publication because I don't want to jinx it!)

Can you imagine the tremendous relief we would feel just to have the rest of the world gain even a modicum of understanding? Most people don't even know Morgellons exists, and when they do learn of it, they are told it's a delusional affliction. There is no justice in that. We deserve more.

So I'm asking all of you what you would like the world to know about Morgellons. How has it changed you? What has it taught you? What kind of progress would you like to see being made?

I'm just seeing what comes up before I start writing. I need to conceptualize what this disease IS - it seems like so many different things. But more importantly, I want to get a sense of who suffers from it, and what it means to suffer from it. And how to stop suffering from it both physically and mentally.

Thanks.

[Sadsack]

Banana -

Here are a couple of places you many want to look for examples of personal stories:

Morgellons mystery: Health: Self.com

Charles E. Holman Foundation

SS

[Bee]

I would like the world to know, You get it from Breathing and Eating.
Not from not washing your hands or being dirty.

[Bee]

Actually, that's how you get parasites. I think I got M from Soil & Plants.

Because my first lesion happened when I got hit in the eyebrow with something while mowing the grass,and some others by being poked by plants while yardening.

[lamb]

Bee, I agree with the Agrobacterium/Arthropod theory. I think it is contagious but only to people who have been exposed by whatever means. My husband and son now have it, but I have been sick for 15 months and I am meticulous in home/clothing/personal hygeine. I do not touch them nor they me. I spent a weekend with someone I love very much and we have barely seen one another in the past 15 months, they were guests in my home twice overnight.
Everything was sanitized, cleaned, enzymed and vacuumed on both occasions. These visits were months apart. Her young one had lice for four months undiagnosed as did other rels three years ago. We all have been very close up until my onset except for those 2 visits. Believe me I am paranoid and went ballistic to keep them safe and isolated. This crap is everywhere and for anyone who dis believes the Springtail theory, I got news, they are everywhere and can survive anything.
WE are f***ed as a species. This is likely man made in some sense, via genetic engineering, pesticidal suicide, or more likely greedy boneheaded pseudo scientists spewing manufactured crap on an unsuspecting public.