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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| I am curious how lng it took for anyone symptom free.. Along the way, did you notice things that were happening, which at the time may not have registered as being a positive sign instead of a symptom? However, now that you are symptom free for the most part and look back you are able to relate things which started happening.
__________________ posey |
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| Good question, Posey. I attribute any success at overcoming this plague to the people who have shared such important information here. The natural remedies I have learned about, in addition to the integrative practice I went to just prior (where I got intravenous vitamin C and chelation) I truly believe have made a huge difference. Sorry to take this to a tangent, but it's difficult for me to pinpoint any one particular thing that has helped. I think that barding my system with all the good things (esp. sea salt, peroxide, anti-fungal ANYTHINGS, alkalinity and even the one month of doxycycline (sp?) have played a part. I'm amazed I am even able to function and progress given the fact that I have just had verified I have severe candidiasis (which I truly believe is an integral factor in this crap) and major overload toxic levels of mercury and iron. I attribute that to the natural remedies. sorry to interject so much of my thinking here. Again, excellent question. Kritts |
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| I wasn't looking for therapies, or protocols; although that is ok too. I have seen posts where people say they are symptom free and I am wondering if during the time it took to become symptom, how long it took and if there were specific changes that were noticed that maybe at the time they were noticed they were not thought of as "good signs". However, after one became symptom free and looks back on time, their memory is jogged about changes which happened to them and now they can see that those specific changes were something positive during the process.
__________________ posey |
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| Hi Posey,,,I cant say I am symptom free(totally),,however I am over(for now) the worst part for me,,being the traveling crawling inside,,,the twitching,,joint pain,, severe brain fog,,and the live insects popping out(most bizzare).. I dont wake up to a pile of fiber wads in my bed anymore,also.. Doing anti-parasiticals ,sea salt,,and using lye soap are three mains that I can think that got me this far,,and diet too(big change). Oh and LOTS of fresh garlic,,daily!! I DO also believe that shortening my head hair(1/4 inch "buzz-cut),,shaving three times daily(face),,shaving down yonder,,due to high amounts of fake hairs(white-poly),,and "plucking" ALL other fake hairs I can find(ears,legs,underarms,ect.) After microscoping my hair,,and seeing what was happening,,I felt it was important to eliminate... For me anyway was a BIG plus.. I know this may sound strange(LOL?),,,but my computer room is built in the warehouse where all the mess on the ceiling was(webs/cobs) ,,and since gathering all this up with my drill driver thing,,and dissolving the rest,,,I can stay in there without "activating" a severe response,,triggering severe movement inside me.. The sensory attraction with this stuff is unreal...... I still have three wooden dowels of this stuff(look like big q-tips) for study,,and keep out in shed,,and when I go out to shed,,I get skin tingle,just being near it,,as I did when I was suffering badly with it,before... I am still picking out those little white sharp pills out of my skin,for the most part now,,and get a few wads of belly button fibers(not lint) after eating fresh garlic. And still get the eye irritation(floaties).. At least I can function,enough to do some work and play with my daughter.. My mom and her both have it ,,but not activly,,thank goodness... I wonder if the cooler temperatures will help us any in this? (remember I am new to this/9 active months) I could"nt have gotten this better without y"all here,,, and this site.... THANKS TO ALL HERE!! |
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| Hyperbaric use helped me ALOT, the problem is I bought one that was abused and it blew the window out. I need to get a NEW one or build one out of a compressor tank. That will be next when I get back from CHINA, I plan to go see the Chinese clinic that offered help to ONE of us free of charge, that is if I can find the fellow. |
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Kritts |
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| Hi Posey, It took 1 1/2 years of herbal treatment to get symptom free. One of the strangest symptoms we had was the wispy spider web feeling around the nose and eyes. I think that was one of the earliest signs of Morgellons and then the last to leave. Also, for me, another symptom that hung on until I took Allimax was a stiff neck. Maybe that was more indicative of Lyme disease than Morgellons-- who knows. Blue Skies..........John |
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| Wow John, my neck is just terrible and it juts outward. I absolutely CANNOT hold it up as well I am very weak in core muscles. I am eating supper right niw so this is short. I am cheating tonight and having a sloppy joe. I have been kinda depressed lately and I think this will give a boost. I don't normally cheat and tomorrow should be referred to dietician. It is so hard for me because I can't stand long enought to cook anyyhting.
__________________ posey |
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| I have noticed several strange things that started happening when I started getting better. First, the swelling in my right foot started to go down. The dark areas of hyperpigmentation grew darker. The toxins are deep in the subdermal layers and I believe look black under the skin. Another phenomena is peeling of the skin around the areas where nematodes and larva are present under the skin. The white eggs came to the surface, stuck like glue. I spend hours picking them out, basically operating on myself. These areas swell when the larva starts to grow, so when I saw them swelling I got the ole tweezers out. Yeah, I know it's not OK..... The black color of the "scabs" started to change from BLACK to a less dark black. Then the black became a dark but regular scab color, but still very adherent, like glue. I started getting Candida back under my arms and in my belly button, the usual problem areas I had before getting Morgellons. Morgellons prevents the normal flora on the skin, and I believe it competes with Candida (usually winning hands down). I started to get skin infections (yellow ooze) when I picked at a sore. This to me is more normal. Staph aureus is normal flora and will usually make a sore look somewhat yellowish. When I was really sick with Morgellons I could pick down to bloody messes all over my neck/arms/face and I NEVER got a skin infection. I never though I could be HAPPY to see yellow pus, but yes, yes I was. Very happy. Very, very happy. (Ok, I still have some obsession problems...lol) But I'm proud of my yellow wounds. They are my battle scars. Also I experienced less biting sensations, less insomnia (I was staying up ALL night, unable to sleep until 6 am sometimes, and then only fitfully). I still have the problem of excessive drooling at night. I wake up and my night shirt is wet from my slobber. I'm glad I don't have a relationship - "well, honey, I just want you so badly I guess I drool while dreaming of you..." No, it's best not to have a relationship. Excuse me I have to spend 3 hours in the bathroom now. My eyebrow skin has been peeling. Like I said, I need Neosporin, and never did before. The swellings on my head are going down but are not gone. I must say I ascribe most of my healing to supplements of minerals. god knows I tried EVERYTHING - some things helped but nothing worked like the ZINC and multiple mineral regimen. The good news is, ZINC is cheap and most people have deficiencies. Of course I take a well-rounded approach and take a Multi-Mineral Supplement too. sar Last edited by sarothra; December 2nd, 2009 at 01:15 AM. |
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