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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| Any thoughts on approaching the Biology Dept. about 10 miles from me in one of WI Universities? By thoughts I mean; would it be useless, or maybe I might get help from a Professor who likes a challenge, etc I am at a point of begging. Regarding the email address for the White House, I think we should all send an email everyday. How can anyone go to Paris to shop when so many people need help. I want my grandchildren. I miss them so much. They're never gonna know me and I might as well be dead for all they'll know of me, and they're memories of me when they get older.
__________________ posey |
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| I thought about going to our local university also,,,but with with what samples?? Me?? I dont charish the thought of being locked up for being "weird",,or disturbing the peace,,,(thats what they call it now-a-days..) CALLING some one at the University might get ya in the door,,, might get ya some results,,but I wouldnt do it in person,,but thats just me... I tried talking to someone at our local ag office,,man was that a joke.... Just hang in there Pos.. |
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| You might try contacting sadsack. I think she has taken some samples to the extension service in her state. Perhaps she might have some ideas about how to approach this issue or tell you exactly what she did. Just a suggestion.
__________________ "Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885) |
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| I didn't go myself, but I copied and pasted a response that someone on another board (birdmites) got when he sent a sample in. As I recall, he did call ahead and spoke to different departments. He located someone (in entomology, if I recall) who was willing to look. The poster thought he had mites and wanted an ID. What he got as a response was that no insects or insect parts were found, though they found fibers and plant material - including one "very pretty" blossom. A little spooky. SS |
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| I've tried contacting several biology departments and they won't touch this issue if you tell them it's related to human health. They tell you to go to the doctor!!! lol sar |
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| Human health!! They can bet it is human health. I emailed the Chair of the Microbiology Dept. to set up an appt. I'll bet I won't here from him and my thoughts are that it will be because he knows why I want an appt. I can't help but think there are so many out there who know what this really is but for whatever reason have to keep their mouth shut. It seems like some sort of conspiracy. What does it mean when there are 1000s of patients who drs won't even get close to to take a really good look at their skin? You can clearly see the hyphae growing from my head, especially because I keep me head shaved. They are of all different sorts but some are thick and as white as unpeed on snow. Pull it out and there's no root. Around this "Mother" one, there are tons more thin ones with no root. Some are curved like a hook on the end, some have a pencil dot black tip, some have glob of what looks like super glue. This is really beginning to piss me off. How in God's name can 1000s of people be denied healthcare!!!!???? It is very clear in some journals and books that fungus affects man and hyphae can grow. I am staring to wonder where the F I live anyway? Somewhere in time while I was asleep did I get put on a FU panet?
__________________ posey |
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| Posey - I know...it is horribly painful, incredible, and frightening all at once. I think there are 3 camps of doctors: The ones who really do think we are crazy because of the propaganda that has been circulating for several years now. They don't even want to get into it because of that. Then there is - I believe - a very small group of mostly dermatologists who are invested in putting out this disinformation and most likely KNOW that something is going on, just as the CDC knows. Fortunately, there is a small group of doctors who are beginning to take this seriously and are invested in learning and helping. Their numbers are slowly growing. This may be an unpopular thing to say, but I think it is important that we pick and choose what we say to doctors. WE know the true horror of this "thing", but if we share too many of the nightmarish details, we may hurt our cause. I think it is important to present ourselves as rationally as possible, and try to stick with things that doctors may be able to verify. In the beginning, I was so scared and frantic that I just spilled the beans. As time went on, I realized I was "confirming" a perception that was already out there. Now, I am careful about how much I say and how I say it. I have talked to several doctors (in the context of other medical issues) who believe me. Little by little, as we gain credibility and as research progresses, we'll get there. I wish there was a quicker way, but the only thing I can think of is if there is a sudden explosion of cases, and included in that are a good handful of high profile people who are not afraid to come forward. SS |
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| I'm not superstitious but Murphy's Law has seemed to follow me all my life. Therefore, I wanted to touch base on this thread of mine, but without any definitive answers. You got to realize Murphy's Law to understand that. I have no positive nor negative response to report back, but it was not an opened and ended experience. The very first thing out of my mouth was to "please not give me any kind of answer today, but to take time to review my literature, talk with colleagues, and really think about it." I brought large envelope full of legitimate Drs. and Researcher info to be reviewed. I left without a yes or no, but was told to email the top fungus person at the Univ., and the person I saw will be seeing him in Nov. and will talk to him about this. So, I am not expectant of anything as we all know how this has been received. But, I am not going to quit if this does not pan out. I still have a University here which also has Clinical Microbiology and is in collberation with Mayo Clinic in Rochester,MN- this is about 90 minutes from me. I will also approach Minesota State University, which has a hospital right there with it. The way we are being treated is criminal and I don't mean that lightly. Mayo has Morgellons listed n their site. Whether they are doing this to appear "friendly" is another question. But they do do research there. I can't expect anything but I can't just sit here and do nothing when these places are so close. I am at the point of begging and I am a free research tool. So, if any Universities, Researchers, Doctors, Students in Microbiology want me, come and get me. I'm ready any time. Money is no object, I'll "sell the farm" if I have to. Just please, please someone help me.
__________________ posey |
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| dear Posey, i have already told you about the GSE, have you used it on a daily continuos basis, if you had by now you would grow your hair back. My head was the pit of hell, actually used hydrogen peroxide 35% to bring out and kill the underskin tumors. GSE does work well and the results are you will get better and better, Use the hydrogen peroxide on a qtip about once a week to see EXACTLY where they are underskin, cover the whole scalp. Then you will know just where the LESION/TUMORS are. The funny stuff grows out of them. Do not go APE, start with a ammount that the skin can stand, do not force open lesion conditions. I know your situation, it sucks, not seeing the grand children is a horror in it self. Imagine staying shut in a house alone for years, seeing nobody, having family talk to you like your crazy, avoiding everyone, buying enough food for armagedone on the bad side of town at 4 in the morning so only the muggers and crack heads see you. ALONE ALL ALONE Last edited by Baraka Obam; October 29th, 2009 at 10:03 AM. |
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| Baraka, Does the hydrogen peroxide hurt? When things come out of your head, how big are they and are they lesions and how long do they stay. I have the "bugs" in my head all over, but only small rash at the base of my neck. Just wanted to say, that the only people that believe me are my good dr, who I found by way of the internet and she has me being treated by a dermatologist who believes. Not, my husband, daughters, sister and everyone else that knows. And yes I can imagine how lonely and painful being "US" is. But, I do get out, because if they do not believe (adults), then I am around them. Plus I do not care, if I have sores and my arms are all torn up. When at the worst, I did wear long sleeves shirts. Thanks for letting me have my say. And, I feel for all of you guys, because you are in the same boat as I am, or worse! Hella ![]() |
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