New update CDC

[dereck72]

In case you don't subscribe to CDC:

On September 24, 2009, CDC convened an external review panel made up of experts from the fields of dermatology, infectious diseases, public health, and mental health which examined the study activities to date and provided advice on future activities. The panel provided recommendations and guidance to CDC about analyses they think should be conducted on the data. A summary of the findings of the peer review panel will be presented to CDC’s CCID Board of Scientific Counselors in November 2009 and will be made available on this website.

In addition, results of this study will most likely be published in a peer-reviewed scientific journal and disseminated through other channels, to CDC’s public health partners, such as State and local health departments and medical societies, and through this website.

[Jo]

Thanks Dereck

Its hard to know what the outcome will be, but at least it doesn't sound like they are gonna bury it.

Jo

[Sadsack]

Well, we need to brace ourselves. It sounds like they are going to be reporting something in November, on their website and probably in a journal somewhere.

I don't like the sound of this, to be honest. It seems if they really are going to report the bizarre and widespread nature of this thing, there would be at least a press release.

The "story" is too big.

SS

[lamb]

They have to bring in "Mental Health Experts"?!!!! Move along folks.. there's nothing to see here! Except Pandora and her ugly relatives....AAAHHEMMM!

[Morgan]

Well folks I guess we will have to have the wait and see attitude once again.

It is actually the Dermatologist misinformation machine which has jumbled up, confused and misinformed the medical and public community for so long.

The "mental health" aspect of the misdiagnosis actually didn't even derive from the mental health professional community. It came from a strange pseudoscience of psychocutaneous dermatology.

Credentialed psychiatrists did not come to this conclusion. My theory is that it orignally derived from a few folks in the Dermatology community who were trying to make a name for themselves by trying to come up with a new form of scientific study mostly based on fiction.

These people could then gain fame and recognition among their peers as pioneers in new and undiscovered fields.


Delusions of Paratosis has now been removed from the CDC's website as a legitimate condition.

During a oline live chat session with the Washington Post on January 22, 2008 a dermatologist openly admitted that it cost them money when a patient comes in with a indefinable condition. Time is money is pretty much what he said.

Post Magazine: Morgellons Disease - washingtonpost.com
_____________________________________________
Excerpt from the live chat:

Quote: Grand Rapids, Mich: Why does the Dermatological community take such an antagonistic approach when interacting with patients??

Seems counterproductive.

Grace

Dr. Jeffrey Meffert: Hate to slam my bretheren but too many of colleagues have practices geared to see a patient every 5-10 minutes. It takes at least 30 minutes for the initial visit and 15-20 per follow up. They are antagonistic because, in some of their minds, morgellons patients cost them money. But that's not all of them and that's why sometimes you need to keep shopping
____________________________

Physican in turn will not be paid by the insurance carrier unless there is a "DIAGNOSIS" written down. Well, connect the dots. Throw this undefinable condition into a catch all basket of psychocutaneous mental illness and there you have it....... a quick and easy method to get on to the more lucrative aspects of liposuction. Sound unconscionable? Perhaps.
__________________________________________________ __
Medical vs. Cosmetic Dermatology article:
"New York Times"

http://www.nytimes.com/2008/07/28/us/28beauty.html

Excerpt:
Dermatology is one of the fields — along with plastic surgery and behavioral sleep medicine — in which patients are not only willing to pay for quality-of-life treatments that may not be covered by insurance, but also willing to pay much more for such treatments than insurers would pay for a medical procedure that takes a similar amount of time.

Some health insurers reimburse a doctor $60 to $90 for a visit including a full-body skin cancer check that might take 10 minutes; for Botox injections to the forehead, a doctor might receive $500 for 10 minutes, paid on the day of treatment.

__________________________________________________
P.S. I am well aware from personal experience that this is not JUST a Dermatological condition but a fully systemic, life altering condition but this is where a lot of us end up initially when our General Practictioners refer us after they cannot figure out what is wrong. THE TRAP.....of referral leading to misdiagnosis usually begins here for Morgellons Disease sufferers.


Morgan

[tcmgpt13]

I hope more with Morgellons who are seeking another opinion will see infectious disease doctors before ever entering the office of a dermatologist. While not all infectious disease doctors are that great, there may be some of them who will at least test for lyme or look for other systemic infections. Just not breathing a word about Morgellons is the safest course to obtain treatment and respect. I was able to show some tracks that these guys had made in an old scar my TCM friend treated with black cancer salve and that got me the ivermectin and even a trial of albendazole without saying much (although it did not get any testing of a new lesion I had at that time which did have parasitic involvement). Meanwhile nothing was ever said by me about Morgellons, but testing for active viral infection was done because of the many lesions (non parasitical) on my back which he saw as viral in origin. And it was.

So it is possible to be taken with respect by keeping rather quiet about the "M" word until testing the waters. My motto is let the doctor believe what he wants as long as one can obtain the medicine needed for treatment. So my diagnosis is not DOP, but reactivated herpes infection and prolonged treatment with antiviral medication and ivermectin as needed to quell symptoms (hopefully). So far so good as most of this is very quiet these days. Crossing fingers of hope that more of us will be treated with respect for our illness and that eventually whatever this is will be identified and more targeted treatments given. Also praying the CDC does not lay another unwanted b on the Morgellons community.

[ladycolorado]

As TCM said:

"So it is possible to be taken with respect by keeping rather quiet about the "M" word until testing the waters. My motto is let the doctor believe what he wants as long as one can obtain the medicine needed for treatment. "

I personally agree 100 percent with this statement and could have not said it any better myself. Very true.


(LC)

[sarothra]

This situation boils down to human nature, which has been summed up in many cliches over the centuries, such as:

NECESSITY IS THE MOTHER OF INVENTION (i.e., we're not gonna get help until someone at the CDC has HUGE LESIONS - or maybe my dermatologist - well, that's just wishful thinkin', oh I'm so evil)

THE PROFIT JUSTIFIES THE MEANS (just get the drug companies interested and we'll have a diagnosis AND a cure)

The New England Journal of Medicine reports that 9 out of 10 doctors agree that 1 out of 10 doctors is an idiot. - Jay Leno

For the unconscious infection brings with it the therapeutic possibility, which should not be underestimated - of the illness being transferred to the doctor. - C.G. Jung, Leo

sar

[jonsi]

Hi,

I think the drug companies are very interested in "M". They don't have the means to control natural medicines and make money from what has helped us "M's".

They are trying though! Health Freedom Threats: Codex, FDA, Vaccinations, GMOs :: HealthFreedomUSA.org

In the white light,
~jonsi

[gigi22]

Originally Posted by tcmgpt13

I hope more with Morgellons who are seeking another opinion will see infectious disease doctors before ever entering the office of a dermatologist.

TCM. I fully agree with this statement. I went to my dermatologist to see if I could get a skin culture. I would like to identify the fungal infection I have in my skin. Instead, she told me I had hypersensitive skin.. whatever that means.... I doubt that hypersensitive skin responds to antifungals, but she thinks that I am just getting better - it can't be related to using antifungal topicals.

I also got worse last week with the black specks, and realized one of my shower heads was filled with black mold. I tried to explain that I was purging black specks from my skin after taking a shower in black mold, and she insists that what I am seeing is unrelated to the shower - that it is normal to exfoliate debris from the pores of the skin..... She also told me in so many words that it is her job to make sure that unnecessary tests aren't run. So.. I will have to find another doctor to help me... Heck.. if I had lesions, I'd guess there would be something to culture.. but I don't.. so how do I get someone to take me seriously? This is absolutely frustrating.