Concensus of the best Drs to treat Morgellons

[fracty]

If you could pick any Dr in the US to treat your Morg, who would you pick? Who are your top 5?

I'm just curious because so many Drs. seem totally incapable of dealing w/this illness. It seems the ppl who are best are microbiologists and parasitologists.

THANKS!

PS - If your person is in the Los Angeles area you score extra points w/me. I am trying to find a Dr. who will take this seriously, accurately Dx it, and accurately treat it.)

[fracty]

PSS - Yes, I have checked all the links many times for finding doctors but without finding someone qualified.

Who ARE the best parasitologists in the US?

[tcmgpt13]

Fracty, you might look to see if there is any university in CA which has a school of tropical medicine. If in LA call UCLA and ask if they know of any school or any person who is in parasitology or tropical medicine. Also check out this webpage where you may find some leads from the links. Tulane in Louisiana for one has a tropical medicine school. I believe there is also one at the University of Miami, although I wonder if this will work (if anyone will see self referrals). There was a video of a person in South Florida who had Morgellons about two years ago. I don't think she went to the school, but went up to a University in New York (despite having pictures of parasites and actual samples to show and a husband to vouch for her she was told she had nothing wrong with her).

The problem in the US is that we probably don't have enough parasitologists, either with ph.d or m.d. degrees:

Parasitological Resources : Parasite Related Links, Journals, Schools, Books : Parasitology.com

[Baraka Obam]

There is one real good reason i would not at this point consider any doctor a expert, not that I have seen and I have seen plenty. Lets just take all the so cakked experts and put them all together. There is a pile of EXPERTS that are of varying opinions, dna infestation, nano tec, chemicals, parasites, plant or dirt disease, lymes, lets not forget the sea life infestation. I really hate to think about the last one BECAUSE they don't know what red tide is yet and I have this sneaky suspicion feeling the blood infection I have found stems from this wide spread malady of the water. I love the surf and now I am concerned, anyway, back to doctors. What testing protocal will they use,hmmmmmmm, evidently they really have nothing yet as there is NO DIAGNOSIS. If no protocall or series of tests to confirm what you have how can they say, yup yup yup your cured, cured of WHAT, and how do you know what I had. The doctors thru STEROIDS and ANTIBIOTICS all the time making me feel and look worse, when they stopped I was (THE PEPPERONI PIZZA MONSTER DEMOND FROM HELL). If you start with the doctors drugs just imagine yourself a test subject for a disease they know little about and can never know if your cured of it as they do not know how or what to test for. Does this make sence to anyone. If it does not, lets really keep a list of what people here have been diagnosed with, me for instance, I have tested positive for mycoplasma pneumonia, a positive result for lymes on one number which was 7. I have found all by my loansom self a parasite in the urine and a blood infestion, or for that matter a whole body infection of fast forming black spike's and tubes which I have also found in other morgies blood and nobody is interested in apparently because it may not fit their idea of a cause and the doctors that have seen this (videos and pictures of such stuff) GISMISS it as fillarious without a positive fillarious result. I myself think the disease hindges on this but then again it may just be another malady we are easily stricken with. It would or could explain the result of herpies that is body specific traveling thru the whole body, traveling thru the network of tubes this malady builds under the skin, in our organs and bones. Just look up , UNKNOWN CAUSE FIBROUS DISEASE or just FIBROUS DISEASE, and see so many results, fibroid tumors, fibrous material, alzhemers fibrous material, fribramialgia, fibrous lung, cystic fibrosis. I am quite sure it is the reason that cancer is set up in this system of tubes, veins, bones that are straped with this fibrous material. look for also fibrous bone, fibrous heart, fibrous liver, fibrous kidney, you will easily see there is a idea that is out of the box that holds water, HOW LONG HAVE THEY BEEN TRYING TO CURE CANCER NOW, LOL, and with what results, they are about as good at it as the Romans were in the days of Christ, when in fact, the Romans treated it the same way, poison, cut and BURN, only the items used have changed and the PRICE, the results have not. WOW, the two finger typing wonder of the world wastes his breath once again!!!!!!!!! Use your search engine if you do not believe about the so called FIBROUS UNKNOWN CAUSE DISEASES, don't take mt word for it!!!!!!!

[Sadsack]

Fracty -

Was your question asking for specific names of doctors, or specialties?

Off the top of my head, the doctors who work with Morgellons come from varied disciplines, including Lyme docs, Infectious Disease, Toxicologists, Naturopaths, and Famiy and General Practice.

SS

[Baraka Obam]

Sadsac would you tell me, other than taking money from us what can these doctors do for us, tell me, I really want to know. I want to know one that has done a better job than I did by myself, with help from the people here. I do NOT and have not took any drugs except blood pressure meds(and I stopped them) and of late IVERMECTIN so I could look for dead parasite bodys with my microscope. This in FIVE YEARS, the doctors have given me 30 prescriptions in that time, those I have saved in the fridge for the next world wide epidemic, LOL.

Is it funny that I was probably one of the worst cases and now am almost totally fine. Woops gotta be carefull with the healthy as a horse, every time a doctor says it, your death is only hours away, ok lets just say I am as healthy as a pig! A wild pig! I think I hear a song comming on, I am a WILD PIG dude, a hairy politicly incorrect somwhat healthy swiner dude, there ain't no body got the doctor blues, like swiner dude. (sung to the tune of BABY FACE) Excuse me for awhile I gotta get all this outdoor natural filth off of me, its causing me to worry about black stuff. You will get to see me and you can be the judge of what doctors did to me with steroids and I undid without ANY help from them. Oh I forgot the help they did give me was help me get rid of a huge pile of money, probably a good thing they did that as it was covered with virus and bacteria and god knows what else.

Is there ANYONE here that was helped by a doctor that is better and not on a pile of doctor drugs, what was your involvment at the time you saw them, were you covered with lesions, hmmmmmmmmm, if you werent you will be when you stop taking them.


DOCTORS...................ARE............NOT...... ....GOOD........FOR......US!

Not untill they find a symptom drug that we need to take forever, then my friends we will see the Cheshire Cat.

[fracty]

Thanks guys. I was asking for specific names of actual doctors.

I have already tried quite a few. I will check UCLA again but specifically checking for tropical disease. I had been focusing more on parasitologists, infectious disease, ppl who treat lyme, or even AIDS, etc.

Baraka, I KNOW it is true, but everyone is saying I am crazy. Apparently my step dad in another country called the church leader in my area and they are all saying I need a psychatrist for this. WRONG!

I hate to say it, but I wish for only ONE WEEK each of the ppl who said that would have painful lumps in THEIR hands and feet that look like worms along with all the other symptoms and fears, and yet get told they are imagining it. There is no winning because even when they see some of the things they say, "Well, that's real, but the rest you must be imagining because what you are saying is impossible, and you are too upset."

Anyway, all I am looking for are specific doctors who treat this illness.

[Sadsack]

BO -

I have posted many times about my recovery with the help of Dr. Staninger. And there are many others who have achieved 100% symptom-free status (Note - NOT "cure") with her help as well.

On the other end of the spectrum, Ginger Savely has a patient who attended the '09 Austin conference and is symptom-free for 3 years using western meds.

Others have also been helped by MD's who post on this site.

I think one of the most important things you can get from an MD is blood work, like Lyme tests (including babesia and bartonella), EBV, CMV, minerals levels, hemoglobin, Vit D levels - i.e., the labs that seem to be off with us. If we have correlated conditions that can be corrected (if we know about them) then we should do it.

SS

[Baraka Obam]

USE DOCTORS FOR TESTING ONLY, DO NOT INVITE THEM INYO YOUR INNER CIRCLE. Doctor I was bitten by a tic and had a bullseye mark where he bit me, thus you get a LYMES TEST, you will not be diagnosed as DOP for that. Crazy will always be crazy.


Everyone here has gone thru the people that do not believe. I do not care about them, you should not either. Thier acceptance can not be had, not by your trying to convince or a doctor dud telling them to act like they believe you. The only thing at this point you may accomplish is getting diagnosed a crazy, and once crazy always crazy, get me. Do not push the issue, get lyme tested and with or without diagnosis CLAIM to everyone you have lyme disease. I BELIEVE YOU and EVERYONE HERE BELIVES YOU, do not make yourself look crazy to the rest of the world it SERVES NOTHING. Most people have been where you are now. if you have certain problems ask here what you can do to help them, believe me it will work better than the Dr. Sawbones. Tell everyone you have alarmed, oh don't worry about me, I found out what it is, LYMES DISEASE. they can grasp onto that and forget all your wild ramblings, and now for awhile leave them out of the loop, they do not need to know, REALLY they don't want to know. Don't drive all your friends and family away, just because they are ignorant!!!!!! You are the tortured one not them, they do not and can not feel or take away your pain. Lean on the people here for advice and help. There are a bunch of good helpers here, hope we get back to this and away from the arguing.

Sadsac,
100% symptom free people do not come here anymore, what is 100% symptom free anyway, what exactly are the syptoms. I am not wanting to debate the subject really but are you still taking any drugs, do you have any problems at all, I think so. When I see you I will also see your skin and hair and whatever else there is to see. 100% is that or will it ever be possible. Without lesions I can see that, but red skin, thyroid, High Blood Pressure, diabeties, carple tunnel, floaters in the eyes, hair loss, headaches, red, brown and white spots on skin, sinus problems hmmmmmmm, need I go on.I hope you have been cured or are in great shape without the help of the drugs, because if you are on them, there is a storm brewing, I was in that storm. IT SUCKED!!!

[fracty]

So far the professionals recommended are:

Ginger Savely
Dr. Staninger


(If you have a doctor to recommend please paste the above and add your name/s at the end. Thanks.)