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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| I have just been angered by comments on another website disputing the reality of what sufferers are claiming. I have therefore issued this challenge (below) which I have emailed them. If you know any practitioner who would like to take me up on this then let me know. I also invite anyone in the media to come in on this story. I am no shrinking violet - it is time for me to come out of the closet on this and come out fighting. My objective is a. to try and put a stop to this nonsense and more importantly b. raise further awareness of our plight through publicity (i.e. all publicity is good publicity). Please note that my comments are not directed at the few doctors and researchers who are doing a fine job on our behalf but the masses of medics out there who think this is all "in our heads". ----- MY EMAIL TO THE "OTHER" WEBSITE: I am a journalist and broadcaster and just seen your website. As someone who is trained to look objectively at issues I find it amazing that you make such sweeping generalisations against the concept of Morgellons while at the same time effectively stifling debate - at least by avoiding comments directed at particular reports. Also as a journalist I have to declare an interest here. I have Morgellons. How do I know? I know because not only do I have many of the symptoms but the fibres too. And they are not on the skin as stated in several reports on your site, but coming through the skin. What's more, although these fibres or bundles may vaguely look like the ones you have shown using torn up paper and lint, they are different in many ways. The most glaringly obvious is that Morgellons fibres are not multi-coloured in one single bundle and they are more filamental in structure. As I said, these come out of the skin, first by appearing deep in the skin and then rising to the surface. Not only dots (which are these bundles) but triangular shapes too. It is strange that so many people should have identical material coming out of their skin. I am also a realist and though I dispute the general tone of your site I throw out this challenge: if any medical professional thinks that what the majority of Morgellons sufferers are saying is misguided and they know exactly what the problem is then I offer myself as a guinea pig to be cured! Yes, I really mean that. If you know what I am really suffering from then cure me. In so doing you might then offer hope to all the other people who are also crying out "Morgellons". I make one stipulation: this has to be a genuine medical practitioner with certifiable experience and who will work within the law regarding treatment. The deal is: I will pay my airfare and own expenses but not the medical treatment. However, if am cured and remain so for a period of three years I will also reimburse medical costs. I also guarantee to do my utmost to promote this cure around the world including agreeing to appear in any television programme announcing your new cure! However, if am not cured then the medical practitioner making these claims will pay for all my traveling and expenses. A fair deal? The publicity would be immense - I would ensure that. Given the number of sufferers I would think that any practitioner who could successfully cure them all could make enough money to retire on for the rest of their life. On that basis, and the number of very strong claims on your website I believe this to be an excellent opportunity for any "expert" who thinks they know the real answer to put their money where their mouth is. Surely I cannot be more honest or fairer than that. Barrie Last edited by Slovenia; August 30th, 2009 at 11:23 AM. |
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| Don't think you will find the media interested in getting involved with this Barrie. I spoke to a freelance journalist last year at length who was very interested,,,,,,and disappeared! Spoke to a tabloid journalist last year and he too ...disappeared Spoke to a TV researcher last year...although to be fair i do think some morgellon people put the kibosh on that.But she too disappeared. Spoke to another tabloid feature writer recently. Again I think there was some negativity put in here.On later speaking via email he said he was going to do an in depth article and it would take some time to put together..read for that he had been told to let it go. Pity that journalists don't contact morgies via pm's and ask them if they were willing to be interviewed instead of going to some web sites who seem to sit on the info and not put it out to sufferers. As to the site you have been reading I should let that go too.It will only raise your blood pressure.There was a site called morgellons watch and i never could understand why anyone wanted to visit it.Nothing but negativity and run by retards.
__________________ Many will walk in and out of your life but only true friends will leave paw prints in your heart. |
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| My motto is don't let anything go when there's valuable publicity to be had. The more pushing and the more determination the better. Of-course for all the "seeds" there are few plants when it comes to stories but one is better than none. I've fought battles before - including one major one - and I'll fight this one. As for the website concerned, yes you have it in one and I doubt very much if they will publish my email. I have my own professional sound studio and video editing suite and toying with the idea of a 30 minute radio documentary which I would hope to get placed one way or another. Maybe not much but every little helps. It all depends on whether my condition worsens as my first priority is my health and well being. Regards B |
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| Good idea Barrie and fair enough- yet as Pat says, no one will take you up on your Challenge. Unlikely, at best. If the link you emailed is the one that I'm thinking of, you will certainly get no response. At least not the response you were looking for. Again, IF the link you emailed is the one I'm thinking of- some of the Doctors on that link are in my area (Great Lakes)... so I will throw in a 2 fer- I'm willing to be tested and treated as well- it would be novel for me given the fact that I'm once again in a position of having no health insurance. I have some wonderful images of the Fibers I've found in my skin and my environment as well for the Good doctors to scope-out for starters.... V |
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| Barre, I'm with you . . .go for it! "Nothing ventured, nothing gained", and maybe just this once, someone will pick up on it! Just yesterday, I also issued a challenge, to the well known research hospital where a large percentage of the doctors "suggested" DOP for my diagnosis, following three days of consultations with specialists. I have to believe that there are some good doctors and researchers out there somewhere who are there with the full motivation of healing. I'm praying that they'll accept the challenge ![]() I keep seeing implications about people disappearing when they get too close to this, yet nothing "proven". Can anyone provide more information? Thankfully. . . It's "Time" ![]() |
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| I don't know what else could make sense. Not everyone accepts hush money. So, maybe once someone has uncovered the documents which tell the gruesome story behind this, then they fear for their life. ![]() My body is literally disfigured in many places from this.
__________________ posey |
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