Seeking Morgellons Patients with MRI Scans

[Sunnyand7777]

Hello everyone,
I am one of the many RNs with this dread disease. Early on, I had an MI scan done (head) that revealed lesions in the white matter of the brain. These could never be explained. I have always felt this was a significate finding in Morgellons Disease. Presently, I am trying to get a neurologist to review as many MRI scans as possible to see if there are any commonalities or other issues within them.
If anyone has had a MRI Scan of the brain (head) since or even prior to contracting Morgellons and would be intersted in taking part, please send me an email which is in my profile. (It will not let me put it in here). If this works out, there should not even be a cost since most medical facilities will send scans, reports, etc. to another medical provider at no charge to the patient. I sure hope this continues to be true.
Please pass this request on to others who might be interested.
Thanks!
Sunny

[Sadsack]

Sunny -
I had an MRI that showed cortical and subcortical lesions about 7 or 8 years ago. I was experiencing lots of symptoms that I now look back on and realize were likely Morgellons. I carried (carry?) a diagnosis of MS, and ultimately was forced into a disability retirement.
I have the films, as they were done in CT and I took them with me to FL.
SS

[kmar]

I had one done early this year. The results were normal. I have the film on CD and the report.

[ineedhelp]

I actually was wanting to get an MRI done but I had heard you are not supposed to have any metal in you if you do it. Many years ago I had surgery on my upper and lower jaw and have screws put in to hold it in place. Will this affect the MRI or do you think I am able to get scanned anyhow?

[Sunnyand7777]

Hey to one and all,
I have the possibilities of 1 or 2 Neurologists to review these. As soon as I can get a definite commitment from either or both, we will be up and going. I need everyone to send me contact information: name, phone, email and what you had done--to get an idea for the doctor(s). When we are ready the films, Cd's, etc should be able to be sent directly from where they were done to the consulting neurologist without a cost to the patients. I hope that still holds true.

My sincerest of thanks to everyone!

Sunny

[Kritters]

Our sincerest thanks to you, Sunny!

xoxoxo

Kritts

[Sunnyand7777]

Your question has come up before and I do not know the answer. Call the imaging dept of your local hospital. Some one there will certainly know since this is not uncommon and they must have to deal with it regularly.

Best wishes!
Sunny

[jonsi]

Hi Sunny,

I met you in Austin in 2008. I'm niecy's friend from New Mexico. Remember me?

Please look at the responses to this thread: MRIs anyone? please share results

In the white light,
~jonsi

[Sunnyand7777]

Hey Jonsi,
We did have a great time in Austin last year, didn't we. It was worth the trip to just get to meet eeryone in person, ya know. This year's was even better. I wish you I Niecy could have been there. Her new grandson was just a few days old, but she plans on being there next year. I have to start saving my pennies a year in advance to be able to go. It is just a great opportunity to connect with my "morgie family of friends" that I otherwise would never be able to.

Thanks for reminding me of your thread. There are 1 or 2 over at LB from past postings, also. This information is pricelss. If these findings among "Morgies" prove consistent, this could be a strong "physical" diagnostic marker in Morgellons Disease.
That just me speculating.

Sunny