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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| Hi everybody, I am so close to tears just from the shear agony of the pain I'm in. I discovered these swellings along the nerves in my mouth. I never knew where the nerves were to my teeth but I do now. On the top, they have burrowed into the nerve leading to both eye teeth and also the nerve going to the molars (and in between) - same on the bottom. I try to kill these worms by crushing them so I tried to do that. There is no place for their biting mouth parts to go. It feels like little teeth in there. Now the biting mouth parts are embedded between my teeth and I can't get them out. I had to take my fingernail and tear a groove along the nerve (I can't tell you how painful that is - my vision blurs, and the room starts dimming because I am about the pass out) - I got some of the teeth out. The residual pain from this is excruciating. Yes, sometimes I wonder if I can go on. But I have to. I want to get well so bad. Tears are just streaming down my face right now because this is such an unbearable affliction. My upper lip is so swollen it's about 3 times it's normal size. I feel them biting inside my breasts too, and my left eye is still swollen half shut. I have a lesion on each ball of my foot. Still my arms are horrible. And everything I've tried just seems to make them go somewhere else with a vengence. I do feel like Job from the Bible. The disfigurement alone is hideous. And then my brother calls and says "I'm really worried about you. You should go to the hospital". Right. He means well, though. I'm hanging on but I'm so stressed by all the pain and everything I have to do just to try to be ok. In spite of all I've done, the worms hatched out of several lesions and have made their way who knows where. You can see the tracks leading every which way. I'm just sharing this because maybe someone else is in the same place - If you are fighting this, then let's hang in there together. saro Last edited by sarothra; May 2nd, 2009 at 03:53 PM. |
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| saro-- this breaks my heart----i'm so sorry that this awful disease has brought you to this point, and i know that feeling so well...like you're not sure if you can go on, but then you know you just have to. i have no medical advice for you, but hope that others may chime in. i just wanted to say hello and let you know i'm listening with my heart. please hang on. we will get help and we will get better. love, kelley |
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| Saro, I have a 'mass' in the roof of mouth, one side is more 'puffy' than the other, telling me - something is living in there. The roof of my mouth and teeth have been numb for a while, off and on with various stages of numbness. Whatever this is - attacks the mouth and teeth. My teeth are being eaten away from the gumline - physically eating the enamel next to the gums. Here's what I did and noticed a big change for the better. I took a small amount of the DE and held it in my mouth - in its powder form as long as I could. I know this is nasty but, it starts killing stuff right away! You can just spit it out when it gets real mushy if you can't tolerate eating it this way. Leave the coating in your mouth, don't wash it away, right away. Put some on your lips too, the DE will tell you where the parasites are. I now have most of the feeling back in my mouth, it has killed the parasites on my lips, I only have slight sign of them there. It's taken a lot of the biofilm that was collecting on my teeth away. It's inexpensive too - get the Food Grade... I hope this helps! |
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| Sarothra - Have you tried vigorously swishing peroxide in your mouth? I think the peroxide and wine thing would help, too. I am so sorry. I wish I could fix everybody! And I know what you mean about Job. Do you think that is a coincidence?? SS |
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| Hi Saro... If you can get your dentist to call you in a script - ask for Chlorhexidine Gluconate Rinse - this has been proven to be benefical to the mouth and teeth from other Morgies and myself. And, quit mashing them... I think you're making it worse? Not sure. If you've got some specimens collected, Saro - I'd like to see what they look like under the microscope, you can PM me if you're interested in mailing me some of your samples? You can collect things in-between pieces clear packing tape. love... K |
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| Sarothra, Buy some red wine (if you can, get organic red wine). Either way, swish with the red wine and you won't believe what will come out of your gums. This comes directly from Gwen Scott, ND and Clifford Carnicom. (Clifford suggusts you add 1/3 hydrogen peroxide to the mix). Aerosol Operation Crimes & Cover Up (this is a direct link to the wine-peroxide test, please view). I hope this helps and I'm sorry you are going through this. In the white light, ~jonsi
__________________ There is a reason I have "Morgellons". Helping and teaching others how to survive in our toxic world may be the reason. Hang in there everyone who has this. |
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| My name is Anthony. I have been reading and following many of you. I also have this nightmare of a disease and it is destroying me piece by piece. Everytime I think I have found something that works it hits me another way. I wanted to try an introduce myself the correct way and give you some backround but this will not let me post in introductions. From being so shy at one point I finally don't mind writing, or posting I guess you call it, thanks to all of you. I seem to get a little courage sometimes when I read and listen especially at the times when I just do not want to live any more. I live in New Jersey but spent many summers in Europe. The Netherlands and Germany. The strange thing is that this seemed to not bother me as much when I was in Europe last summer. That might be only because I was out of my house and it does not matter where I was as lpng as it was not contaminated yet from me. Lately I get hit even in the yard. I cannot touch dirt or plant, or do anything for that matter. I always have a huge display at Christmas time and even that makes my skin and body worse and worse. Each year it has gotten worse. These fibers seem to live in all the artificial trees and garland and cotton, etc. I thiink they grow in the attic from year to year now. I always put villages together and you know people would drive by from the whole area looking forward to it. I enjoyed doing it until this year it got so bad. I still have everything thrown in a room and threw a lot out I have had for years. I can not even handle the styrofoam boxes. And the glitter on things that is another story since so much of what is on me and my furniture looks like glitter but is not. I see gree needles from the garland that move and look like garland but are not. Sometimes my brain is snapping since it seems like they know when you try to show someone and won't move. That even sounds insane, My clothes have strings on them at all the ends that bother me and sting when I pull them. I don't even want to put clothes on. Wear them once and they are finished. If that is not enough to be thrown in a mental hospital I don't know what is. My cloths bite me!!! I don't believe I am saying that. I was an auditor, accountant, traveled around the world for work, and now I am nothing. I don;t even think anyone believes me. I don't know if I would. I use to have a nice home. One that L literally built. This is now a pig sty. As far as people that is another story. I am afraid to go near anyone or pets,etc. Before I knew I had a bird, gunea pig,dog die that I watched for people. Just a few days in this house was enough as silly as that may sound to some. I can't touch anything. What I wanted to say and please excuse the length and the spelling. I was afraid if I tried to change anything I would loose my typing again. I have been using the body wash called Aveeno with the light green cap. The others do not work. It must be that one that says positively radiant and new. For some reason it has little green soft things in it when they hit my skin it attaches to what is in me and draws out sharp large objects and never stops. I get no results or very little if I put it on a rag or wear gloves. It actually goes through all disposable gloves and the heavy vinyl ones do not work. I have to use my hands put a little on the skin or hair anywhere an let water run at the same time or it just moves from one spot to another. Has anyone tried this yet? I am curious what it is that does this and what is the active ingrediant that could be researched to pull this out permanantly. I use hundreds of bottles and it is not cheap. I called the company and explained an they would not sell wholesale to me. When you get some of the sharp grit out and look under the microscope you see these flourasant strands just binding together. My head under the hand held digital microscope looks all white like layers and layers of melted white wax. It is actually layers of thread. My circulation is bad in my legs from this. I even had surgery on my spine I thought that is how this started after the opereation but after thinking the operation was caused by this. I woke up payalyzed on Easter 2001. Emergency room said I had abycess tumor on spinal cord. Could not wait in a couple hours would suffocate or be parapolegic since was high up C2-C5. When they got in it was an abycess of thread rapped around the spinal cord that had to be ckeared out. No one thought anything about that, not even me until recently. Then the thread is what clicked in my mind. I had 3 months IV antibiotics, metal plate put in, graph from hip bone, etc. After that a couple months later the lesions started an it has been on an off since getting worse an worse. My hair does not feel like my hair at all I feel jumping sometimes when I try removing from the skin but cannot see anything jump or land on me. I see my parents a lot and what is funny they do not seem to have any symptoms on the outside but I can feel things attracted to me when they are near me or their luggage,etc. I can even walk through others houses and sometimes things that will bother no one else affect me on the floor or furniture. I have not sat on upolstered furniture or slept on a sheet in over 3 years because it bothers me. I roll outpaper towel and paper tableclothes and then throw out. See I sound like a nut case jumping all over the place. I know I probably am not writing in the right place. Anyone who would like to answer or ask questions feel free. This is one of those nights that I can not stand this anymore and wish I had a gun and the bravery to end this misery When I think though it is my parents in their 79's who would get hurt the most from that an it stops me Let me send this. Thank you for listening. Try the Aveeno. I am curious what you think. One move strange thing and I know there are strands normally in our money (dollar bills) When I look at the area with the little eagle which is gold on the front of the 20 especially it is loaded with these flouresant things. Maybe that really is nothing but I thought it was interesting and wanted to see if anyone noticed that. Thank you for listening Have a good one. |
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| Welcome. Some things we can all relate to .. some of us can or cannot relate to others.. there is no explanation except you are not crazy. I can recommend one thing that might help. I sleep in a travel sleep sack, called the travel fresh personal Sleep sack from bed bath and beyond. It's 29.99 and lasts about 2 months with daily bleaching. I put it in a ziploc 2 gal bag when it's dry and use it over and over til it tears apart. I have 2 or 3 in my closet. I have a hypoallergenic pillow from BB&B which I wash in bleach at the same time along with my white undies and my white cotton hoodie. Tuck the pillow in the sack, put the hoodie over your head and remember that you will get hot from having your head covered, use a fan or adjust the temperature. Make sure you pee because the most peaceful hours for me are when I am tucked in my little "cocoon". Sleep on a bed and get some limited peace. PS I only use white bath towels and bleach mine at the same time as the bedding. Bag everything and get into bed clean, do the DE twice a day (Diameteceous Earth/ food grade) and life will become at least tolerable I pray for you. This is what has helped me short term. |
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| Anton - You absolutely are NOT crazy. I can identify with your agony and desire to end it all, as well as questioning your own sanity. I've even questioned whether I was still alive, or had died and gone to hell. I am doing much better now, and some of these feelings have faded somewhat, but reading your post brought every feeling back. I am so, so sorry. I wish I had a magic wand and could fix all this. And then the thoughts about how something this horrible exist and the whole world isn't ablaze with the knowledge and horror of it! If you need someone to talk to, send me a pm. I have unlimited long distance... SS |
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