Dear New Members

[Kritters]

This forum is by far the most frequently visited and interactive forum I think you might find. I could be wrong since I'm not really involved much in others.

However, regarding this forum, of which I have been a part for around two years, I think, I just want to express something to all new members now joining (and there seems to be many).

As you can see, there are so many people who have signed on as members who have, for one reason or another, left. I hope it was for a good reason, but we just will never know.

But, there are those of us, and when I say, "us" I'm humbled by members who have been here long before I have, who have never faltered in communication and reported research, thoughts, ideas.

This is because we have stuck it out through adversity in posters who may express their incredulity of what we have spend hundreds of hours researching and sharing.

Many of you haven't read through all the archived material posted by us. I strongly suggest that you do. Even still, some of us are gracious enough to take the time to respond to your new questions and problems repeatedly because we understand how it is. We were there. You find a forum, through googling and jump in without taking the time to read through the vast amount of information presented by past and present members.

Not everyone agrees on certain perspectives or theories, but the important thing is for new people to not arbitrarily dismiss, off handedly what those of us have spend endless hours researching, because you THINK we are wrong.

I guarantee you, if you have thought it, it's been expressed already and backed up by extensive research here. It would be in your best interest to take the time to read through some of the most incredible research here you will ever find before jumping in to give your opinions (unless you also have done research).

And then, new thoughts based on what has already been expressed are extremely welcomed. Everyone here has an open mind. Well, not everyone, but enough people.

I, myself have done searches and have found that there were some things I have forgotten which were actually significant and relative to my current research. can you imagine the embarassment when I see something I have actually posted a year ago which I have forgotten? I chalk it up to brain fog, chronic fatigue and major depression and move along as if I saw it for the first time. In some cases, I'm blown away that I have forgotten it.

This disease is not like any other in its entirety. Which is the problem.

My point, is to ask you to do your homework before dismissing anything the 'seasoned' members bring to the table. Many members here have spent inordinate amounts of time to research and share.

In addition, many of the 'seasoned' members have their own agenda and we do not all agree, so you should not take everything which is posted to yours as valid.....which is why you have to do your own homework.

Best to all of us. One for all. and all for stamping out Morgellons (at least).

Kritters

[jonsi]

I've been a member here for 2 years now.

I am thankful for the new members and their willingness to speak up and ask questions, contribute information, and challenge all of us.

I get lazy sometimes and don't respond because I feel like I've said it before.

The thing is that we are all in the same boat and we don't have any definite answers.

I am saddened that there are so many new members on this board because this shows how many people have "Morgellons".

Many of us have found a path to better health. To the newbies, go through the archived material, as Kritters suggests.

You can pm any member on this board to ask questions, or to make new friends.

In the white light,
~jonsi

[kmar]

Kritters,

Nice Thread!

Nothing worse than to say something and then have someone say "your wrong" afterward without proof.

We are all entitled to our opinions and even the researchers don't agree with each other.

This is a great place for sufferers to come, and sadly as Jonsi states..... sorry to hear new ones have this terrible condition proving that it is growing.

Kmar

[Kritters]

Yes Kmar, and thank you.

Hopefully, our newbies will have open minds even tho some of the oldies may not. but what is important is to build on previously researched information. then people can formulate their own conclusions as well as add new information.

If nothing else, it's a matter of expediency in gathering of information on which to build upon in a discerning fashion.

I like you tons Kmar.

Kritts

[stormanorman]

KRITTERS,
EARLIER TODAY I POSTED A BRIEF MESSAGE REGARDING "GETTING TO THE POINT".
I HOPE I DID NOT OFFEND ANYONE IN THIS FORUM, THAT WAS NOT MY INTENTION. I AM WELL AWARE OF YOUR ENDLESS CONTRIBUTIONS AND DEDICATION YOU HAVE GIVEN THIS FORUM....IT HAS CONSUMED YOU IN EVERY PART OF YOUR BEING. TO THOSE WHO HAVE BEEN ON BOARD AND HAVE TRAVELED ALONG DURING THE HIGHS AND ROCKY LOWS OF THIS JOURNEY LET ME SAY, "THE FRUITS OF YOUR LABOR" ARE TRULY REMARKABLE. MY ONLY REGRET IS, AFTER ALMOST 3 YEARS: DOCTORS, SPECIALISTS, TONS OF TESTS...BLOOD, CT'S, BIOPSY'S, ALL THE DIFFERENT MEDS, OINTMENTS AND ON AND ON AND ON OF PAIN AND SUFFERING; I NEVER HEARD OF MAGELLONS BEFORE. I FOUND OUT ABOUT MEGELLONS IRONICALLY, ON TV. WHICH LED ME TO THIS FORUM. HOW CRAZY IS THAT? EVEN ALL OF MY INTENSE RESEARCH AND THOUSANDS OF HOURS READING MAKING PHONE CALLS.. EVEN NOTIFYING THE CDC; WHICH BY THE WAY CUT ME RIGHT OFF AND SAID THEY COULDN'T HELP MY FATHER AT ALL, I WAS LIVID! (MY DAD IS THE SUFFERER OF THIS NIGHTMARE)

IF I HADN'T WATCHED THAT SHOW (MYSTERY DIAGNOSIS), I WOULDN'T HAVE FOUND THIS FORUM. YOUR "LABOR" IS BEARING "FRUIT". I COMMEND YOU AND THANK YOU. NOW THE NEXT STEP IS TO HAVE MY DAD TESTED AND EVALUATED
stormanorman

[hilly]

Kritts..good post, thankyou..... I've also been here just over two years.. hard to imagine, but I also forget things I've posted and things others have posted... just part of the memory loss, brain fog and what have you I guess... I just hope that in another two years we can all post 'jolly hurrah' messages because we are so well. Wishful thinking ? I hope not.
I think it's hard for new people who don't know what's been found out or posted.. It's difficult to look up things especially when you don't really know what you're looking up, and of course at the beginning you are very much in a 'panic' state...
Love to all Hilly x

[carla]

When I first accepted I had Morgellons I made a post at LymeBusters about something I thought it could be and they all jumped down my throat.
They had looked at whatever it was already and who did I think I was coming here and telling them?Could't I use a search box?
I didn't even know what a search box was back then.
It really upset me at the time and made me even more itchyso please remember to consider peoples feelings.
Now I'm a 'thick skinned' fully established Morgie and I couldn't care less what people say to me ,about me or otherwise.

[Katinka]

Yeah Carla,
that's the point. When you first get "attacked" by this disease and finding out that nobody can help you or hadn't even heard about this you are glad and thankful to find this forum to seek and find answers.
None of the new members "think" about reading through ALL threads or postings in this matter some maybe don't even know where they are. Not everyone is familiar in using computers or forums. When I came here I have read alot of those threads, endless some of them are, some do not come to a point. After reading them I've found many, many treatment methods which
I think is most important for people who are "newly" infested with Morgellons.
You can't go up to a doctor and say: Sir, I have Morgellons Disease please help this and that way. He would look at you like he was saying: Don't you dare and tell ME anything about any disease! I KNOW ALL OF THEM! If I can't find this disease in my old dusty medical book then it doesn't exist!
That's the reason why new members here me included are thankful and happy to find people who are aware of this disease and can maybe help in a one or another way.
For me I think there are no stupid questions. Some of the threads about certain treatment methods are 1 and half years back. So what does it matter
if somebody asks again there could be updates since new members sign in almost every day. That's what I thought.
I do not think that any new member here had in mind to devalue any research or information made by the "oldies".
But if you in the other hand are thankful for "open minds" and opinions are extemly welcomed but only if they compare to your findings and your endless times of research this will lead to nowhere.
I think not anyone is here on this earth since yesterday. Everyone has
different thoughts and opinions and his own agenda of life and should have the right to expess his or her thoughts even if they seem to be "woolly".
This is what I think keeps this forum "young". All of us need new feedback
to move further on.
Besides that what happend to the United States of America? I always thought if one country is liberal and open minded to anything or anyone
and everyone can live his/her life as desired. It's America! But maybe I was wrong...times change. You know we've had that mindcontroll once over here in Germany and I'm glad it's over...freedom and justice for all!

[ladycolorado]

Originally Posted by stormanorman

KRITTERS,
EARLIER TODAY I POSTED A BRIEF MESSAGE REGARDING "GETTING TO THE POINT".
I HOPE I DID NOT OFFEND ANYONE IN THIS FORUM, THAT WAS NOT MY INTENTION. I AM WELL AWARE OF YOUR ENDLESS CONTRIBUTIONS AND DEDICATION YOU HAVE GIVEN THIS FORUM....IT HAS CONSUMED YOU IN EVERY PART OF YOUR BEING. TO THOSE WHO HAVE BEEN ON BOARD AND HAVE TRAVELED ALONG DURING THE HIGHS AND ROCKY LOWS OF THIS JOURNEY LET ME SAY, "THE FRUITS OF YOUR LABOR" ARE TRULY REMARKABLE. MY ONLY REGRET IS, AFTER ALMOST 3 YEARS: DOCTORS, SPECIALISTS, TONS OF TESTS...BLOOD, CT'S, BIOPSY'S, ALL THE DIFFERENT MEDS, OINTMENTS AND ON AND ON AND ON OF PAIN AND SUFFERING; I NEVER HEARD OF MAGELLONS BEFORE. I FOUND OUT ABOUT MEGELLONS IRONICALLY, ON TV. WHICH LED ME TO THIS FORUM. HOW CRAZY IS THAT? EVEN ALL OF MY INTENSE RESEARCH AND THOUSANDS OF HOURS READING MAKING PHONE CALLS.. EVEN NOTIFYING THE CDC; WHICH BY THE WAY CUT ME RIGHT OFF AND SAID THEY COULDN'T HELP MY FATHER AT ALL, I WAS LIVID! (MY DAD IS THE SUFFERER OF THIS NIGHTMARE)

IF I HADN'T WATCHED THAT SHOW (MYSTERY DIAGNOSIS), I WOULDN'T HAVE FOUND THIS FORUM. YOUR "LABOR" IS BEARING "FRUIT". I COMMEND YOU AND THANK YOU. NOW THE NEXT STEP IS TO HAVE MY DAD TESTED AND EVALUATED
stormanorman

Stormanorman I am glad you care about your dad and joined this forum. the best advice I can give you is to find a Lyme literate medical doctor (LLMD) If you can. The reason is that most with Morgellons disease respond positvely to long term Lyme care.

Whether natural or traditional it does not matter. As long as it is beneficial to your dad. Just make sure you dont get ripped off. That is the problem: 1 Finding a doctor and 2 making sure if you do find one they do not overcharge.

Yes I know some exceptions to the rule but as a general observation dermatologists and infectious disease doctors have the most sceptics in those fields regarding Morgellons Disease.

(LC)

[Sadsack]

Carla -

Your post is very important in terms of remembering what it is like to be new to this horror. I don't think there are many experiences in life that can compare.
Though we do get into "scraps" on this forum from time to time, they are generally resolved out in the open, and newbies are almost never the object of disagreements.
I believe a great deal of sensitivity, helpfulness, and tolerance are shown to the newcomers. I very seldom see the "clique mentality" that dominates LB, and it does not surprise me that you were jumped all over when you were hurting.
This board is THE BEST for Morgellons victims on the internet. It is the fairest and least petty; it puts finding solutions and giving support above catering to primadonas. And that is reflected in the fact that it is the most trafficked site.
Kudos to Franky for this. Although not everyone has agreed with every decision he has made, I think most can agree he's used objectivity and not favoritism in his decision-making. And that includes having Carla as a moderator.

SS