Family thinks I'm Nuts still after 8 yrs.

[wendee74]

Hi everyone,
I have had this thing for 8 years.My family doesn't think it is real and that bothers me.I guess cause I feel so alone. I understand this thing is hard for people to believe. Anytime I bring it up they pretend to believe me. Mom Just tells me to go see her shrink. Her shrink knows what it is and it's called Trichotillomania....God, I wish it was that ! Does anyone have any suggestions ? I can't even look at them anymore. I have nothing but anger for them and they think I am nuts. I hate this so much!!!!

[Kritters]

Hi Wendee and welcome,

I just love this. Did you actually go to Mom's shrink or did Mom's shrink diagnose you without even seeing you? Is Mom's shrink a Psychologist or a Psychiatrist. No matter....the shrink is a dink.

We are ALL going throught the same thing. Don't hate them because unless they experience it, they just can't wrap their minds around it. I just tell people I have Lyme and THAT is enough since they have no idea how bad Lyme is either.

But you're not alone. You're among family here.

Kritters

[carla]

Hi Wendee,
Give up trying to make them believe for now.Talk to us instead because we will believe you.
My Mum was worried that I had lost it at first until she read an article in the New Scientist.
When she saw that everything I had been saying was happening to other people she realised I was right.
That article turned a lot around for me because it got me the full support of my family.
You could find a good mainstream media report and leave it lying around where you know they will read it.
Your not alone ,thats for sure.
xxx

[Katinka]

Hi Wendee,
When I first got this I couldn't believe it either. My family didn't believe it too but tried to comfort me but actually couldn't because I was so upset.
Here at this forum you'll get all the support you need. Many nice and caring people here plus alot info.

We care!
Katinka

[Baraka Obam]

I loved my family................ they tasted best with salt and pepper!!!! SERIOUSLY, there are so called friends that will actually give you nothing but trouble, you will be ready for a nervous breakdown and almost dead from Dr. Dumass drugs and still they will hound you. These family fools will look you right in the eye as they watch you get worse and worse, they will tell you have to go to the DOCTOR. I have been to 20 doctors you idiots does it look like they are helping me. I was so sick with them that truly I really did not ever want to see them again. They had the same compassion as a alligator when it has you in its jaws doing a death roll. I am still angry with them. With some of the friends and family I have really you don't need enemys.

[wendee74]

Yep, this shrink is like no other! She knows what this is without ever seeing me. Amazing huh? Anyone trying the salt vitamen c treatment? For me this started with a lesion on chin that wouldn't heal got it cut out by docter only to have it return a little higher on my face within a few weeks. Over time it worked up to my eyebrow and for the last 3 years my scalp . Anyway, a few days after I started the salt and C the lesions were back on my chin as they were in the begining and with the same itchy crawling feeling. Anyone else have this come back in same spot it started?

[Sadsack]

You're best bet is for them to see/read something credible.
Mystery ER did a show on Morgellons that aired in October. It's been re-played many times but I just check the schedule for the next couple of weeks and I don't see it showing again. I'm sure it will. Here's the blurb from Discovery Health's website:

“STRING THEORY”
A woman feels a profound fatigue and sleeps up to 18 hours a day. Soon she feels as if invisible rats are crawling over her. These “invisible rats” seem to leave strange sores. When the woman puts her sores under a microscope…the mystery deepens in ways she had never thought possible.

The story is Cindy Casey's. Cindy is the Director of the Charles E. Holman Foundation. The CEHF is putting on the 2nd annual medical/scientific Morgellons conference in Austin on April 4th.

SS

[kmar]

Hi Wendee,

Here is a shortened version of the Documentary portion of
the Morgellons episode which was on Discovery Health. Maybe your
family will watch it and hopefully believe you.

Be sure to tell them that the CDC is investigating this condition
and that should also add creditability to your illness.

YouTube - Morgellons Re-Creation Documentary

[ladycolorado]

Originally Posted by wendee74

Hi everyone,
I have had this thing for 8 years.My family doesn't think it is real and that bothers me.I guess cause I feel so alone. I understand this thing is hard for people to believe. Anytime I bring it up they pretend to believe me. Mom Just tells me to go see her shrink. Her shrink knows what it is and it's called Trichotillomania....God, I wish it was that ! Does anyone have any suggestions ? I can't even look at them anymore. I have nothing but anger for them and they think I am nuts. I hate this so much!!!!

Hi Wendee. Yes it is amazing when a person has a strange disease still being researched, especially as strange as Morgellons Disease how it frightens people. Some of my family held the same attitude and sadly my marriage will come to divorce as a result.

There are some credible links I will show to you which may be helpful.

The Nations Medical Research Agency, the National Institues of Health (NIH) DOES have Morgellons Disease listed as being related to Lyme Disease. How much more credible can you get than the National Library of Medicine?

Here is the NIH Link On Morgellons Disease:
Morgellons Disease .

This is on the Mayo clinic Website an article about Morgellons Disease:
Morgellons disease: Managing a mysterious skin condition - MayoClinic.com .

This is the CDC website page For Morgellons Disease (Unexplained Dermopathy) link:
Home | Unexplained Dermopathy .

Finally this is The Morgellons Research Foundation Website (MRF):
Morgellons .

I hope that helps some. I will say from my experience the old saying holds true: you can lead a horse to water but you CAN'T make it drink. Even if the horse is your family. It takes time at the very least.

I learned that what convinces family is when they see you get better as weird as that sounds. The more you improve (and the less scared you are), the more they will listen over time. This is why there are places such as Morgellons-Disease-Research (M-D-R), this very message board. There are many kind people to talk to here.

For now best to talk here lots of people who are nice here. I know that sounds horrible but when people who love you see you scared they get scared for you. I hope you can improve that would be good. We try to help as best as we can.

They are afraid that something this horrible cannot happen to loved one therefore it is not real. Too terrible for them to consider it. Unfortunately Morgellons Disease is VERY real.

I know that seems silly. All I am saying is that there are many nice people who are here for you. Me included.

I hope in some way this helps to know you are not alone.

(LC)