Columbia University Reporter Seeks Sufferers to Share Their Stories

[Lisac]

Hi All,

I am a graduate student at Columbia University's School of Journalism. I'm researching Morgellons Disease as part of my Master's Project, which I plan to publish this fall. I am very interested in speaking with anyone who is suffering from Morgellons and would like to share his/her experiences with medical professionals and the affects of this illness.

I am especially interested in meeting anyone who lives in the NY/NJ/CT area.

If you are interested, please send me an E-mail.

Sincerely,

Lisa Cupido

[jonsi]

Hi Lisa & thank you!

do you want to give us your personal e-mail address. I know of one lady in particular in Conn. (Emily) who might be able to help (and visaverse). How about Mass? Several people there that are on this board.

In the white light,
~jonsi

[Lisac]

Hi,

Thank you for your response. I would be happy to speak with anyone in Connecticut or Mass.

My E-mail address is lc2444@columbia.edu.

Hope to hear from you soon.

Best,
Lisa Cupido

[niecy]

I'm confused ALiester........it seems to me that Lisa has just the right amount of patience, which is quite admirable.

Have you contacted her via the email address that she has posted here? You are not that far away from Jersey and New York.

You....on the other hand befuddle me, were you raised on a farm in New York State, or in the Hole with Alice.......very strange language for sure. Remember what I told you about how you write is how you are perceived? You are wrong about thinking if you are not looking someone in the eye you can't know them. I have many friends on this forum that I have never seen face to face........but you can bet your sweet a** they are my friends, at least I am theirs. And to be friends doesn't mean you always have to agree with someone, but you do have to respect them.

Lisa is not yet my friend, but she is new here, and there is no apparent reason for me not to believe that she is on the up and up. She deserves respect just as much as you or I do. I am positive if she is what she says she is, she will make many friends here.

Your writings are leaving alot to be desired. Are you afraid for people to perceive you as you are? I think you are probably a very nice young man, no need in all the games.

We are here for support and help, not to play games and speak in riddles. I am sure there are places, on this planet or another one in some far away galaxy that would appreciate your antics. I for one, like just plain old dialect.........I am not sure where your dialect is from. It's not how you say your words, it's the words themselves that are saying something very strong about you.

Every cowboy, or cowgirl for that matter, that I have ever met were people of few words, but those words, as short as they were, were very easily understood, and didn't require much deciphering. And hey, I live in the deep south, I know lot's of cowgirls and cowboys.

You are a strange one.......and that's okay. But don't be running around on this board trying to put other people down, it doesn't work that way here. There is respect for one another.......and I believe that is the way that the administration here has strived to keep this forum in particular.



Lisa,

Aliester lives in New Hampshire, that's not so far from the area you are talking about, perhaps he could use the email address that you so willingly posted and send you an email with his story. He thinks he has Morgellons so he would be a good candidate for your study, don't ya think?

Anyway, I wish I lived in the area you are studying, I would be more than happy to be involved. I wish you the best of luck, maybe you will find something that will help us who are suffering with this horrid disease. It is a disease though Lisa, it is not delusional. I hope that is not the angle you have on it, because it will be a huge disappointment if it is.

I have met many people who have this. I have seen pictures from around the world of the thing, and although I haven't been able to post my own findings in pictures, it's not necessary for me. You see, everytime I look at the pictures here that Jo, Nancy, Rocklady, and Steve have posted, I know.........what it is hasn't been proven yet, but it will be.

Dragonfly's pictures are so amazingly like mine until it sometimes scares me more than it comforts me. I am convinced that this is way more than skin deep, and most definitely much deeper than physchological, although there are many serious mental manifestations, but, considering how the medical community has treated these patients, including myself, that is to be expected. This stuff is systemic, and it is apparent that it is running either with the veins or the nerves in the body, because it is mostly symmetrical.


Aliester........this isn't intended to offend you, just to let you know that you don't need to be offending others.

To You and Lisa, and Steve and Nancy, oh and of course Jo, I wish you all the best, as we don't have the world's greatest scientists and biologists jumping the gun to try and help us. We need all the help that we can get.

God Bless You All!!
Niecy

Originally Posted by aliester

Your eagerness, or lack there of, to engage befuddles me! Are you a cowgirl too? 117

Originally Posted by aliester

Your eagerness, or lack there of, to engage befuddles me! Are you a cowgirl too? 117

[Doc Holliday]

why-----from what I have seen aliester, your just a total IDIOT-can't believe you haven't been booted off site for harassment, Doc Holiday-------clown

[chester]

Hi Lisac, You wrote:

"I am a graduate student at Columbia University's School of Journalism. I'm researching Morgellons Disease as part of my Master's Project, which I plan to publish this fall. I am very interested in speaking with anyone who is suffering from Morgellons and would like to share his/her experiences with medical professionals and the affects of this illness. Lisa Cupido"

Lisa, I appologise for your invitation getting sidetracked into a less than professional personality "snit fit" on this site. With something as serious and catastrophic as morgellons coming to light, the only thing we need to be bickering about is the fastest way to overcome it. If it were up to me i would delete everything after your invitation....so, here is a fresh start on this thread.***********Thanks for the invitation. Having family that graduated from Columbia, and having some background in journalism...i would like to thank you for focusing your Masters Project on the "what , where, when,who, why and how of morgellons. The story needs to be told, the facts need to come to light. There are a world full of medical professionals who need to be taught about this bizarre situation, and given tools to help folks overwhelmed and underequiped to fight this fiberfight. I have vented alot of words on "Hanging Out INside the Lesion", my voice is not that of an expert, but a mom who is "madder than hell" and is not going to take it anymore. There are many voices to listen to Lisa...may God guide you in your report to bring the truth of this to light. Nancy

[Franky]

I am going to call Foul here! Remember first and foremost, this is a support site period. Please end this bickering here and move on from here. By us calling each other names and such, serves no purpose at all.