An urgent letter to all Morgellons Patient

[browncircles]

Passing this along:

Florida Congresswoman Ginny Brown-Waite has responded in a very positive way to our pleas for assistance.

She's willing to lend her considerable influence to help us at this crucial time. The idea is to conduct a comprehensive study of Morgellons, not with Kaiser Permanente, but rather in conjunction with the National Institute of Health (NIH.)


The first step is for Morgellons sufferers to contact the email address below. This is the liason for her office as her staffers can't handle all the "extra" work.

Waite's staff wants to hear from all Morgellons patients, both in Florida and from all fifty states. They want to hear from YOU! They want to read and understand how this disease has impacted YOUR life.


If you are experiencing Morgellons disease symptoms, please email your response to:

aripekangel@yahoo.com

Your letter should include at least these facts:

1. Where did you live when did you first become symptomatic.

2. Number of members of your household who have these
sympotoms.

3. A brief description of your symptoms.

4. A brief description of your interactions with the
medical community.

(How many doctors you've seen, their diagnosis, how you
were treated. Were they kind, unkind, interested,
disinterested, etc.)


5. You may want to add any investigative procedures
performed such as skin scrapings, biopsies, bloodwork,
etc., that were recommended/implemented.

Feel free to list any medications prescribed to treat this
condition.

If you aren't comfortable using your name, you may use a fictitious name, but it's important to identify your state. What's needed are geographic locations so that this data may be forwarded to the appropriate congressional leaders who represent your area.

If you have a loved one experiencing these symptoms who may be unable to send email, it is important that you assist them so that they may be counted. You may also call and leave a message to an account at (352) 544-8111.


This number will shortly become a reporting-only line. Your information will be transcribed and filed to enable Congresswoman Ginny Brown-Waite to provide evidence of the serious nature of what appears to be a disease of epidemic proportions.

Please consider this a safe haven where you can respond and participate. All reports will be kept in strict confidence.

We finally have a real friend in the political arena who is willing to fight for us. Let's all work together to move the 'mountain."


Sincerely

The Florida Advocacy Group For Treatment Of Morgellons

Trisha Springstead, RN
aripekangel@yahoo.com

[Jo]

Brilliant!! THanks Browncircles,

How can we make sure all the US sufferers, too ill to see this, take part too??

I wonder if folks could get a smaller version of the letter to run in local papers?

I'm routin and toutin for you all

Joey xxx

[chocket]

thank you for providing this information. I've already sent my info.
Carrie/chocket

[Jo]

Thinking about it - I hope the MRF can contact the 12,000 families on their list....

[Kritters]

This is fabulous, Brown Circles. Thank you.
Kritters

[Morgan]

This is awesome news. Thank you Browncircles.

Thank you Morgellons Advocacy Group!!!!


Morgan

[hilly]

I guess it won't hurt to add all the UK people too... shows them how far and wide it's spread .... Thanks Brown Circles... I'm filling in my form ! Hilly x