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| Morgellons Disease (Fiber Disease) General discussion on Morgellons Disease |
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| I wanted to let the general public know that not only does Kaiser Permanente not have any mention of the CDC/Kaiser Clinical Research Study on their web pages. But also, papers sent by my Disability Insurance Company (not the state), asking for information to be submitted by my doctors at Kaiser have been refused signing by the Department of Dermatology, Santa Rosa, CA. My doctor called me and informed her that the condition I had was not one that the physicians were able to sign disability papers on. This apparently, came from the Head of the Department of Dermatology, whom I have had recent appointments with and had determined him a member of the “Delusional Parasitosis” camp. She said she would refer me to Occupational Medicine. When I called Occupational Medicine, they said they could not see me, because it did not occur at work and wasn’t associated with Workers Compensation. I then asked where do I go? I was instructed to go to my physician. I currently do not have a regular physician-patient relationship established with my new Family Practiioner. This is due to me firing the last doctor because of her resistence in acknowledging my condition, and pursuing proper treatment. I had requested a letter from my doctor to give to my Employer in February, outlining the problems I have been having with my skin lesions and chronic fatigue. I met up with delay tactics, ie: I had to go to Psychiatry and Dermatology first before she would write a letter. After going to these appointments, she reluctantly “wrote a letter”, but I never received it. I finally received it in April, after informing my Dermatologist, wherein she called my former physician. Folks! I have already gone through 2 interviews with Kaiser and CDC, of the Study. Why won’t Kaiser/Dermatology fill out the disability papers, where all the papers are doing is inquiring into my medical record history and diagnosis? Because, if Kaiser recognizes it is a condition for patients to claim disability, then it is admitting that it is a disease. I have contacted a Law Firm in San Francisco, to start litigation procedures against Kaiser Permanente. I plan on talking to a lawyer in regards to suing the CDC. I have 2 video clips showing an emerging hair/fiber coming out of my lesions, taken on two separate dates that are actively moving around. There is no doubt, that I can prove an active organism in my lesions/wounds. So to continue having it reported in my records as a ‘self excoriated’, ‘delusional parasitosis’ is defamation of character, misdiagnosis, and malpractice.
__________________ Sonoma County Morgellons Support Group |
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| I am sorry to hear about all the hoops you are having to jump thru............ But gotta say that it's time for something like this to happen. I wish you the best. |
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| Chocket, So sorry you are experience all this. I admire your strength, fortitude and braveness. This may be the beginning of change in a class-action suit. Congratulations in advance and best to you. Kritters |
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| "ditto" to what kritters and kmar said to you, chocket! I'm so glad you are part of our "family" here. Let us know what we might be able to do to help you in this endeavor. Your strength to battle with the "Big Boys" is an inspiration .In the white light, ~jonsi
__________________ There is a reason I have "Morgellons". Helping and teaching others how to survive in our toxic world may be the reason. Hang in there everyone who has this. |
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| I am glad you are seeking counsel. My only hope is that you are not charged a large sum for representation. This situation is outrageous. You are doing the right thing. If you are applying for Social Security disability here is a website which may help you. This is a link regarding hearings in Congress for rare diseases and compensation: Social Security Press Office: Social Security Holds First Disability Hearing The best of luck to you. Morgan |
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| Chocket! Check out carla's link in her post, you are a hero ! Go girl.Itwl, ~jonsi
__________________ There is a reason I have "Morgellons". Helping and teaching others how to survive in our toxic world may be the reason. Hang in there everyone who has this. |
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| Chockett... you're fantastic... this is just what we all need and should be doing... well done, keep it up, we're all behind you. I really do think this will lead to something really positive happening.... it had to happen and hopefully you have started the ball rolling. Good on you. Hilly |
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| Thank you to all, for supporting this endeavor. Its going to be a long haul, but in the end I know we are going to justify this illness, and there will be some payback, if not $$, then at least acknowledgement of the illness and the pain and suffering that we have had to go through, coming directly from the predominant medical community. Carrie
__________________ Sonoma County Morgellons Support Group |
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| Things will work out for your if you believe in everything that is happening to you and believe that you are meant to be here and live with this for a REASON. My story is an unbelievable one, but I know that I am on this site for a reason that I wish was not part of my world. Anyway, there are so many issues with Morgellons and I had no idea that I had this and was placed on LT DI until 65 and my CD57 is 28 and I went to see Ginger after Dr. H closed down and I am still holding up. I will pray for all of you who can no longer function in your current/previous position that you are assisted so you can pay your bills and get better. I've been offline because Franky changed the site and I didn't get emails and wasn't recognized. It's me, Melissa Jo . Still alive and well/unwell and loving life to the best of my ability her in South Florida. Lots of prayer for all of you. Melissa |
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LinkBack to this Thread: http://www.morgellons-disease-research.com/Morgellons-Message-Board/morgellons-disease-fiber-disease/3890-suit-against-kaiser-refusal-sign-disability-papers.html | ||||
| Posted By | For | Type | Date | |
| Morgellons Group - My new Hero | This thread | Refback | July 15th, 2009 11:38 PM | |
| Morgellons Group - My new Hero | This thread | Refback | June 23rd, 2009 02:32 PM | |
| Suit against Kaiser (refusal to sign Disability Papers) - Morgellons-Disease-Research | This thread | Refback | July 28th, 2008 11:28 PM | |
| Morgellons Group - My new Hero | This thread | Refback | May 13th, 2008 02:49 PM | |
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