Support Groups

[zara cybele]

Hi All,
I'd like to start a support group in NYC and figured we could meet in Central Park.
I have seen at least two people walking in the street who I believe have Morgellons. At the time, I didn't approach them because I wasn't sure if I really had it.
I started a facebook page called Morgellons NYC but no one's contacted me yet, probably due to the slapdash way I wrote the copy. I've got to go back and rewrite it.
Glad to see Jonsi, that you are plowing ahead.

A note on The Morgellons Foundation, they don't seem to be staying current.
I registered with them 4 months ago and no one has updated the number of families affected with Morgellon (it still says 14,720). I find it hard to believe, I am the only person who registered in all this time and if Morgellons is to gain public awareness, those statistics should be updated or linked to a database that automatically updates the site when there is a registrant, like the billboard on 34th street that shows the federal deficit continually getting higher. I think I will drop them a note.

Chocket, having money to start something like this would be nice, but I think taking a step to put it out there in grassroots form is a fine start.

Great thread folks. Good solid ideas.

[Sadsack]

Good luck, Zara! I think Franky is based in NYC - maybe he'll drop in!

I have come across people who are in NYC - when it happens again, I'll encourage them to contact you.

SS