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  #21 (permalink)  
Old April 18th, 2008, 03:29 AM
kmar is a believer that with effort wishes can come true!
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Default Re: Conference in Austin on March 29th

.


http://www.seektress.com/dears.htm

Has anyone seen this letter written by the reporter in Houston who attended the conference?

Written April 17th, 2008


She is not referring to anyone here at this board




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  #22 (permalink)  
Old April 24th, 2008, 01:09 PM
Jo Jo is offline
Jo is wondering how high this moutain is
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Default Re: Conference in Austin on March 29th

Hello,

The Conference DVD is now available for $40

http://www.thenmo.org/Austin308.htm

Joey xxx
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  #23 (permalink)  
Old April 24th, 2008, 03:43 PM
niecy is getting prepared for new grandson!!!
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Default Re: Conference in Austin on March 29th

Jo, I guess this sounds a little bit***, but we were told that that DVD would be available at cost!!!! I guess Warner Brothers had a rep there and me and Jonsi just never saw them!!

Regardless, I will buy it just to make the "friend" that thinks we are all terrorists sit down in front of the family and watch this, and explain her accusations to everyone then...........it should be a special treat for me.

I know that we buy like 30 disks at a time for less than 15 dollars.......oh well.....

Niecy

Quote:
Originally Posted by Jo
Hello,

The Conference DVD is now available for $40

http://www.thenmo.org/Austin308.htm

Joey xxx
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  #24 (permalink)  
Old April 24th, 2008, 08:32 PM
Kritters is a fungus magnet
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Default Re: Conference in Austin on March 29th

I agree Niecy...

That price is outrageous. Who is making the profit anyway?

I wonder how much it would cost if they actually had something SIGNIFICANT AND NEW to present?

As far as your friend...isn't that the one who went WITH you? I doubt you'll change her mind.....I just hope you're not disappointed.

Remember...you have friends here!

xoxo
Kritts
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  #25 (permalink)  
Old April 24th, 2008, 08:40 PM
Jo Jo is offline
Jo is wondering how high this moutain is
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Default Re: Conference in Austin on March 29th

Niecy - maybe the pricing problem was due to discussions with your agent?

I mean....that must have got you (Julia Roberts) in the shot a few times hey!!



xxxx
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  #26 (permalink)  
Old April 24th, 2008, 10:41 PM
jonsi is a mountain hippie chick.
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Default Re: Conference in Austin on March 29th

I think I shall give someone a call and ask about the price. Sounds like a fund raiser for the Charles Holman Foundation to me. On the doors to the conference there were signs saying "no video or audio taping allowed".

Carnicom's dvds on aerosol crimes cost $5 each.

Gettin back to that white light now (niecy )

~jonsi
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There is a reason I have "Morgellons". Helping and teaching others how to survive in our toxic world may be the reason. Hang in there everyone who has this.
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  #27 (permalink)  
Old April 25th, 2008, 07:25 PM
browncircles has no status.
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Default Re: Conference in Austin on March 29th

No, the sale of the DVDs are not a fundraiser for the Charles E. Holman Foundation.

They were done by a professional so they would be well done.

They were done so that people who could not come to Austin could hear what Wymore, Stricker, Savely, and Darrah had to say.

I was at the conference but I still ordered a copy so I could watch it again.
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  #28 (permalink)  
Old April 25th, 2008, 08:25 PM
carla is a bit itchy
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Default Re: Conference in Austin on March 29th

Its a pity there was nothing worth hearing anyway.
If they wanted they could have put the recording on the net.
Sorry if I sound cynical but most of us have financial problems because of this disease.They are meant to be on our side too.
carla xx
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  #29 (permalink)  
Old April 25th, 2008, 11:01 PM
jonsi is a mountain hippie chick.
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Default Re: Conference in Austin on March 29th

You were there too, brown circles? Did I see you at La Quinta? Don't tell me you were the lady trying to find out how to get upstairs at the hotel...that I said "excuse me" to as I passed by on your pew at the church.

Carla, from what I read on "sanctum" many people who attended the conference had a positive experience.... I haven't heard about anything they learned though. It seemed like more of a reunion for the scientist, doctors, family members and friends in the Chas Holman foundation (no disrespect to Chas). A novice would have learned quite a bit.

In the white light,
~jonsi
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There is a reason I have "Morgellons". Helping and teaching others how to survive in our toxic world may be the reason. Hang in there everyone who has this.
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  #30 (permalink)  
Old April 26th, 2008, 01:08 AM
ppy18 has no status.
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Default Re: Conference in Austin on March 29th

the charge for the DVD is to help defray the cost of its production. a professional was hired at a cost of 1500 to record and edit the video. since we had about 8 hours of material it was neccessary to add a second dvd to complete the project. i believe that around 200 copies were ordered for distribution, costing an additional 1500 dollars. depending on the number of orders filled, a large portion of these dvds will not be sold but rather donated to groups that can help raise awareness and advocate for change for the morgellons community. in addition, shipping and handling charges for distribution will cost at least another 750 dollars. given the cost of production and considering that at least half will be used as promotional tools, i expect this to end up costing the NMO at least 3000 dollars. i'm sorry that people feel the conference was not a success because no major new findings were announced. we actually didn't anticipate anything earth shattering when we organized it. this was the first annual conference, our goal was to get the event off the ground on a good note. we wanted to let people have a chance to interact with other sufferers as well as address their questions and concerns to the researchers working to solve the morgellons puzzle. we hoped that people would at least come away from the event with a sense of hope for the future and the knowledge that we will not be silenced in our efforts. its nice to put a face to the people that are fighting on the front lines for us every single day. what can i say, we did the best we could. we don't have a blueprint for how these things are supposed to be done. it's on the job training in an arena that none of us really wants to be involved in. its a thankless task and the pay is zilch, but we can't just sit here and wait for someone to save us. we may not do everything right but at least we do...... something. that being said, we hope this years experience will help us make next years conference a success that everyone can be proud of

peace
ppy
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