Conference in Austin on March 29th

[Steve Frey]

I'm anxious to hear what was said, can't find a darn thing about it anywhere. Had to be someone there who brought their laptop along. guess they didn't have any big news.

[tcmgpt13]

Not that this tells what exactly has happened at the conference, but thought this pre-conference press release might be of interest until those attending report in greater detail what transpired yesterday at the Austin Morgellons conference:

"Astonishing Scientific Findings/New Electron Microscopy Analyses on Morgellon's Disease to be Presented in Austin, Texas March 29, 2008

For the first time, independent researchers and scientists are gathering from across the country to support the Morgellons community.

Austin, TX (PRWEB) March 26, 2008 -- The New Morgellons Order (NMO), also know as The Charles E. Holman Foundation, is holding its First Annual Scientific/Medical Conference on Morgellons in Austin, Texas, on March 29, 2008 from 8:00 am to 5:00pm. The day long event will be held at Westoak Woods Baptist Church, Main Auditorium, 2900 Slaughter Lane, Austin, Texas. Morgellons is an unexplained illness which is characterized by unusual fibers, fatigue, sores that are difficult to heal, and neurological problems as well as numerous other symptoms. It is currently under investigation by the CDC as an emerging illness.

Cindy Casey, RN and Director of the Charles E. Holman Foundation, reports that "We are very excited about this event, as many of the scientists and medical speakers will be meeting each other for the first time. Our hope is that this event will encourage more collaboration between professionals to speed up the search for the cause and treatment of this terrible affliction. Public awareness is another critical goal."

The Conference, titled "Searching for the Uncommon Thread," is geared towards medical professionals and scientists; however, many Morgellon's patients, families and supporters are also attending. Randy S. Wymore, Ph.D. from Oklahoma State University will be providing an update on his university research. Raphael B. Sticker, MD from CA will be discussing controversies in newly emerging diseases. "Dermatology: how it is taught and practiced" will be presented by Elizabeth Rasmussen, Ph.D., WY. Harriet Bishop, President, TXLDA, will be discussing staying positive to cope with Morgellons. The clinical aspects of Morgellons will be presented by Ginger Savely, FNP-C, CA. David Gibbs, MS, CDRP, TX will explain social security benefits as related to Morgellon's Disease. Gregory Smith, MD, FAAP, GA, will discuss why Morgellons is more than a skin disease. An open question and answer period will follow the presentations.

Mark Darrah, Morgellon's Research Director from Stony Brook University, will be providing an update on his research using SEM, FTIR and Raman Microspectroscopy. His presentation will include his observations regarding "Structural and molecular characteristics of Morgellon filaments and particles by optical and scanning electron microscopy (SEM) and Raman Microspectroscopy. Are secretions the real culprit?" Mark works directly with Dr. Vitale Citovsky who reported finding Agrobacterium in a small sampling of Morgellon's patients."

http://www.prweb.com/releases/2008/03/prweb802524.htm

[Kritters]

"Astonishing Scientific Findings......"

Let's hear what's been found out that's astonishing!!!

I thought for sure someone would have had a laptop.

Kritts

[Steve Frey]

I can't believe there's not a single story on any of Austin's networks or newspapers about the findings disclosed at this convention, a doll and bear show would have gotten more attention.

[Jo]

Zipperdee Doodahh
Nada
Jack s**t
Zilch
Niente

Maybe the world has stopped turning and nobody thought to tell us?

xxx

[Jo]

Milly, all,

Here's a rough summary, thanks to Jonsi's shout. Hope Niecy got home alright.

Big thanks to you both - I'm sure you two need to regroup and chill.

The girls have more details to report, also dont forget that the audio and DVD will be available soon.

About 150 people attended the conference. Mostly sick with Morgellons. A few that accompanied sick friend/family in support. Mostly older women. NO minorities.

It was quoted that it was not agrobacterium - may need verifying (re: report in Austin News acticle)

They asserted that chlamydia pneumonia was not involved

Greg Smith MD said there is impairment in the executive function of the brain "ie brain fog".

Treatment involves rotation of 4 antibiotics (Lyme protocol) Anyone taking antibiotics take milk thistle for liver and probiotics, have CBC & MC (liver ands kidney enzymes checed 2x a month)

Wymore said dyes can't be extracted from the blue and red fibers. Morgellons fibers do have a recognizable pattern in relationship to each other and are hollow, not homogenous, and segmented. They may contain keratin.

Mark Darrah talked about cotton 'looking fibers encapsulated in waxy substance, like exuding waxy "stuff" trapped foreign materials.

[Jo]

Hi,

Just found this from Lorie Kramer's site which just gives a flavour of the conference and presenters

http://www.seektress.com/ausmorg.htm

Jo xxx

[hilly]

The most telling and devastating thing in my mind is this.........

'On a new Spring Saturday in Austin, Texas, over 100 people, from 22 states and 3 countries,
gathered at Westoak Woods Baptist Church to discuss, as a concerned
community, the mysterious affliction known as Morgellons.
There were NO known representatives in attendance from
the Center for Disease Control
OR their task force agency: Kaiser Permanente'

sadly Milly x and

'One would think that with 75-80% of the people there experiencing Morgellons symptoms,
and a group of credentialed, experienced, independent researchers present; the aforementioned
organizations would be grateful for the opportunity to gather pertinent information from those
who have spent years on the topic...if only to rule out what has been found that Morgellons is not.
IF nothing else, spend a little of that less than $400,000 budgeted to the task force to actually
meet and maybe even examine a couple patients and possibly reassure them that
their government is indeed interested in helping them identify the cause of their suffering
and get them some help. '

One would think.... ?


'

[Seasprite]

Was Clifford Carnicom a presenter?

[jonsi]

No, Carnicom was not there. ~jonsi