Staph Aureus

[Seasprite]

The dermatologist did a swab sample of the lesions on my head.
He said it was staph arues (not the MRSA kind) I have done lotions, cremes,
and two different anti-biotics. Some got a -little- better.

I have asked him to send me the pathology report so I can see it for myself.

My lesions have hard "layers" he said yes, that staph does that. I said I have
had them for quite a while.

Has anyone else had their lesions "cultured" and come back positive for
staph infection?

Has anyone had systemic staph infection?

I am on a course of agressive antibiotics. So agressive though, that I
think it has affected my gut and given me a heart burn which is quite
painful, not burning feeling per se, but a feeling of tightness in my chest.

I'm calling the doc again tomorrow.

Please let me know if you have been dx with staph.

-sprite

[Seasprite]

Has no one had their sores cultured??

[Kritters]

Good question! I know most dermatologists (and the contageous disease docs like the one I went to) don't even acknowledge the lesions are real, which is incredulous to me.

I'm embarassed to say here that I did have one Lyme specialist want to take biopsies, but they healed before I could get in (then others opened later and I just started with our treatments) I was thinking he wanted biopsies for detection of cancer, not giving him the benefit of the doubt. If I get another biggie, I'll go back, but I do remember that I didn't get the impression he was all that curious what the biopsies would show. Could be my pre-disposed attitude regarding docs .

I just had another thought. Not knowing how the biopsy thingie is carried out, I'm wondering if they just test for known substances and if Morg has an undiscovered component, would they just not see it or would they question it? ??? probably a dumb question.

Kritters

[Jason]

Hi Kritters,

I think thats what is happening now, doctors run tests and things look okay in some people in other people some show lyme disease and/or coinfections like babesia and bartonella and/or chlamydia pneumonia and/or viral infections.

But as there is no such disease medically for Morgellons as nobody even knows what it is then tests won't be able to confirm it. The million dollar question is why are some people plagued with all these other testable diseases and also have Morgellon symptoms. Surely there must be some correlation?

[MELISSAJ]

They biopsied my ear which was a BIG problem last year when I got sick...it was swollen, ashy and blood filled blister and bullseye rash. About 7 months later, it still was sensitive and I went to the dermatologist who told me that all of this was nerves until I told him 3 months later that I had late stage Lymes.

He told me to put a bandaid on it and come back in 6 wks. He then did a biopsy and 3 wks later they called to say that I had atypical/precancerous cells. He shot it with liquid nitrogen. I still have issues when I talk on the cell phone too much. I am not sure if this post helps, but previously his biopsy on my hand with lesions when I was REALLY sick showed NOTHING according to him. That was back when I was sure it was scabies.

I want this to get better. I am tired of everyone coughing and scratching around me.

Melissa

[Kritters]

Originally Posted by MELISSAJ

They biopsied my ear which was a BIG problem last year when I got sick...it was swollen, ashy and blood filled blister and bullseye rash. About 7 months later, it still was sensitive and I went to the dermatologist who told me that all of this was nerves until I told him 3 months later that I had late stage Lymes.

He told me to put a bandaid on it and come back in 6 wks. He then did a biopsy and 3 wks later they called to say that I had atypical/precancerous cells. He shot it with liquid nitrogen. I still have issues when I talk on the cell phone too much. I am not sure if this post helps, but previously his biopsy on my hand with lesions when I was REALLY sick showed NOTHING according to him. That was back when I was sure it was scabies.

I want this to get better. I am tired of everyone coughing and scratching around me.

Melissa

Hi Melissa,
So, they biopsied your ear when it was swollen etc. with the bullseye rash. Did they come up with anything? (sorry if I'm not getting all this right?) Then 7 mos. later (I'm assuming the swelling, pus, rash, etc.) was gone then, but you were still sensitive in your ear) when the (different) doctor saw you and said it was nerves. Put a bandaid on it, (I'm guessing it looked raw then) and then who gave you the test for Lymes that came back positive? Which doctor was that? So then what did he say when it was obvious he missed it?

And you still go to this idiot?

As far as his 'diagnoses' of ATYPICAL pre-cancerous cells......I'd get a second opinion. Probably a 3rd and 4th, but would check for some better doctors first. what's an ATYPICAL pre-cancerous cell anyway....does he know? What the hell makes it ATYPICAL??? possibly because it isn't pre-CANCEROUS but something he doesn't recognize or understand?

I'm sorry Melissa if I'm being over-bearing here but I'm feeling like my fellow Morgies are my family at this point and I'm getting sick to death of these incompetent assholes who are playing with our lives as if we are part of a quiz show.

Atypical pre-cancerous cells to me are kind of saying "you have a uterus, so you MAY be pregnant. Come back in 4 months and I'll see if your belly looks larger".

grrrr.
Kritts

[Kritters]

Me again...

As far as using your cell phone, you should get one of those earpieces which shield radiation from the cell phone. I'm looking into this now.

Kritts

[Kritters]

Originally Posted by Jason

Hi Kritters,

I think thats what is happening now, doctors run tests and things look okay in some people in other people some show lyme disease and/or coinfections like babesia and bartonella and/or chlamydia pneumonia and/or viral infections.

But as there is no such disease medically for Morgellons as nobody even knows what it is then tests won't be able to confirm it. The million dollar question is why are some people plagued with all these other testable diseases and also have Morgellon symptoms. Surely there must be some correlation?

Just quickly here, because I have more thoughts and no time...I agree, Jason. I have my own theories (gee, why haven't all the scientists been banging on my door to ask? ) I'll get to later. I think when you say there is no disease medically for Morgellons, they don't know what organism to stain for or isolate or when they see it (or don't....since it probably doesn't have a membrane) they wouldn't know it anyway. but this is just one thought. When you say, "surely there must be some correlation?" I agree. and that correlation may be that there are either different morphed versions based on one organism or the same one settles in on different parts of the body and takes up the dna relatively. I know this sounds bizarre, probably, but I gotta tell ya, I'm not impressed with what the reasearchers are coming up with just even regarding malaria that's been around for so long, not to mention the influenza virus. I mean, what the heck are they overlooking? There has to be a common denominator with all organisms and it's like they are missing the forest for the trees.

grrrr.
Kritts

[Jo]

I'm not impressed with what the reasearchers are coming up with just even regarding malaria that's been around for so long, not to mention the influenza virus. I mean, what the heck are they overlooking? There has to be a common denominator with all organisms and it's like they are missing the forest for the trees.

Good point there Kritts!!

There was a report on bbc news last night, asking a scientist "why it has taken researchers 50 years to identify the virus/s responsible for the common cold??"

BUT NOW: they have worked out the structure of the rhinovirus. Their are apparently 5 or 6 groups of viruses that cause the common cold and over 200 viruses are playing there part in it's symptoms:

http://news.bbc.co.uk/1/hi/health/210667.stm

None of these diseasese are straight forward or simple are they!!!??

Jo xxx

[Kritters]

Originally Posted by Jo

Good point there Kritts!!

There was a report on bbc news last night, asking a scientist "why it has taken researchers 50 years to identify the virus/s responsible for the common cold??"

BUT NOW: they have worked out the structure of the rhinovirus. Their are apparently 5 or 6 groups of viruses that cause the common cold and over 200 viruses are playing there part in it's symptoms:

http://news.bbc.co.uk/1/hi/health/210667.stm

None of these diseasese are straight forward or simple are they!!!??

Jo xxx

Interesting, Jo~ all of a sudden they are cracking the code. I think it's bs myself. I don't believe there are over 200 viruses causing the common cold. I think they are freaking idiots. Now, that is in the UK, right? Why hasn't anyone in the US cracked the code? As far as tons of 'pounds' going into research, I don't know about pounds in the UK, but I do know that the only major DOLLARS going into R&D in the US is minimal as most goes to advertising drugs for something they should be figuring out the freaking cure for. GRRRRR.

Kritts
xoxoo