Is Morgellons the same as Neuro-cutaneous Syndrome?

[joyesn01]

I just heard about Morgellons Disease this morning and was in utter shock! My mother has had some of these symptoms so I read everything I could find today. I just stumbled upon this site http://www.parasitetesting.com/ and apparently, they call Morgellons Disease Neuro-cutaneous Syndrome. Now I am completely perplexed because this article was published in 2000 http://members.cox.net/llyee/neuro.htm. It sure does sound exactly like Morgellons to me. So my question is... If there are physicians that do in fact know about this disease and have known since the year 2000, why are so many damn doctors in denial? Can someone please enlighten me? I'm sorry if I seem like an idiot but I just can't see why so many people have to suffer when they have known how to treat this for almost 8 years now.

Joye Hurst

[joyesn01]

On the front page of http://www.parasitetesting.com/, if you scroll down to the bottom of the page... It states "Dr. Amin now sees NCS (also known as Morgellon's Disease) patients for evaluation.
During an evaluation session, the patient's medical history and environmental exposure are discussed, a diagnosis of NCS may be established, and recommendations to manage/resolve the conditions are made. Our phone number at the Parasitology Center, Inc is 480-767-2522.

[Kritters]

yep,
Now they're all jumping on the bandwagon of mercy and knowledge.
fu**ing bastards

keep records, people.

one day they'll make a movie about this. We'll get Julia Roberts.

Just trying to make you smile, Em.

xoxo
Kritts

[Katinka]

I'm bringing up this thread again because I do believe there could be a relationship to Morgellons Disease and dental and/or heavy metal toxins.

Which I do not believe is that dental toxins are the main cause only.

As I have read on a Lyme Disease site is that Amalgam is "poisonous" for Lyme Disease Sufferers convinces me that other heavy metal toxins AND
dental toxins in Morgellons Disease patients bodies positively tested for Lyme
could be causative agents or act as a "promoter".

Katinka

[Sadsack]

Joy -
If you dig further, Dr. Amin FIRST described and named it NCS in 1995, seven years before the term "Morgellons" was used. He was also the first doctor to identify the condition and describe it on the internet.
It is interesting, because in many ways his approach is more similar to Dr. Staninger's than anyone else's. They both believe environmental toxins are responsible, and both treat the condition through various methods of detoxification. Both claim successes, but I know Dr. S does not use the word "cure" only "100% symptom free". Not sure about Dr. Amin.
Clearly, though, Dr. Amin is missing some major aspect of this, as youngsters who have never had dental care get Morgellons (and so do animals).
So that seems that Dr. S. is closer to the theoretical answer, though Dr. Amin is having treatment success because he rids the body of toxins.
Some people have had some improvement with meds; I can't figure that one out. It does appear, though, that the folks with long term and better improvement use the detox/natural means. There have not been anywhere near enough studies to be certain of that though.
When did you mother become symptomatic? Are you in the US? What state?
SS

PS - she is VERY fortunate to have a daughter like you. A friend of mine died of cancer in Dec. Not one of her children ever believed her. So horribly tragic, as one of the biggest problems with this is the sense of isolation and rejection that those who are afflicted experience. You are a wonderful person!

[posey]

I'm kinda cool myself!!


posey

[Katinka]

Yeah!!!





To ALL of us!

Katinka

[posey]

I'm so sorry if I offended anyone with my previous post in this thread.

I caught the last line in your post Sadsack and it's what inspired my comment.

I just now went to read the rest of it and feel terrible.

Joy I am sorry for you for the loss of your Mother. I lost mine 9 yrs. ago and it took a good 8 trs. to get "me" back.

Again, I sincerely apologize if I offended or hurt anyone. I certainly did not mean to. I am living with this also and I know how horrific it is. That comment was the first upbeat thing I have ever posted.

Please accept my apology..I've learned to read the entire post b4 replying.

posey

[Katinka]

Not to discredit what Sadsack posted..never thought of such a thing.

But I DO think WE ALL are wonderful persons here, too!
Besides that we all need a little kissing and hugging sometimes...

Katinka

[Sadsack]

Posey -
Joy did not lose her mother - her mother has Morgellons and she is researching for her. All I meant was that so many of us are left out in the cold when we develop this, our friends and families don't believe, doctors don't, etc. And it really increases our suffering.
Whenever I see a family member come into one of these forums as a believer/supporter, I just think it is great...having been in the position of being abandoned by family and friends.
SS