Re: Making a comprehensive Morgellons Survey

[Tootsie]

In my case I was sick for several years and oddly enough when I started to feel so much better and regain some strength i came down with morgs and hit very hard and suddenly overnight but looking back i had those crawlie morg symtoms for many years but it was on a much more tolerable level and didnt take as much notice......

So my question would be how to answer the questions..........starting from when I first felt sick or when I first felt hard hit morgs? May be as long as 10 year span in between. thanks

[aussiedave]

what 10 years?
that means its been round for ages
we can rule out bioterrorism then
they just did hijackings back then

I have been looking into biotech for agriculture and even in this backwater of the world genetically modified pest and weed control are the bees knees

just reading the stuff we use makes me horrified. And for what?

a better crop yield? jesus
its like the manhattan project. everyones got their eyes on the prize but noones checking for consequences

and all the crap we have on tv about terrorism vigilance. If there was a bioterrorist attack it would only take us 20 years to notice
bloody boffins. where are they when u need them?

[ladycolorado]

The longest I know of, from personal contact in here of an individual having Morgellons disease is 27 years. Also heard of one case from Dr. Schwartz in Florida. I think myself disease has been around longer than this. Morgellons disease is not so much fatal as life shortening. Without treatment, or some type of natural help, can have serious health problems if have it a long time. Depending on co-infections present, can have complications to where not so much fatal can be life shortening and debilitating. Mine is well controlled, but nasty nonetheless. This is nothing to panic about, but to be aware of. Once I read about stages of this disease, stage 4 can be dangerous, as vital organs can fail. In most cases I am talking about 20+ years when disease is fought poorly. Heart attacks, lungs being full of worms and fluid, liver or kidney problems are possible if nothing is done after having disease a long time. Before the IV medicines, I was having MS like symptoms, and having periods od difficulty walking body tremors, etc. So this disease is very treatable, and many ways to fight it: no laughing matter to be taken lightly nonetheless. As far as comprehensive survey, we need statistics done as anonyomous poll where a moderator or Franky can have results from yes or no answers, and things like fiber colors broken down into percentages to get a better demographic. Bubba has alot on their plate, I DID send questions which cover pretty much all the symptoms. So an effricent Morgellons questionaire CAN be drawn up. Just rattling them off in this thread is Too inefficient. Plus some have no desire to have their username shown to do this. Just my two cents anyway, (LC).

[EvDownJr]

Environment

Travel and permanent residence history
Where have you lived and visited, when and for how long?
Residence/employer near chemical plant/industries, sewage/water plant, lake/pond/sea, airport, etc.

Pets/Animals

Conditions and symptoms of pets whether these are believed to Morg related or not: (eg: colitis, digestive/respitory problems, lesions, hot spots, tumors, etc?

Home
Exterior (vinyl/polyethylene), brick, wood, fiberglass,etc...
Building type, size, age, history of pests(mice, spiders, squirrels, etc.)
* Pest control measures implemented: termite capsules, rodentcide, ant baits, sprays, biologics etc.
Furniture: Compressed wood with sealants, plastic, metal,
Carpeting?

Health: preexisting conditions
Dental work: cavities, crowns, root canals, etc.
Prior surigies/implants, including screws, joint replacements, etc.
Substantial diagnostic procedures: MRIs, raditiation, exploratory invasive measures, etc.

[Kritters]

EXCELLENT, EVAN!!

(Downey Jr. LOL)

here's what's scary to me. I identify with most of all the questionaire points, but many are from WAY back.

Your entries are profound.

I've always had excellent tooth care, even though I was a sugar freak as a child and suffered cavities. However, all my x-rays showed what they showed and they were fine and right on. well this year, I have a tooth problem and x-ray shows an abnormally small root in the tooth, which was never noticed before. Now I'm going to ask the dentist for previous ex rays to see if it looked normal before. My tooth actually cracked and he wanted to give me a tooth implant or a bridge. I said, "fill it" then I'll make an appointment later.

There is definitely a connection manifested in the teeth.

Kritts

[EvDownJr]

Not to divert from topic too much K, but I think you really have a point. It seems like several of us have had some problem with calcium(bones/teeth), and eventually something goes, then we end up having some kind invasive procedure(this includes dental), horrible metal or toxic things, put into the bodies in an attempt of correction. This seems to hit the nerves, lymphatic system, or some part of us the wrong way and cause our bodies in askew, detrimental ways. Then there are external toxins, genes, bacteria/viroids, who know what.

Albeit all differences, there are definite similarities in self-ascribed exposures, symptoms. We each know we are not mad; having done all the homework and labs; we don't look at lint and scream "parasites". We're not a collection of hundreds different MUPS (medically unexplained physical symptoms), who can't not get answers and hence just choose to call ourselves Morgs. We're sick, sick of being sick, want treatment so we can continue with lives as best that can be lived.

Whether, this is a rare disease, orphan disease, new disease, or a new variation of a rare disease, we're real and want to remain real!

Eboy, really can't stick to topic now. No folie de deux here, just brain fog.

[aussiedave]

my theory is the itchyshow requires calcium. You can either feed it whicj is a worry or you can let it suck the calcium from your bones which is a worry too

[Lisa]

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[carla]

Do you take Amino Acids Lisa? I couldnt go without my supplements now. I still got morgellons but alot of the symptoms are gone. My hairs grown back (real hair not white n frizzy) and I've got loads of energy again.
carla xxx

[Lisa]

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