Kentucky Haze

[Steve Frey]

I am posting this on the behalf of Roma (aka Kentucky Haze), who used to be a member here before she was kicked off. She has recently contacted me and is in desperate need of help. Her family is in complete denial about morgellons and if she cannot find a doctor who can diagnose her as having morgellons she fears her mother is going to have her committed. There is no doubt Roma has morgellons, based on the many pics she posted here. Roma is not in a position to afford the ridiculous fees that these criminal lyme disease doctors charge, she needs a medicare providing doctor. She is also suffering severely with the symptoms. Anyone who thinks they can help her please e-mail me at safrey@earthlink.net and I will forward her e-mail address to you. She lives in Kentucky, I do not know what distance she would be willing to travel for doctor but any leads would be greatly appreciated.

Thanks

[al]

Steve, well done on the research, its great to see the belief you held so strongly, has paid off. Respect, dude!
I'm thinking of a hostel type scheme where people who are suffering could get temporary housing at some other sufferers home, on a "payback in heaven", type scheme.
We really need to extend our resources to those who need help, hope and wellness.
I believe that there would be enough spare rooms in some houses, and cmon, guy's we are the ultimate networkers, we could help them get to a doctor, an llmd, fed, showered, composed.
Not harried sore and homeless.
I have the ultimate great boss, he actually vouchsafed for me last year in the psych ward, coz I had held the position i wasn't saying a word without a lawyer and a Fed. He lets me work as I am able, and I try to be able most days, not for the money, but for the disengagement of work. To think like a carpenter, to create.
So, well done Steve, on many fronts, on your assiduous research, your patience in the face of exhausted, suspicious scepticism (that would be me....), to the fact that you have a heart for humanity, I applaud you.
For seeking help for this lady, you are acting as a beacon, for us all to open our lives in a more tangible, physical sense, to do the "real thing", and help people in really meaningful ways.
The "Byrozoan Underground".....I like it.
Do we collectively have enough cash to buy a house in the city of choice for treatment, so people could have a base?
I'm only thinking outloud, but its been on my mind since the sadness of Skinnymystics passing.
Thanks Steve.

[Steve Frey]

Thanks Al, your comments mean a great deal to me. I apprediate your support on the research and eventhough I do feel one step closer to putting all the pieces together there are still unexplained factors that haunt me, but I have faith that in time the rest of it will fall into place. Then there's the overwhelming task of getting the rest of the world to open their eyes, this will be difficult considering the fact that I am unable to even get the sufferers to open theirs. Eventhough I didn't know her I think a lot about Karen and how hopeless she must have felt, I fear that Roma is at this point as well and we must do something to help her before it's too late.

[al]

Together Brother in the spirit, we lock arms and forge steely resolve that this does not happen.

[carla]

The worst thing is she was getting better just before she left. I feel so helpless.
Al, thats a really good idea but it would take some serious fundraising to pay for that.
Or Bill Gates .
carla xx

Steve Do you think Roma still has the same number .If so ask if I can call her?

[Brenda]

........and there are a whole lot of us out there that have no $, no insurance, no support.

brenda

[MELISSAJ]

She has been through so much and she went out on a limb to another member's house who played God with her and in the end, she was sicker, poorer and more troubled than before.

This illness truly does a number on the brain and whatever sanity we have left, is compromised by the daily battles - family, financial, medical, stess and the lack of true support. It's textbook factors to create depression and mental illness. I often think of solitary confinement prisoners and at the end of the sentence, they are picking their skin and talking to themselves. This is truly evil stuff that we are dealing with and we have to pick our bootstraps up and fight for our lives and families. I just don't want one single soul to go through this nightmare.

I never heard of this before experiencing my nightmare last year and googling after several visits to the MD. If it weren't for you, I would not know how ill I am and at the same time, i wish some days that I was clueless.

Eco Vie smells so bad and the CA office did not recommend using it, but in the end, it looks like it's back to the basics while I battle this with the rest of you.

Lots of love,
Melissa

[jody]

im in the same boat that ky haze is in, im in a lot of pain i have severe peripheral vascular disease.and need help but i don't have ins. all around my heart and shoulder hurts and if i do very much it hurts even more, my legs and toes r numb and fingers.... and turn white if i get a little cold please pray for me.and im praying for ky haze and all..

[redibooks]

I would say for the $18 per bottle that the MMS costs, its worth a try. If KH (or anybody else for that matter) still has $20, it could possibly save her(their) sanity. I think my symptoms are reducing but I don't have a lot of them, and I'd think they should be gone in a week. Someone with bad symptoms may notice a more significant change faster.

I also know that nobody wanted to entertain the idea here, but the people who survive the elements when they're lost with no food or water, collect and drink the only thing available to survive, and it saves their lives. If I were desperate and suffering, I wouldn't hesitate to give that alternative treatment a try for a week since that's all it took. I may try it anyway in a week or two. I hate all the suffering...

karen

[Tootsie]

i feel terrible for KH...........i had thought too she was so much better last I heard.

I never had money either to spend on doctors and treatment, at least for very long. All they did was prescibe me antidepressants and lice treatments and short term antibiotics whitch didnt help much.

My biggest improvement came from diet .anticandida NO sugar Low carb

Fresh galic and apple cider vinegar rate high on my list and are very cheap.
Also coconut oil.....thats not cheap but cheaper than a doctor!

Theres plenty of herbs and information on diet out there.........one doesnt always need to see a dr to get better.