LIFELINE for those in VERY real psychological trouble- totally free!

[ladycolorado]

this number by the way IS posted on the mrf website, just to let you know. IT IS TOTALLY FREE, 24/7 can get somebody kind to talk to if feel like no options left and are contemplating suicide. here is the FREE NUMBER: 1 (800)273-TALK. (8255) KEEP IN MIND, I DO DO PHONE SUPPORT ON AN UNOFFICIAL BASIS AS A FELLOW SUFFERER, AND TRY TO HELP FOLKS EMOTIONALLY AND FOR RELIEF. HOWEVER, IF YOU TELL ME YOU ARE SUICIDAL, AND VERY SERIOUS, I CANNOT JUST SIT IDLY BY AND DO NOTHING. I REALLY CARE, WILL TELL THE HOTLINE OUR SITUATION THAT I HAVE OFFICIAL DIAGNOSIS NO MENTAL DISORDERS AND LEND THE ONE CALLED SOME CREDENCE FOR A SYMPATHETIC EAR. HOWEVER WHEN TOLD THESE THINGS I MUST DO SOMETHING, I GET AFRAID FOR THE PERSON I DO CARE. LOOK, NO JOKE A CURE IS IN WORKS AND DISEASE VERY TREATABLE EVEN IF NO IMMEDIATE DOC FOR YOU. THERE ARE ALSO MANY GOOD FOLKS IN HERE WHO DO CARE. YOU CAN EVEN TALK TO ME A LIVE AND VERY REAL SUFFERER WHO KNOWS SOME OF WHAT GOING THROUGH. BUT SUICIDE IS NO ANSWER WHEN THERE ARE 766 SOULS FULL OF LOVE UNDERSTANDING AND HELP IN HERE, (LC). P.S IF SOMEBODY IN UK WOULD BE MOST KIND TO POST THE NUMBER FOR PERSONS THERE, PLEASE THANK YOU SO MUCH.

[MELISSAJ]

Thanks for posting this. Today I spoke to a parent who runs the open heart surgery machine at a local hospital and I mentioned the fact that I cannot run or do heavy cardio because of my Lymes and wanted her opinion. She was so nice and told me to listen to the doctors because she transplants hearts for 30 year olds who had a root canal and didn't properly take their meds!!

Honestly, if someone asks me last year what would be the top five things that could happen to you to affect your quality of life to the point of not enjoying life at all....Taking away the gym and being sick and tired would be up there, but this rubbery hair and irritable state is truly what I would not have even thought about.

I have been suicidal in fleeting thought at least 3 times since this began in January 2007. I just am too much of a fighter, a mother and a believer to give up. I often feel that I have settled for this ridiculous state that I'm in and when I start to push myself and live a bit, I have an awful setback/relapse. That's the part that I am most annoyed about.

My cognitive ability is so challenged and my organizational skills and sense of direction goes up and down. I have always been an everything in its proper place person and wrote lists and goals. If I forget to write a list, I forget what to do other than the regular activites.

On another note, the parent mentioned above, asked if I had had mono in the past. I had it in 9th grade and missed 3 and a half months of school and was hospitalized. She asked if I thought that it was Lymes' back then and no one caught it!! It was the first time that anyone brought that up! I ran 105 fever for a week and they could not bring it down. All of my body was shutting down. I forgot about it except that another lymes patient mentioned Epstein Barr and Lymes for patients who had had mono.

I know that we will get to the bottom of this, but I look back and remember now some weird periods of "dirty" or "buggy" after cleaning out the garage in FL or one winter at Dad's before the 16degree below zero weather hit and once at an old aptmt on 3rd street between 1st and 2nd in NYC. So, this was brewing and I'm not crazy but at least I know why my body gets depressed here and there and lack of sleep or nutrition affects me more than others. I believe I will get better and today was so much better than the previous cruddy days.

Thanks again,
Melissa

[ladycolorado]

i will say again to those interested in help general support or tips: i do do phone support on an unnoficial basis. i am so sorry melissa you have this cruddy time like this. the children have been a godsend to me as well. thanks for responding. if you ever need a voice a friend I AM here. i think you know by now i have no agenda EXCEPT we get relief , but YEAH suicide is not answer. i see doc in about a month perhaps she knows something for this "gummy hair" . i have heard of a couple of crazy things for head lesions do not laugh, but peanut butter to smother, and also mustard. (common flat yellow frenches mustard has tumeric in it). the only downside to the mustard: you might have golden hair, literally, lol. does this gummy stuff if can get a strand or piece, burn? i DO know non burnable fibers DO exist, i got one off head once was shiny and black. is the gummy stuff colored? both of these are are more of a problem. please private message me SOON. (LC) p.s. to the brits in here: if have suicide hotline number, please post in this thread the number, thanks. YOU COULD SAVE A LIFE.

[MELISSAJ]

The gummy hair (that's a good way to describe it!) is white!! I had been using the H2O2 spray and about 100 hairs turned white and elastic like. They are like noodles. I cannot make this up. I had been trying to ignore it for the longest, but when I was having tangled hair and combed it, it sort of bunched up in this funny wiry wet noodle weird hair. It is definitely some other composition. It gives me a headache sometimes and I know there is something going on that I'm scared to know about. I don;t believe there are lesions. It was not like this until recently....2 months in the making. It's at the top of my head. What should I do? I truly thought about shaving my head, but I am afraid it will put me over the edge. I have such hard features and stopped wearing makeup a long time ago. I don't want to look like a dude.

M

[ladycolorado]

well let us hope shaving head not needed. what i need to know is does it burn, this stuff? please private message me at earliet conveinence, (LC).

[ladycolorado]

here is link: http://suicidehotlines.com/canada.html . (LC)

[ladycolorado]

suicide hotline number INTERNATIONAL LINK: http://suicidehotlines.com/international.html . (LC).

[EvDownJr]

If one wants to make sure confidentiality is not breached, it may be best to contact the Samaritans. This is a UK volunteer society I believe in very much. They have several branches in the USA. Now there's no national toll-free # in the States, however, one can phone one of the branches in the States, I think from anywhere in the country, even though it may be a toll call.

Here are some listings:

Samaritans New York City:

1: (212) 673 3000

Boston Area:

617 247 0220

Rhode Island

(401) 272 4044


One can obtain support via email from anywhere in the world using Email:

jo@samaritans.org





Here's the Website for the root organization in the UK

http://www.samaritans.org/talk_to_someone.aspx



When one mentions the "S" word in the states, sad to say sometimes bells and whistles of feared litigation and "social responsibility" can go off. I know the group above is sworn to confidentiality. This is a safe place to discuss one's concerns without fear.